The Pumpers Thread!

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LADIES!!!! YOU ARE WONDERFULL!!!! Its official, you are my FAVOURITE forum members!!!!

I put in one code after the other, got 15% off and the free shipping. Sooooooo good I have purchased 2 for $33.

Many thanks, I shall run all future purchases past you guys in the future!

Thanks, hitting the sack after my big investment. They should give you all further discount for recommending custom 😉

me needs some beauty sleep (and a BM!). Night all xxx
 
Lou - you are a star! I forgot all about this feature! As i say, it is a rare ocassion for him to miss but i guess it could happen again due to distractions at school (and no mom behind him to nag!:D) so will look into it.

Glad the others helped you get a discount and free postage sorted! Enjoy your purchase!

Love to you. x
 
Hi all,
Last night A went up to 14mmols at midnight! He had been hypo at 7pm after his meal - so wasnt expecting this.

So after much thought - i have come to the conclusion that he does need the higher basal in the evening -BUT - i think i have started it too early (6pm) - which was the cause of his unexplained fish and chip hypo's!

So tonight i am changing it so that the higher basal starts at 8.30 to cope with the later highs - and this in turn should help with the hypo after evening meal as i will keep the lower rate until 8.30.

Before changes he was on 0.375 between 12 noon and 12 midnight.
I then changed it to 0.375 until 6pm and then 0.400 from 6pm to midnight.

So what does anyone think? I suspect the 6pm start of the high basal is too much combined with his bolus for meal. Do you think 8.30 is the right time or should i leave it a little later? Although it does take 1 hour to kick in with any changes - so thinking 8.30 is AFTER the 2 hour check of his meal - but BEFORE the late evening rise!

Not sure if this makes sense to anyone.....😱🙂Bev
 
bev said:
Hi all,
Last night A went up to 14mmols at midnight! He had been hypo at 7pm after his meal - so wasnt expecting this.

So after much thought - i have come to the conclusion that he does need the higher basal in the evening -BUT - i think i have started it too early (6pm) - which was the cause of his unexplained fish and chip hypo's!

So tonight i am changing it so that the higher basal starts at 8.30 to cope with the later highs - and this in turn should help with the hypo after evening meal as i will keep the lower rate until 8.30.

Before changes he was on 0.375 between 12 noon and 12 midnight.
I then changed it to 0.375 until 6pm and then 0.400 from 6pm to midnight.

So what does anyone think? I suspect the 6pm start of the high basal is too much combined with his bolus for meal. Do you think 8.30 is the right time or should i leave it a little later? Although it does take 1 hour to kick in with any changes - so thinking 8.30 is AFTER the 2 hour check of his meal - but BEFORE the late evening rise!

Not sure if this makes sense to anyone.....😱🙂Bev
Click to expand...

Sounds good to me. It is all trial and error unfortunately. With sensors you can see on the overlay graph where the general rises are so you can make these guesses a lot more accurate. You could always test hourly between 6 and 9 for a few days and see what happens. All depends on food though doesn't it.

See what happens.
 
Mand said:
Lou - you are a star! I forgot all about this feature! As i say, it is a rare ocassion for him to miss but i guess it could happen again due to distractions at school (and no mom behind him to nag!:D) so will look into it.

Glad the others helped you get a discount and free postage sorted! Enjoy your purchase!

Love to you. x
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Hi Mand, we use this feature for A. We set it for 15 minutes after lunchtime has started - so its a little reminder for him - and up to now and touch wood etc - it seems to work for him!🙂Bev
 
Adrienne said:
Sounds good to me. It is all trial and error unfortunately. With sensors you can see on the overlay graph where the general rises are so you can make these guesses a lot more accurate. You could always test hourly between 6 and 9 for a few days and see what happens. All depends on food though doesn't it.

See what happens.
Click to expand...

Thanks Adrienne, i was starting to think i was talking rubbish! We have a meeting on 7th October to go through bolus wizard and all the other gadgets on the pump - also to talk about sensors - i think we have a couple to use when we got the pump - so just wondering is it worth just using 2? We are planning to fund some for a while - but not sure if you need them back to back? Would using 1 sensor give you much information if your not used to using them? Thanks. 🙂Also, the 'nice' consultant has asked for the download for the pump before next monday clinic. I havent used the carelink - is it easy to set up? What information can the pump tell him as we dont yet enter the bg or use the bolus wizard etc? Bev x
 
Great exchange last few pages folks -- and thanks all for your sympathy re our Night of Hypos one before last...

Spibelt -- gotta do this. Many thanks again.

Lou -- re night testing. We did *not* test as much at 3am on MDI, for a number of reasons: a) we didn't know to do so, thought everything was stable b) the long-lasting insulin felt less flexible, in that we could learn as much from the morning reading as from the 3am one. Toward the end we tested at 3am quite often to try to finesse his nighttime basal... In all honesty, I don't anticipate E waking for night checks when he leaves home. This is though 5 years away. I am hoping -- praying, really -- that by then some kind of nighttime closed loop system will be available, or at least a more sophisticated sensor system...I think this is on the cards, fingers crossed.

