Libre's

Status
Not open for further replies.
You're right there, Paul and they're even less reliable than they've been since the pandemic reared it's ugly head. Poor employees really are getting - if they haven't already - to the end of their tethers, it's worrying.
 
You don't pay on prescription they are been sold at the same price by Abbott!
Sorry if that didn't make sense. I just meant the cost to the NHS and individual surgeries for prescribing.
 
You're right there, Paul and they're even less reliable than they've been since the pandemic reared it's ugly head. Poor employees really are getting - if they haven't already - to the end of their tethers, it's worrying.
What do you base the increased unreliability on?
It is not something I have experienced wrt diabetes treatment.
It is different (telephone appointments instead of face to face) but not unreliable.
 
What do you base the increased unreliability on?
It is not something I have experienced wrt diabetes treatment.
It is different (telephone appointments instead of face to face) but not unreliable.
Lucky you, it took me five months to get my hands on a Libre once I’d had a telephone consultation with a doctor at the hospital and told I'd be put forward for consideration. I ended up telephoning or emailing a poor secretary weekly in the end. Messages seemed to be either not passed on, or not acted upon, I hope it was because of the problems with everyone working from home etc, and not indicative of the normal service in that hospital.
 
Lucky you, it took me five months to get my hands on a Libre once I’d had a telephone consultation with a doctor at the hospital and told I'd be put forward for consideration. I ended up telephoning or emailing a poor secretary weekly in the end. Messages seemed to be either not passed on, or not acted upon, I hope it was because of the problems with everyone working from home etc, and not indicative of the normal service in that hospital.
This was my experience way before the pandemic. It took me 3 months to get my prescribed Libre after being told I was approved and I had signed all the paperwork to say I would use it correctly. This was down to NHS inefficiency not unreliability.
 
This was my experience way before the pandemic. It took me 3 months to get my prescribed Libre after being told I was approved and I had signed all the paperwork to say I would use it correctly. This was down to NHS inefficiency not unreliability.
But how would you class these examples? The doctor said she’d refer me, and clearly forgot. (There was no record of her doing so, even though she said in my follow up letter that she would be doing this). The secretary says she will ask the administrator to ring me when she’s in work the following day. No phone call. I reminded her the following week, the Adminstrator emails and says sorry, I forgot to ring you last week. I do understand that they were working from home, and under new pressures, but that’s unreliability in my book, not 'NHS inefficiency'.
 
OK - I sit corrected - seriously. Our GP surgery are even more inefficient then they ever were, and to be honest, they were bad enough before the pandemic.
 
Hi All,
Just got my prescription changed over from libre 1 to libre 2 sensors after my hospital diabetes team called me back. They said this should happen automatically with G.P's. But because my g.p was unsure about what it is, the hospital will email them of the change.
Only thing was hospital said they didn't have a freestyle libre 2 reader. I said "already got one!" great she said.
 
Hi All,
Just got my prescription changed over from libre 1 to libre 2 sensors after my hospital diabetes team called me back. They said this should happen automatically with G.P's. But because my g.p was unsure about what it is, the hospital will email them of the change.
Only thing was hospital said they didn't have a freestyle libre 2 reader. I said "already got one!" great she said.
That’s good to hear. I’ve had conflicting response from Northampton DC. They say no need to change prescription as it will be an automatic upgrade. pharmacy says they need an amended one, GP won’t change it without confirmation from consultant and Abbott says that over time the LS1 will be phased out!! Confused.com
 
That’s good to hear. I’ve had conflicting response from Northampton DC. They say no need to change prescription as it will be an automatic upgrade. pharmacy says they need an amended one, GP won’t change it without confirmation from consultant and Abbott says that over time the LS1 will be phased out!! Confused.com
This sounds like a priority for all existing libre users to call their g.p and/or hospital team to get the script sorted out. Then follow the link (see Bruce's post) and order libre 2 reader. Otherwise, some (many?) could be left in the position of no libre 1 sensors for those still on libre 1 and no sensor prescriptions or libre 2 reader for those too late to switch.
 
I asked my DSN about CGMs such as Bubble etc back in November as I had a period where my BG was spiking for no apparent reason and then plummeting. As a teacher, a CGM would be great because an alarm would warn me when I am mid flow in front of the little angels. I only had a response yesterday:

These type of gadgets have not been FDA cleared. We therefore cannot help with setting it up but can always help to review your blood glucose levels as needed and advise you accordingly. Unfortunately, this will not be funded by the CCG especially if it is not FDA cleared.

We are anticipating the roll out of the Libre 2 which will act as a continuous glucose monitor with optional alarms. We are waiting for more information from Abbott as to when this will happen and also seeing if it will be funded by the CCG. Libre 2 costs the same as Libre 1 so we are hopeful that that CCG will fund this.


