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Hello @Teapot99, welcome to the Forum (and great username!).

Can I clarify please, is it just carb counting you want to get up to speed with or do you need a refresh on the fundamentals of getting your basal right along with bolus insulin calculating? I ask, because it took me a while to appreciate that counting the carbs was only the start of a process that led to the right amount of bolus insulin.
Hello @Proud to be erratic, thank you for you comment! I’m am getting into carb counting but feel like I need to trust the whole carb counting process more as I am having hypo anxiety and stressing about going low so running my blood levels higher. I am working through this with my diabetes nurse at the moment but it’s taking time as it’s a step by step process and I’m sort of hoping to see miracles as soon as possible - which I know isn’t reality!
 
I don't bother ringing them I just use the online form


You can try turning the phone on and off and then bluetooth on and off but the issue usually comes back as it's probably an issue with the sensor itself so as soon as I've had the "Signal Loss" and "Scan again in 10 minutes" a couple of times, I rip it off, replace it, and report it - they have always sent a replacement within a couple of days - it's annoying but usually sorted pretty quickly 🙂
@mashedupmatt thank you so much. I have used this form before I think, a few times, when my sensor has fallen off I will definitely fill the form in when I have an issue. Thank you for sending the link over - much appreciated
 
Hello @Proud to be erratic, thank you for you comment! I’m am getting into carb counting but feel like I need to trust the whole carb counting process more as I am having hypo anxiety and stressing about going low so running my blood levels higher. I am working through this with my diabetes nurse at the moment but it’s taking time as it’s a step by step process and I’m sort of hoping to see miracles as soon as possible - which I know isn’t reality!
I'd read your thread (well to be truthful galloped through it) and increasingly wondered with your 20 yrs background as T1 that maybe a refresh overall might help.

I noted that you had already touched upon prebolus timings; many (most?) of us find with Novarapid our natural insulin resistance is higher at the start of a day and decreases as the day goes on. That insulin resistance is often increased if our starting BG is already highish. This is one influence for prebolus time. We're trying to get our insulin to arrive into our blood stream at about the same time digested food is releasing glucose from that digestion into our blood. Now, of course another influence for prebolus time is whether the meal eaten digests rapidly or is slowed down by its fat content. Before getting you bogged down in this potentially daunting complexity, I'd like to go a couple of steps back into some useful generalities about estimating bolus.

There has been a very recent post and responses when @MarcR asked about "Insulin Calculation". He was actually asking about bolus insulin. A longstanding T1 forum member, @helli, provided a short but extremely useful summary with her perspective on this quandary. I quickly did a cut and paste of that reply into my D notepad and I'm pasting that here, more or less verbatim, just with tiny formatting differences for my notepad. My italics.

There are a number of factors involved with insulin dose calculation:
1. starting BG.
2. insulin sensitivity - by how much does 1 unit of insulin reduce your BG?
3. insulin to carb ratio - how many grams of carbs do you need for 1 unit of insulin?
4. plans - are you about to do something that needs more (e.g. stressful) or less (e.g. cardio exercise) insulin?
5. insulin on board - do you have any active fast acting insulin in your body?
6. insulin to protein ratio - if we eat a low carb meal, we also need to consider the protein. But this part of the bolus is typically taken later.
All these points differ from person to person.

Basal is the "insulin foundation". Just like a house, if your foundation is wrong, you are building on an unstable base.

Age of diagnosis is irrelevant in terms of dosage and number of units of insulin is very personal. For some people 10 -12 units is a lot. For some people it is low. Maybe they have not been taught to carb count - some people are advised to take fixed doses, for various reasons do not adjust their dose according to what they eat.

It has been mentioned a few times -
they need to talk to the professional who looks after their diabetes care such as a DSN.

You might well find these points a useful starting point, then perhaps ask questions for any of these points that need amplifying from generic into actual examples. I firmly subscribe to the principle that getting your basal right first is essential. If my basal has drifted out of kilter (and things do naturally change with diabetes) then my bolus dosing frequently doesn't do what I was expecting.

Have you come across Gary Scheiner's book "Think Like a Pancreas"? I found his relaxed style of writing very easy to get along with and although he is from the USA he puts in many examples and always gives our European numbers as well as in the American units. He is T1 himself and a practicing sports diabetes therapist.
 
I should have added that Scheiner early on in his book states that "Diabetes is Complicated, Confusing and Contradictory". It is so true. Yet despite all of that we do find ways of getting our minds around most of that complexity - and here you are 20+ yrs on!
 
