Hi all, I think it's about time I got some help!

[1st Paradox]

All good at home now (ish), And still feeling much better, yanno... after all this time in denial and self loathing of my bodys betrayal, it really is nice to start feeling almost normal again. I tell ya, the amount of issues I was having and brushing off with "it's just old age kicking in haha" was ridiculous. So glad I'm not being that fool anymore already!

 

[trophywench]

God helps them, that help themselves ! I'm not 'religious' but have to say - I've always found it to be true.

Onwards - and DOWNwards for a change - with your BG that is, LOL

 

[PhoebeC]

Hi Paul,
Really glad to hear you are starting to get more control, and I'm sure you'll carry on feeling a bit better each day as your levels continue to come down.
I hope you get your other problems resolved as well.
Regards
zx

Sleep is so important to general health. Most people forget this. Even those who eat right, exercise and are very healthy are cutting themselves short by not sleeping. Its not given enough thought by most people.

Great to hear your levels are improving. Just keep it up.

 

[1st Paradox]

Ok so... I have a bit of a hectic day today, already been at work for over 2 hours (don't technically start till 10), Have 3 interviews to get done for new students, I've got a night class for 2 hours starting at 5, got 2 private client meetings in the middle of the day and at some point I need to pay my family some attention.

I need to ensure I eat (just had breakfast) in the midst of all this chaos.

Anyway... onto point...

I also have my appointment with the dietitian today at 3, need to get my head sorted and ensure I cover every thing I need to, let on about the good news of me being an adult about my condition and just generally get the additional help in place and start acting on it asap. Wish me luck, I'll update tonight.

Suppose with such a chaotic day I'm just naming stuff so that I don't forget. So hear goes...

Discuss my denial and ignorance/poor self care/management.
Talk about high blood glucose readings and what I have been doing to get it down. Ask for help and more advice in this regard. ( I think I may need an adjustment to be honest)
Lack of sleep and tiredness.
Stress and its effects on my body.
Arrange Diabetic specialist counseling.
Get appointment with Specialist in place.

[EDIT]
Differing meal times due to hectic working days.

Anything I'm missing any thoughts on additional things I should ask her?

 

[Kaylz]

Sounds like a good list of stuff to me, how about times of your meals due to different things happening each day etc x

 

[1st Paradox]

Sounds like a good list of stuff to me, how about times of your meals due to different things happening each day etc x

Good Idea, Will add to list

 

[Greyhound Gal]

Hi. Have you been keeping a food and BG level log? If so, be good to show this, or if not, you could let her know the kinds of things you have been eating and when, and when during the day your BG have been high or low e.g. when missed a meal, when gone long time between meals, not long after a meal etc.

 

[Kaylz]

Completely agree with @Greyhound Gal, I also made a note of testing different foods with my bs before, units taken, bs 2 hours after if I had anything in between then my bs 4 or 5 hours later x

 

[trophywench]

This is an initial meeting, and with a dietitian, not any sort of 'medic' - so they won't be able to deal with all of what's on the shopping list - eg BP medication - we need our GPs for that unless we're in-patients - but hopefully he can get himself back into the system so he can get everything sorted.

Hope it goes well, good luck!

 

[Steff]

Good luck today Paul

 

[1st Paradox]

Ok, ok so I'm back home after a stressful day educating the masses, did my 2 private meetings with clients, did my night class (ended my night class early). I had a great half hour appointment with Fran (my dietician) that actually lasted 1h 40mins and the results are to follow. And am all set to sit and play with the kids for the next hour or so until bed time.

My hba1c is crazy high >130 they told me the meter only reads up to 130 and Im higher then that.
My average BG has come right down and is sitting around 13-15 (used to be in the 20s).
Ketones at 0.1, all good here 🙂

Got to have good chats about everything from diet and insulin to health in general, sleep and even other support routes.

Basically I am signed up to dafne in may if they have a cancellation, they have booked me in to see specialist in june, I have another appointment with Fran in a month to keep me in check and retest hba1c.

She has advised that I do not rush my levels down as it could cause problems with my nerves and eyes due to the shock/strain I would put my body under. She wants me to sit at an average BG of 15 until our next meeting. I am booked into see the diabetes specialist counsellor, have contact for a local support group and phone number for emergency support.

She said I'm ok to carry on as I am with the hectic lifestyle of work, so long as I do eat during the day and has advised a night time walk to help lower my BG prior to bed , de-stress, wind down and make my body a little tired (I teach from a computer to am not all that active) so that I sleep better. She has offered for my partner to come along to the next meeting and any from this point onwards to gain some knowledge and explained the potential damage I may have /could cause by constantly being in the range I was. She was truly amazing and I feel like a bit of a TXXT for not doing this sooner and basically making her feel like I was a lost cause.

Great day overall, I'm so happy right now 🙂

 

[Amigo]

Ok, ok so I'm back home after a stressful day educating the masses, did my 2 private meetings with clients, did my night class (ended my night class early). I had a great half hour appointment with Fran (my dietician) that actually lasted 1h 40mins and the results are to follow. And am all set to sit and play with the kids for the next hour or so until bed time.