When I spoke to my DSN later and told her that people were now being prescribed the new Libre 2, that it costs roughly the same as the Libre 1 she was surprised and told me the best bet was to contact my GP or my pharmacist to discuss a change to my script. Spoke to my pharmacist and he knows nothing about this or who I should speak to. My surgery is virtually closed due to almost all of the receptionists isolating after a couple of positive tests for staff.
 
I asked my DSN about CGMs such as Bubble etc back in November as I had a period where my BG was spiking for no apparent reason and then plummeting. As a teacher, a CGM would be great because an alarm would warn me when I am mid flow in front of the little angels. I only had a response yesterday:

These type of gadgets have not been FDA cleared. We therefore cannot help with setting it up but can always help to review your blood glucose levels as needed and advise you accordingly. Unfortunately, this will not be funded by the CCG especially if it is not FDA cleared.

We are anticipating the roll out of the Libre 2 which will act as a continuous glucose monitor with optional alarms. We are waiting for more information from Abbott as to when this will happen and also seeing if it will be funded by the CCG. Libre 2 costs the same as Libre 1 so we are hopeful that that CCG will fund this.


When I spoke to my DSN later and told her that people were now being prescribed the new Libre 2, that it costs roughly the same as the Libre 1 she was surprised and told me the best bet was to contact my GP or my pharmacist to discuss a change to my script. Spoke to my pharmacist and he knows nothing about this or who I should speak to. My surgery is virtually closed due to almost all of the receptionists isolating after a couple of positive tests for staff.
It is the same price as Libre, I self fund and ordered mine yesterday!
 
My libre 2 reader free upgrade arrived today ..... sensors to order tomorrow. Exciting times a new gadget!!
 
I asked my DSN about CGMs such as Bubble etc back in November as I had a period where my BG was spiking for no apparent reason and then plummeting. As a teacher, a CGM would be great because an alarm would warn me when I am mid flow in front of the little angels. I only had a response yesterday:

These type of gadgets have not been FDA cleared. We therefore cannot help with setting it up but can always help to review your blood glucose levels as needed and advise you accordingly. Unfortunately, this will not be funded by the CCG especially if it is not FDA cleared.

We are anticipating the roll out of the Libre 2 which will act as a continuous glucose monitor with optional alarms. We are waiting for more information from Abbott as to when this will happen and also seeing if it will be funded by the CCG. Libre 2 costs the same as Libre 1 so we are hopeful that that CCG will fund this.


When I spoke to my DSN later and told her that people were now being prescribed the new Libre 2, that it costs roughly the same as the Libre 1 she was surprised and told me the best bet was to contact my GP or my pharmacist to discuss a change to my script. Spoke to my pharmacist and he knows nothing about this or who I should speak to. My surgery is virtually closed due to almost all of the receptionists isolating after a couple of positive tests for staff.
Are you in the UK? I don't understand why your DSN would say CGMs are not "FDA" cleared. The FDA is a United States body as far as I'm aware.

Libre2 certainly has been cleared by the NHS https://diabetestimes.co.uk/freestyle-libre-2-system-gets-nhs-drug-tariff-approval/ and is being rolled out from this month.

Does your GP surgery have an online prescription ordering system which allows you to make "custom requests"? If so you could use this to request the change. (I did this yesterday and my prescription has already been changed!)

Alternatively, can you email your GP surgery to request the change? If so say your DSN has suggested the Libre2 and include the above link.

Good luck!
 
Hoping this works for those using libre, the alarms do sound like a promising addition to those not on CGM.
 
Are you in the UK? I don't understand why your DSN would say CGMs are not "FDA" cleared. The FDA is a United States body as far as I'm aware.
The question was not about CGMs - the question was about the add-ons to Libre such as Bubble and Miaomiao.
Through unofficial (non-approved) apps, these convert a Flash glucose metre (Libre) into a CGM so you no longer need to swipe the sensor with your reader to get the last 8 hours readings.
 
The question was not about CGMs - the question was about the add-ons to Libre such as Bubble and Miaomiao.
Through unofficial (non-approved) apps, these convert a Flash glucose metre (Libre) into a CGM so you no longer need to swipe the sensor with your reader to get the last 8 hours readings.
From @Ivostas66's post:

"I asked my DSN about CGMs such as Bubble etc"

I've never heard of Bubble so assumed it was a CGM, although I've had Libre and Miaomiao for some time.
I now consider myself enlightened - thank you
 
Good morning everyone 🙂
I was wondering what you guys thought about these CGM 'attachment devices' for use with the Libre 2, and whether this would still provide any significant benefits due to Libre's upgrade to alarms? I confess I haven't as yet looked into these 3rd party devices, but would be interesting to know if it is still something I should look into.
 
Status
Not open for further replies.
Back
Top