@Teapot99 welcome to the forum and well done on taking the bull by the horns with carb counting. I remember when I started and how I was anxious about it. It does become second nature although I still make mistakes but I take them as learning opportunities.
@Proud to be erratic mentioned the "fundamentals of getting your basal right". This is often missed or disregarded. But I think of it like building a house where the basal is your foundations and the boys is the bricks. If your foundations are unstable, it doesn't matter whether you get your bricks level, your house is still unstable.
So, for me when I do a insulin to carb ratio reset, I start with a basal test to make sure I have the right foundations before adding bricks.
Sorry for the dodgy analogy but I hope you understand the importance of getting your basal dose right before you try carb counting for your bolus.
 
Welcome to the forum @Teapot99

Sorry to hear about your nasty low BG. They can really shake you up, and it’s a way that your body deliberately puts you into full-on PANIC mode quite deliberately so that you can’t ignore the warnings. So don’t berate yourself for heeding that level of anxiety-inducing-hormones and sensations surging around. Plus really nasty lows like that always remind me of my relative fragility, and of just how powerful a hormone insulin is.

Hopefully your worries will be subsiding by now, and it’s great that you are re-embracing carb counting.

It can be a bit more art than science at times and Diabetes Maths is a pretty dark art at that!

For me carb counting was learning what seemed to be a pretty logical and understandable approach (this much carbohydrate in food needs this much insulin to process it) but really quickly I had to start adding exceptions to the rules - nuances of dose timing… adjustments for different times of day… different seasons… different levels of activity… illness… activity… stress and excitement.

It’s like one of those games that takes 5 minutes to learn, but a lifetime to master.

But however you are getting on with it, and however frustrating you find it on days where you did it right, but your diabetes throws a curveball with some unforeseen variable, to my mind T1 diabetes with carb counting is going to be more ‘kept in it’s box’ than T1 diabetes without.
 
I'd read your thread (well to be truthful galloped through it) and increasingly wondered with your 20 yrs background as T1 that maybe a refresh overall might help.

I noted that you had already touched upon prebolus timings; many (most?) of us find with Novarapid our natural insulin resistance is higher at the start of a day and decreases as the day goes on. That insulin resistance is often increased if our starting BG is already highish. This is one influence for prebolus time. We're trying to get our insulin to arrive into our blood stream at about the same time digested food is releasing glucose from that digestion into our blood. Now, of course another influence for prebolus time is whether the meal eaten digests rapidly or is slowed down by its fat content. Before getting you bogged down in this potentially daunting complexity, I'd like to go a couple of steps back into some useful generalities about estimating bolus.

There has been a very recent post and responses when @MarcR asked about "Insulin Calculation". He was actually asking about bolus insulin. A longstanding T1 forum member, @helli, provided a short but extremely useful summary with her perspective on this quandary. I quickly did a cut and paste of that reply into my D notepad and I'm pasting that here, more or less verbatim, just with tiny formatting differences for my notepad. My italics.

There are a number of factors involved with insulin dose calculation:
1. starting BG.
2. insulin sensitivity - by how much does 1 unit of insulin reduce your BG?
3. insulin to carb ratio - how many grams of carbs do you need for 1 unit of insulin?
4. plans - are you about to do something that needs more (e.g. stressful) or less (e.g. cardio exercise) insulin?
5. insulin on board - do you have any active fast acting insulin in your body?
6. insulin to protein ratio - if we eat a low carb meal, we also need to consider the protein. But this part of the bolus is typically taken later.
All these points differ from person to person.

Basal is the "insulin foundation". Just like a house, if your foundation is wrong, you are building on an unstable base.

Age of diagnosis is irrelevant in terms of dosage and number of units of insulin is very personal. For some people 10 -12 units is a lot. For some people it is low. Maybe they have not been taught to carb count - some people are advised to take fixed doses, for various reasons do not adjust their dose according to what they eat.

It has been mentioned a few times -
they need to talk to the professional who looks after their diabetes care such as a DSN.

You might well find these points a useful starting point, then perhaps ask questions for any of these points that need amplifying from generic into actual examples. I firmly subscribe to the principle that getting your basal right first is essential. If my basal has drifted out of kilter (and things do naturally change with diabetes) then my bolus dosing frequently doesn't do what I was expecting.

Have you come across Gary Scheiner's book "Think Like a Pancreas"? I found his relaxed style of writing very easy to get along with and although he is from the USA he puts in many examples and always gives our European numbers as well as in the American units. He is T1 himself and a practicing sports diabetes therapist.
@Proud to be erratic thank you so much for this advise. I have read through the message a few times and having all of the information written down has really helped me. I just keep re-reading it and it calms me a bit. I don’t remember hearing about how protein affects the body and blood sugar levels but I will speak to my diabetes nurse about it next time I see her.

I haven’t heard about the “Think like a pancreas” book but I will definitely look into getting it if you believe it has helped you and other people too.