Saying that, we did not check last night. We were all very knackered and E is coming down with something (have had daughter home for 3 days now!), shattered. He went to bed on 5.4 with milk and biscuits, and woke up on 4.4. It was 9 hours! This is extremely rare for us, to go for 9 hours like that...What we've learned is that he is dropping a little overnight. So we will have to get up some more to see at which point he is dropping. Sigh.

However I feel like a different person today having had 9 hours of sleep myself. We are averaging 6 to 7 interrupted hours a night at the moment, and finding it rough...(we're old).

Good news is the tiny (.05) tweak to the afternoon basal meant that his pasta dual wave (hiss!) from lunch actually worked as we thought it did -- phew! No hypos.

He did however have two hypos in quick succession yesterday morning...seeing as that's the second or third one in that area of the day, with a couple of other 'riding low' numbers, in the last couple of weeks, we've tweaked that one too.

He struggled a little with these yesterday, and phoned me unable to find his extra glucose, having had his apple juice earlier. A little muddled. He was then due to go on duty at the front desk. He was walking as he was talking to me! I said sit down! He said he couldn't etc...I said he would continue to be low unless he let himself catch up, and that the receptionist would certainly understand.

Receptionist saw he was draggy and asked if he needed to sit down. He ummed and aahed apparently -- then said his mum would want him to! At which the good lady made him sit for a few minutes. He came back up, and then ran his errands for her. Since he's home today I spoke to her to call in his absence -- she told me the story (although to be fair, he had also reported it to me last night). I took the chance to explain a bit about diabetes...every little bit helps!

We are pursuing school and the slight difficulties there through various avenues...will keep you updated.

Meanwhile: Bev I hope these adjustments do it for A. I think you are just doing brilliantly; these tiny things are what the pump is all about, and you are making such great headway.

And Tracey, I'm eager to hear how the new basal has worked?

Over and out everyone -- I'll try to check in later.

xxoo
 
A poem for Sugarbum - Diabetic Auntie Lou

Today we?re off to visit Diabetic Auntie Lou,
She?s such a lovely person, and I think you?ll think so too!
She says that diabetes shouldn?t stop you having fun,
When we?re with her we dance and sing and jump and swim and run!

She wears a pump called Veo, and I want one as well,
?Coz when she has her insulin, then you can hardly tell!
It works out just how much she needs for every meal she eats,
And that includes for chocolate pud, and loads of other treats!

She has a special wizard friend that hides inside her pump ?
He must be very tiny ?coz you cannot see a lump!
She has some things called basals set that change throughout the day,
And even though there?s tubes and stuff, they don?t get in her way!

It made us laugh when Auntie Lou once made a pooping noise,
The pump alarm began to sound ? she almost lost her poise!
She said it was the bubbles in the insulin reservoir?
That didn?t explain the eggy pong that filled up Auntie?s car!

But we all love our Auntie because I think you?ll find
You?ll never find an Auntie that?s so caring and so kind!
I hope that you have Aunties too, or maybe it?s your Mum,
That love you and that care for you ? a super Sugarbum!

:D
 
bev said:
Thanks Adrienne, i was starting to think i was talking rubbish! We have a meeting on 7th October to go through bolus wizard and all the other gadgets on the pump - also to talk about sensors - i think we have a couple to use when we got the pump - so just wondering is it worth just using 2? We are planning to fund some for a while - but not sure if you need them back to back? Would using 1 sensor give you much information if your not used to using them? Thanks. 🙂Also, the 'nice' consultant has asked for the download for the pump before next monday clinic. I havent used the carelink - is it easy to set up? What information can the pump tell him as we dont yet enter the bg or use the bolus wizard etc? Bev x
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Hi

Not sure what info the pump can give him without the use of sensors to be honest. It will give him what basals, ratios and sensitivity factors are being used but you can tell him that. I found the carelink easy to set up, have you got all the cables?

Sensors - We started off with 1 a month. What a waste of time, for us ! They were alarming all over the place, never in align with the finger tests, couldn't work it out. Eventually I told the Prof that I wanted to use 4 on the trott to see how it could work for us. Bingo that worked a treat. I was able to relax about them, which was part of the problem, let them work for us rather than us work at them. After four weeks I compared download overlay charts of what the sensor said she was to what finger tests she was and even though they are not always in alignment I could see trends which helped no end tweaking the basal. I also found that from midnight to morning the sensor was pretty much the same as finger tests. So now I still get up, my body seems used to it, but I just look at the pump rather than stab her finger yet again. If she alarms low however or high then I do test and act accordingly. The low alarm is just another safety factor for me. If I don't get up cos I'm just too knackered and have slept through my alarm I know that it will siron eventually if she is just too low and I have ignored it. With the VEO it will cut off the insulin and the siron is very very loud and will wake the house - I heard it at the FFL conference, this is much better than the 522 that we have.

