Eternal422
Well-Known Member
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
@everydayupsanddowns congratulations on your HS today!
Hopefully they will get a positive assessment as to their real needs. People of a certain generation often want to do their best and underplay the difficulties they are having.4.7 this morning for me.
Yesterday’s care assessment for my parents was cancelled last minute and rearranged for next week. Bit annoying but at least my parents are now more open to getting some help. I think they need more than they are talking about, but this will at least be a first step.
Eye screening today so I fully expect the mist to clear and bright sunshine to arrive around 3pm today![]()
Just seen a bit about creon shortages on BBC breakfast news and aware there are some here on this forum that are affected. Just makes you think how reliant a lot of us are on the medicines we need and perhaps how fragile the supply chains are getting.
Take care everyone.
I am getting towards being that generation myself and guilty of exactly what you say!People of a certain generation often want to do their best and underplay the difficulties they are having.
Last year I had problems getting Creon and even cancelled a holiday to Madeira because of it. But since the autumn I haven’t had any problems with my supply and now have a surplus. Today it’s re order day and I wasn’t going to ask for Creon as I have plenty and I feel guilty hoarding them when others are struggling. Now I don’t know what to do.Just seen a bit about creon shortages on BBC breakfast news and aware there are some here on this forum that are affected
Having heard the non-committal response by the Health Sec on BBC Breakfast at c.0740 (available on i-player) I intend to maintain my modest stockpile and reorder next week my repeat Creon. The reality is there is an international shortage of the ingredients, thus uncertainty about manufacturing and supply. While the Health Sec alludes to this, he clearly didn't have any clear idea about how this would (could) be resolved. Hence his response was evasive.Last year I had problems getting Creon and even cancelled a holiday to Madeira because of it. But since the autumn I haven’t had any problems with my supply and now have a surplus. Today it’s re order day and I wasn’t going to ask for Creon as I have plenty and I feel guilty hoarding them when others are struggling. Now I don’t know what to do.![]()
Thanks for that Roland. I’ve just read it. I will do as I first thought then and not order any this time. I’ll evaluate my need over the next eight weeks and maybe get my GP to reduce my prescription as I don’t take as many now because of other gastric issues.@eggyg, have you kept up with the comments re Creon on the thread "Type 3c India trip"?
Hello looking to return to India this year after a couple of years of operations etc..
I noted the thread about insulin and the cool bags, very useful.
My question is regarding Enzymes eg Creons.
These are in short supply and prescriptions are limited, as users will know, so can they be procured in India or would one need to take a suitcase full to cover the trip?
Thanks
Mr Steve
- Mr Steve
- Replies: 16
- Forum: General Message Board
I've just recently had to start on the meds having managed to put the GP off for 2 years but my BP is stubbornly higher (though not too high, just more than they'd like). I suppose it comes to many of us eventually even though we put it off as long as we can. Fingers crossed for you.They are going to want some home monitoring done and I suspect I may be heading towards medication for it, which I am really not keen on, but no good if it is that high all the time
Yep Roland I think they also mentioned that there is one main wholesaler and that they were having specific issues about obtaining supply.I too thought Wes Streeting was being evasive and good to see the publicity around Creon shortages.Having heard the non-committal response by the Health Sec on BBC Breakfast at c.0740 (available on i-player) I intend to maintain my modest stockpile and reorder next week my repeat Creon. The reality is there is an international shortage of the ingredients, thus uncertainty about manufacturing and supply. While the Health Sec alludes to this, he clearly didn't have any clear idea about how this would (could) be resolved. Hence his response was evasive.
I respect that he wasn't making a false promise of resolution, so managing cautious expectations. But not a hint of any improvement by the NHS or Government for supplies of Creon, PERT in general nor any of the other meds in short supply. In fact it bothers me that PERT shortages could be diluted amongst other shortages amidst the workload of the Health Department. So I shall
selfishly, but openly, revert to making sure I'm looked after; hence some stockpiling.