I really appreciate your comment so thank you
 
I should have added that Scheiner early on in his book states that "Diabetes is Complicated, Confusing and Contradictory". It is so true. Yet despite all of that we do find ways of getting our minds around most of that complexity - and here you are 20+ yrs on!
Thank you! Sounds rather silly but that made me tear up a bit. I’m feeling more and more confident about my anxiety around diabetes each day, I’m going to slowly decrease the time between my split insulin doses (I am currently splitting each dose for every meal at the moment as advised by my diabetes nurse because of hypo anxiety) so I am hoping then I can focus on getting my levels down as they are running high at the moment.

I did have a great moment this morning though which I am quite proud of. I went to bed at 16 but woke up at 9/10 which is the lowest I’ve let them get in over a week. Small milestones but I am slowly getting there. I appreciate yours and everybody else’s help
 
@Teapot99 welcome to the forum and well done on taking the bull by the horns with carb counting. I remember when I started and how I was anxious about it. It does become second nature although I still make mistakes but I take them as learning opportunities.
@Proud to be erratic mentioned the "fundamentals of getting your basal right". This is often missed or disregarded. But I think of it like building a house where the basal is your foundations and the boys is the bricks. If your foundations are unstable, it doesn't matter whether you get your bricks level, your house is still unstable.
So, for me when I do a insulin to carb ratio reset, I start with a basal test to make sure I have the right foundations before adding bricks.
Sorry for the dodgy analogy but I hope you understand the importance of getting your basal dose right before you try carb counting for your bolus.
Hi @helli thank you so much for your comment and I really appreciate you expressing that you have also been anxious with it too. I feel like I am slowly learning to trust the process more now, doing it everyday without stressing too much, whereas before I was over stressing, feeling sick, anxious and worried about eating and then worrying about my bloods on top of that.

I think from what has been mentioned by my diabetes team, the basal insulin seems to be working okay as, even when my bloods are high, they start to level out at whatever level they are. I’m starting to see how my blood sugars begin to level after a few hours once eating and thats starting to make me less anxious. If I am honest, this is probably the most control I have had with my blood sugar levels since I was diagnosed and I think that is what some of the anxiety and hypo anxiety has been about.

Your analogy was fine by the way, I completely understood it. Thank you for your help and comment, I really appreciate it 🙂
 
Welcome to the forum @Teapot99

Sorry to hear about your nasty low BG. They can really shake you up, and it’s a way that your body deliberately puts you into full-on PANIC mode quite deliberately so that you can’t ignore the warnings. So don’t berate yourself for heeding that level of anxiety-inducing-hormones and sensations surging around. Plus really nasty lows like that always remind me of my relative fragility, and of just how powerful a hormone insulin is.

Hopefully your worries will be subsiding by now, and it’s great that you are re-embracing carb counting.

It can be a bit more art than science at times and Diabetes Maths is a pretty dark art at that!

For me carb counting was learning what seemed to be a pretty logical and understandable approach (this much carbohydrate in food needs this much insulin to process it) but really quickly I had to start adding exceptions to the rules - nuances of dose timing… adjustments for different times of day… different seasons… different levels of activity… illness… activity… stress and excitement.

It’s like one of those games that takes 5 minutes to learn, but a lifetime to master.

But however you are getting on with it, and however frustrating you find it on days where you did it right, but your diabetes throws a curveball with some unforeseen variable, to my mind T1 diabetes with carb counting is going to be more ‘kept in it’s box’ than T1 diabetes without.
Hi @everydayupsanddowns, thank you so much for messaging. I’m glad to see another person that fully understands my panicking moments, it’s hard when family try to calm you down and you feel as though you can’t because they don’t fully understand what you are going through. I am learning to trust family more in that sense as it can take a village to help and support is needed for diabetics.

I am feeling as though I am slowly getting back to my usual self and I think my fiancé is seeing me come back to myself too. I really appreciate your kind words and analogies too. They’ve calmed me quite a lot reading them and I feel like there is a Harry Potter reference in there maybe too? Haha.

I am not very good with numbers as I am more of a creative person - my career is in Computer Animation, so I don’t always have to deal with numbers and I think knowing that I need to try and work out my carb counting (and second guessing myself each time) made it even more daunting. I feel like I am slowly getting to grips with it now though and it is slowly becoming second nature. I’m trying not to rush the process and take as long as I need to get back to how my body should be. I am still finding the ‘normal’ reading numbers (between 4-8) very daunting to get down too but I did say on a precious post in this thread that I got them down to 9/10 this morning and they stayed level for a few hours - for me, that is a big win. Next will be to slowly start to lower my overall levels and then hopefully get onto a pump.