I can guarantee you that once you have sensors and have worked out how they work for you and A you will always want them in. Jessica always wants them in, it is a safety for her as well as for me. She doesn't like them going in but she wants them. I've put in a few now for other children as there is a knack to it but you soon learn once you've been shown.

One friend does use them once a month. She has learnt from me how they could potentially work for her child and because she has me on hand and has learnt by that rather than doing it, it works fine once a month.

Me, I'll never go back to once a month - I just hope that Jessica will feel the same. 🙂
 
Northerner: I am TOTALLY thrilled with this poem!! I love it. Mainly cos Lou deserves it, and it is so genuine, etc... She *is* the best! Fingers crossed E will find someone to depend on like Lou. I often think about this: what he will need is a good woman, or a brilliant friend.

Adrienne, the hold up with our sensors is that the team's IT can't cope with the download! It's not working...So we are rather stuck in a loop at the moment, on the list until it's fixed. Damn.
 
Patricia said:
Northerner: I am TOTALLY thrilled with this poem!! I love it. Mainly cos Lou deserves it, and it is so genuine, etc... She *is* the best! Fingers crossed E will find someone to depend on like Lou. I often think about this: what he will need is a good woman, or a brilliant friend.

Adrienne, the hold up with our sensors is that the team's IT can't cope with the download! It's not working...So we are rather stuck in a loop at the moment, on the list until it's fixed. Damn.
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Hiya

What do you mean the team's IT can't cope with the download. You can download it yourself at home onto the carelink website. You can save the data easily as a .pdf file and just email the document to the team then they can see it !!! I presume they don't know that. Do you use carelink? Have you got the cables? I think they are free now 🙂
 
Unfortunately we can't use the carelink at the moment Adrienne,:( -- we have apple macs...And they don't support the software.

Bev did find something on another forum once upon a time about some fancy thing someone did to get carelink onto the Mac...we haven't done that yet, but i confess we'd love to be able to do it...

We may end up getting a PC specifically for E's stuff -- bit of a bummer, but I'm not sure how else it will work?!

Irritating.
 
Fantastic poem, Northener! :D

Lou, i would be very happy for you to be aunty Lou to my son! :D
 
wow, i can't believe how fast this forum moves!!!! I don't log on for the day and then I have pages to catch up on!

Hope you guys are alright! Great Poem Northerner, loved the one you did for me about sneaky diabeties fairy too! you have such a talent.


I am so tempted to purchase the spy belt with the discounts but won't as I have my pump clinic appointment on Tuesday. Don't want to tempt fate and all that! If everything goes according to plan on Tuesday then I will probably order one.

Nervous but excited about next week!
 
Lesley - i just wanted to wish you good luck with your quest for a pump - let us know how it goes!🙂Bev
 
Adrienne said:
There are loads of pump belt companies. Here are a few we have used :

http://www.pumpwearinc.com/
http://www.angelbearpumpstuff.com/ (my favourite, all made by a grandma)
http://stores.shop.ebay.co.uk/PUMPN-IN-STYLE__W0QQ_armrsZ1 (cheapest)

There are lots more but these seem to be the main ones used by the people I know.
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hello, have heard you all talk about it but what is a spibelt? What is the website for it, its sounds good if you are all getting them, i dont want to be left out!! 🙂
 
Hi Tracey,
These are belts for use when doing sports etc - they dont wobble your things around! If you look at the website there is an offer on at the moment - free shipping! They are very good value and A loves them - so do a lot of children on the other forum. But they do them in adult sizes too! They keep the pump very snug to the body -so stops them falling down the loo or anything like that - also good to sleep with - stops the pump going walkies during the night!🙂Bev
 
Well what a day!

firstly, Adrienne, thank you so much! You are a star, i changed the rates like you said.

unfortunately woke on 12.4, my own falt, didnt have tea until 10pm after working late and had pasta, didnt want to go low after being busy so i know i dint giv enough bolus....

any way gave 0.5 correction on waking 6.45, breakfast at 7am, tested 8.30 as was driving 10.8 (lower than before breakfas). 9am 9.1, lower than before breakfast, 10.30 8.1, yipeeeeee 🙂 so no spike at all, only 1 day i know but how wonderful and good not to go to 18/20 for a change, brilliant.

Learnt my pump handset today, which is also my meter. Wireless connection to the pump, learnt bolus advisor, put in all current ratios and correction factors, so far been in range all day. Apart from a hypo at 17.30 :( my own fault, got a bit carried away as advisor sid gove 0.8 correction after lunch, which i did, but then went tearing around the supermarket, tidying house etc and didnt take that into account!!

Gave first multiwave with tea, homemade curry, basmati rice and small naan bread, 30% upfront and 70% over two hours, pre teas 6.6, 2 hours later 7, wow........ will see how next few hours pan out, but overall a good day and learnt a lot i think.

Thanks Again Adrienne for your advice, dsn has tweaked my evening basals as well, so a lot going on.
 
have just read that last post back, spelling is shocking 😱😱
 
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