My hba1c is crazy high >130 they told me the meter only reads up to 130 and Im higher then that.
My average BG has come right down and is sitting around 13-15 (used to be in the 20s).
Ketones at 0.1, all good here 🙂

Got to have good chats about everything from diet and insulin to health in general, sleep and even other support routes.

Basically I am signed up to dafne in may if they have a cancellation, they have booked me in to see specialist in june, I have another appointment with Fran in a month to keep me in check and retest hba1c.

She has advised that I do not rush my levels down as it could cause problems with my nerves and eyes due to the shock/strain I would put my body under. She wants me to sit at an average BG of 15 until our next meeting. I am booked into see the diabetes specialist counsellor, have contact for a local support group and phone number for emergency support.

She said I'm ok to carry on as I am with the hectic lifestyle of work, so long as I do eat during the day and has advised a night time walk to help lower my BG prior to bed , de-stress, wind down and make my body a little tired (I teach from a computer to am not all that active) so that I sleep better. She has offered for my partner to come along to the next meeting and any from this point onwards to gain some knowledge and explained the potential damage I may have /could cause by constantly being in the range I was. She was truly amazing and I feel like a bit of a TXXT for not doing this sooner and basically making her feel like I was a lost cause.

Great day overall, I'm so happy right now 🙂

She's sounds like a very well informed dietician there Paradox! I'm quite surprised at the level of diabetic management advice she gave. All the dietician told me was 'eat more fruit!'

 

[Lucy Honeychurch]

It's good you're accessing the medical help you need, my levels were around the same as yours are now after I was diagnosed and mine were reduced gradually too. Wishing you all the best 🙂

 

[mikeyB]

I've been hanging off the thread, but I'm pleased that you have finally realised that there are some things in life that are more important than being too busy. You've made a great start to getting yourself sorted - the graveyards are full of folk who were too busy - but you absolutely have to get those blood glucose levels down. That should be your main focus at the moment. It should be second nature, not a burden. Do not miss out on any appointments or courses you are offered. Your employer has, by law, to make accommodations for your disability.

Keep up the good work you have started, because the alternative is rapidly accumulating all the complications that this condition can cause, most of which are life changing. I would say best of luck, but luck has got nothing to do with it. Best of effort is probably better.

But I do wish you all the best in your efforts.

 

[trophywench]

Oh Wow! - I'm really pleased she was able to cover a lot more than I thought she'd be able to!

Onwards and downwards !!

 

[Lindarose]

I'm so pleased you've started to look after yourself paradox. And I bet your family are too! I really wish you all the best with the new life you're now working on and look forward to hearing your progress. 🙂

 

[Steff]

Hi Paul.
It's great to see since when you first posted 10 days or so ago that things are starting to look up for you. Small baby steps and before long you will be gliding along .

 

[1st Paradox]

I've been hanging off the thread, but I'm pleased that you have finally realised that there are some things in life that are more important than being too busy. You've made a great start to getting yourself sorted - the graveyards are full of folk who were too busy - but you absolutely have to get those blood glucose levels down. That should be your main focus at the moment. It should be second nature, not a burden. Do not miss out on any appointments or courses you are offered. Your employer has, by law, to make accommodations for your disability.

Keep up the good work you have started, because the alternative is rapidly accumulating all the complications that this condition can cause, most of which are life changing. I would say best of luck, but luck has got nothing to do with it. Best of effort is probably better.

But I do wish you all the best in your efforts.

Yeah, I totally get it now, just glad it's not too late. I feel better about the whole situation now and am determined to get this sorted. Thanks Mike.

Oh Wow! - I'm really pleased she was able to cover a lot more than I thought she'd be able to!

Onwards and downwards !!

She has always been extremely knowledgable, and it really feels good to be in a situation where every word she speaks to me, I understand and WILL follow.

I'm so pleased you've started to look after yourself paradox. And I bet your family are too! I really wish you all the best with the new life you're now working on and look forward to hearing your progress. 🙂

Thanks Linda, I will keep you all updated and will be more vigilant from this point forwards.

Hi Paul.
It's great to see since when you first posted 10 days or so ago that things are starting to look up for you. Small baby steps and before long you will be gliding along .

Thanks Steff, I just read through this entire thread and it is amazing to see how far I have come since that first post. As D:Ream said... "Things can only get better if we see it through".

 

[New-journey]

Hi Paul, so good to read of your changed attitude and commitment to your health despite the other challenges you have. .I send my support and do let us know how you are doing, any questions or updates are always welcome here. I just read the whole thread and it is amazing how far you have come! Brilliant to see.

 

[SB2015]

An excellent appointment Paul and good plans in place for future support.
As you say reading from the start this is massive progress.
Well done for making such a good start to your new normal life.

I found it very useful to have my husband with me at early appointments as he would remember things that I had forgotten during was also good at reminding me about realistic expectations.