@gll Slight aside but being brand new to migraine I’m interested… how do you know a migraine is coming on not just a normal headache - do you get the visual symptoms? I’ve not had any of those. What painkillers do you find work? The “migraine cocktail” the hospital gave me worked to end it but they really knocked me out. Sort of glad to see it’s not just me that gets high bg with them though, maybe that’s my clue for a migraine coming on rather than a headache.
I often get visual auras - either big blobby floaters with multi coloured edges around them (that was todays) or jaggy lines that are very vibrant or even just massive blurry or dead patches in vision.
I also get audo sensitivity when anything other than a low background noise is happening, eg someone speaking sends searing waves of pain through my head. Can vary in degree of sensitivity and pain.
I also (and this is a weird one) get so jumbled up with words (speaking and typing) and my brain is correct in what it wants to say but getting it out in the right order or using the right words can be a little funky. Can usually spot it better if I type something and read it back and go whaaat did I just write there
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I do feel nausea occasionally but its mainly visual and audio for me.
I usually get 20-30 mins between symptoms and the build from a normal headache to not being able to function without meds and often sleep.
Afterwards I'm usually floored and 0 energy.
Haven't had many migraines since diagnosis in oct (maybe this is 2nd or 3rd one now) and my bg hasn't necessarily been high (for me) and I have even checked against blood pressure which is okay too.
Sometimes I get them on their own and nothing for ages between them, other times they come n clusters with a few a week for a few weeks then nothing for a while again.
Since diagnosis of D the general headaches have settled down which I always associated with migraine clusters (those probably were screamingly high bg numbers).
I know one trigger for me is time of the month but never been able to identify other triggers.
I know the reason for combining paracetamol and caffeine as you find in coke or the combined pills is it helps with absorption of the medication, I had not heard the same was true with aspirin.
Friend of mine went to a clinic in London and they consultant said while they cant recommend it officially as treatment but the coke aspirin combo seems to work well for a lot of people. Doesn't seem to work as well with off brand coke and has to be full fat one too.
It really is a gamechanger for me but I didn't really want to drink a can of coke while still in double figures bg wise so figured the paracetamol and pepsi max and sleep could be tried first and I could still add aspirin and coke if I needed to.
Taking medication as soon as you suspect it coming on rather than wait.
100%
If I can get ahead of it, it is usually a much easier experience.
I never really got anywhere with the GPs and getting to the bottom of it. I found something that worked and am happy to be able to deal with it myself unless I can't anymore or it changes.