Sorry for the long message, getting this all out to other diabetics is really helping with my progression. Once again, thank you for taking your time to message and your kind words 🙂
 
Just a thought @Teapot99 do you have an insulin pen that delivers half units (Novopen Echo Plus usually)? If not, it's definitely worth asking your DSN to prescribe you one, because when you (and your DSN) feel it is the right time to increase your ratios/dosages, it will make you much less anxious as you can do it very gradually and feel safer doing so - Oh and well done on reducing your waking number - top work 🙂
 
Just a thought @Teapot99 do you have an insulin pen that delivers half units (Novopen Echo Plus usually)? If not, it's definitely worth asking your DSN to prescribe you one, because when you (and your DSN) feel it is the right time to increase your ratios/dosages, it will make you much less anxious as you can do it very gradually and feel safer doing so - Oh and well done on reducing your waking number - top work 🙂
Hi @mashedupmatt thank you so much for commenting again 🙂 strangely enough, I have a half dose pen for my basal insulin (Tresiba) but not for my Novorapid. I will ask about it, the only issue is that I use the colour of the pens to help me differentiate which insulin is which so I will make sure to ask for a completely different colour so I don’t stress out more! I really appreciate the advice as I do agree, I think this will help my anxiety. Funnily enough, my Mum actually suggested that the other day! I’ll let her know that you also agree haha.

Thank you so much, I am actually very proud of myself. I was a lot less anxious than I thought I’d be too. I was worrying a bit but trusted the process and it was all okay 🙂
 
They are definitely better the other way around @Teapot99 ! I have a silver Novopen 6 for Basal (single units) and a blue Novopen Echo Plus for Bolus (1/2 units) - seeing as you are more likely to fine-tune your Bolus Insulin they seem to me to be the wrong way around! If you still want 1/2 unit pens for both you can get a Blue and Red one of the Novopen Echo Plus (my spare is red but I use the Blue ATM) - by using a 1/2 unit pen for Bolus I have changed my ratios from 1U:20g carbs to 1U:8g of carbs for breakfast for example (lU:10g for most other meals) having almost having a hypo on the train back from my 1st day on DAFNE Course 18 months ago - and was very scared of doing too much after that) - the 1/2 unit pen gave me the confidence I needed to slowly increase it to the right levels as I was going too high and not taking enough!

And mum's always know best 🙂
 
I have a red half-unit NovoEcho pen for my Novarapid bolus. My breakfast dose is typically 5, 5.5 or 6 units; depending on my carb count and my starting BG. Lunch might be around another 5-6 units, although today I ate out and needed 8 units after reading the packaging for a toastie (46 gms carbs), a large latte; plus a half unit correction. This evening was 3.5 units for a weighed portion of a bean, tomato and some diced fresh fruit salad. I often only have breakfast and an evening meal.

I have a blue half-unit NovoEcho pen for my Tresiba basal; my current dose is 7.5 units daily in summer which is down from 9 units in winter. That transition was managed in half unit steps over around 6 weeks.

Although the pens are in different colours, my blue pen is decorated with different colour elastic bands, on the lid and the main body, giving me a texture to remind me which is which AND a Gold Star sticker to further make sure I get it right.

I have once taken basal instead of bolus, after I'd already taken my basal. I knew immediately that I'd made that mistake and had to stay calm, before then knowingly taking a slightly reduced real bolus. My NovoEcho pens allowed me to confirm to myself that I'd got it wrong! Thank goodness. The rest of the day I was monitoring my BG a lot!! Because Tresiba has a 42 hr profile, I took a half dose of 4 units the next morning and let the excess basal work through over 2 days. Day 3 back to normal (with the new extra Gold Star on the body of the pen). It is remarkably easy to get distracted by "events" (family, phone calls, phone notifications, etc) OR human stupidity, while starting my insulin routine for the day.

I have spare half-unit pens. My Surgery's prescribing Pharmacist was fully supportive that I ought to hold spare pens; I had been nervous that this might have been difficult to justify. Happily, I was wrong to have been nervous.
 
They are definitely better the other way around @Teapot99 ! I have a silver Novopen 6 for Basal (single units) and a blue Novopen Echo Plus for Bolus (1/2 units) - seeing as you are more likely to fine-tune your Bolus Insulin they seem to me to be the wrong way around! If you still want 1/2 unit pens for both you can get a Blue and Red one of the Novopen Echo Plus (my spare is red but I use the Blue ATM) - by using a 1/2 unit pen for Bolus I have changed my ratios from 1U:20g carbs to 1U:8g of carbs for breakfast for example (lU:10g for most other meals) having almost having a hypo on the train back from my 1st day on DAFNE Course 18 months ago - and was very scared of doing too much after that) - the 1/2 unit pen gave me the confidence I needed to slowly increase it to the right levels as I was going too high and not taking enough!

And mum's always know best 🙂
Yes that sounds a bit like my anxiety in relation to worrying about doing too much after. I will definitely speak to my diabetes nurse about a 1/2 unit pen and see if I can get the same coloured pens that I have, but the other way around in relation to dosage size! I didn’t know if I was coming across too tedious by asking that but I know it helps me so I know it is worn the ask.

Haha that is very true, she has done a lot for me since the age of 5 so I trust her haha
 
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