Hi all, I think it's about time I got some help!

Status
Not open for further replies.
Excellent. We've just got to accept it and knuckle down to it, getting as healthy as possible is the thing. Read as much as we can, stay informed. I'm still in denial but getting there.
 
Thanks to you all for the help, support and advice. I am determined to get on track with this thing call Diabetes, I realise now that if my family, friends and students do really mean to me what I say they do then taking care of number 1 is my priority as that will ensure I can put them Sub-first (dont think thats a real term but it should be).

I have just sent mail out to my local clinic to contact me for an appointment asap. Should hear back on Monday fingers crossed.


All the best, you'll get there soon 🙂
 
Well done paradox for taking the first step.
I hope that they get back to you soon.
 
Makes sense everyone has their own plan.
I'd still speak to them about corrections when your over that 18 though. Numbers like 24 are what people are diagnosed at when they are severely ill.
Do you have ketones all the time?
Please just make your health top priority, it's not worth the risk.

Another honest moment from me... I never check as I am sure I do have ketones constantly and am too afraid to know. I say never. I have started to check as of Thursday, and yes they are there. it is something I am not all that familiar with... all I know really is that they are bad for you. I have been taking readings of...

1.6
1.2
0.7
0.4
0.4
0.3
0.1
 
I'm not surprised you've got ketones as your bs are very high. Have you read up on diabetic ketoacidosis?
 
Anything up to 0.6 is normal or this is what I was told, anything over you should take extra insulin, drink plenty of water and keep checking I'm not 100% sure but I think I was told if it was a reading above 1.5 you should take extra insulin get drinking a pint of water and call for medical help x
 
I'm not surprised you've got ketones as your bs are very high. Have you read up on diabetic ketoacidosis?

I have but to be honest I'm not 100% sure what to do about high levels. From my understanding if I have high BG then insulin and exercise are best to bring it down but exercise causes Ketones which are clearly very bad. So what is the best action to take for ketones while high? Just water?
 
I'm not very knowledgeable about it all, but I think ketones from exercise are different from the ketones when your bs is high. Hopefully someone who knows more about it will come along. The thing is your basal insulin may need to be higher, but its hard to tell if you don't inject it regularly. How many units of Toujeo are you on?
 
I wasn't lucky enough to have a diagnosis until it nearly killed me, quite frankly youll be foolish to not get a grip on things. dka is highly unpleasant, and you really will wish you got your act together
 
I see you're on 24 units of Toujeo. I hope you're remembering to take it everyday now, if you are you need to test regularly to see if you need more, or indeed less. When you see your DSN discuss it with them.
Sean is right, DKA is horrible and can be fatal, I nearly ended up in critical care when I had it, that's when I was diagnosed.
 
The one point when I had a smidgen of control was during a trial run of the FreeStyle Libre scan device thing. I have just received some private client work that will enable me to 'afford' this device again for a good few months/a year or so, and am seriously considering it.

What I'm wondering is if I should hold off until I get better control on my own with the standard prick testing or if you think it would be better to use it to teach me better what I should be doing RE monitoring levels.
Seems like an odd question now I have written it down but I'm not sure if the convenience of the device will cause me to 'lose' something in regards to my own understanding or if it will aid it.

Thoughts?
 
I've never used one, but would love one, but can't afford it.
 
If you can afford to use the Libre it can be very helpful, but only if you know what to do about readings that are too high. With your level of BGs and evidence of ketones, you definitely need to get your basal insulin sorted. This will be very difficult if you are not taking it regularly, so I would start by getting your insulin regime more consistent, get an appointment with DSN asap and see how soon you can get onto the DAFNE course, or at least look at the online course from Bournemouth (Bertie) whilst waiting for it.

The longer you have BGs out of range the more damage you will be diong to your blood vessels, and so developing the long term problems that can come with Diabetes

Your have committed yourself to get things back on track which is brilliant.
We ae here to help in any way that we can to help you get back to self managing your Diabetes.
 
I have but to be honest I'm not 100% sure what to do about high levels. From my understanding if I have high BG then insulin and exercise are best to bring it down but exercise causes Ketones which are clearly very bad. So what is the best action to take for ketones while high? Just water?

Those levels of ketones under 1.0 are normal, its the ones over that which are damaging. Water and insulin is what you need. And i also agree with Kaylz at those levels you need medical advice, quickly.

If your levels are high exercise will not help you out, only insulin will work. When levels are as high as yours then your body doesn't know what to do to sort itself out. And exercising will only make you go higher and put yourself at more risk.
If i exercise with levels over 11 I go higher.

The way your levels are at the moment I would advise against all exercise.

I hope you have been getting better results, if I was getting levels like yours I would be asking to go into hospital.

Please take car

. Something I noticed on an advert by the BBC before made me think of you. 'There's only 1 you' that's so true, you have your body and that's all you have, if you don't look after it it wont last.
 
How you getting on 1st Paradox?
 
How you getting on 1st Paradox?
Hi, sorry for my quietness the past couple of days, had a bit of a bad time RE relationship.

Things are a lot better, not perfect but definitely better. I have been on top of my meds, got appointment with Diabetes Dietitian on the 12th Apr, have been well below my average reading of 18, closer to 12 now have been sleeping. Never mentioned this before but for the past 2 years I have had no more than 3 hours sleep a night with the occasional (once every few months) 6h crash.

I am feeling good and am more alive than before.
 
Hi, sorry for my quietness the past couple of days, had a bit of a bad time RE relationship.

Things are a lot better, not perfect but definitely better. I have been on top of my meds, got appointment with Diabetes Dietitian on the 12th Apr, have been well below my average reading of 18, closer to 12 now have been sleeping. Never mentioned this before but for the past 2 years I have had no more than 3 hours sleep a night with the occasional (once every few months) 6h crash.

I am feeling good and am more alive than before.
Glad to hear you are feeling a bit better and getting those numbers down 🙂, no lecture from me but just a 'stick at it' as by the way your feeling now you'll already realise it's the best thing to do, concentrate on getting yourself and your health sorted before anything else like work PLEASE, and keep us up to date on how things are going 🙂 x
 
Glad to hear you are feeling a bit better and getting those numbers down 🙂, no lecture from me but just a 'stick at it' as by the way your feeling now you'll already realise it's the best thing to do, concentrate on getting yourself and your health sorted before anything else like work PLEASE, and keep us up to date on how things are going 🙂 x
Aww, thanks,

I most definitely will.
 
Good to hear you're sleeping better and getting a handle on things 🙂
Sorry to hear of your relationship woes, hope you can sort it.
 
Hi Paul,
Really glad to hear you are starting to get more control, and I'm sure you'll carry on feeling a bit better each day as your levels continue to come down.
I hope you get your other problems resolved as well.
Regards
zx
 
Status
Not open for further replies.
Back
Top