Libre's

[Kaylz]

I emailed my consultant last night to get an automatic reply saying he was on leave and wouldn't be replying to emails, he replied at near 11pm though he said he hasn't been engaged in what is going on as he's been diverted to covid for the last 12 months (not strictly 12 months though as I saw him late on in January) and he's not aware of how swapping over is going to be but he'd try and find out what the team knew xx

 

[grovesy]

I emailed my consultant last night to get an automatic reply saying he was on leave and wouldn't be replying to emails, he replied at near 11pm though he said he hasn't been engaged in what is going on as he's been diverted to covid for the last 12 months (not strictly 12 months though as I saw him late on in January) and he's not aware of how swapping over is going to be but he'd try and find out what the team knew xx

Partha Kar did tweet yesterday that many in Diabetic Departments are been diverted to other areas of Hospital's again.

 

[Ivostas66]

I would be interested to know when the Libre 3 is available as it sounds like a game changer; a CGM that people have been crying out for, unlike the Libre 2, which apparently has a number of flaws and isn't a huge improvement on the original Libre. I'd be interested to know if anyone on here has any knowledge/ experience of the Libre 2.

 

[Kaylz]

@Ivostas66 I know @Paulbreen has experience of the Libre 2, he has a thread about it but I haven't had the chance to go through it but he may also offer some input on this thread xx

 

[grovesy]

I would be interested to know when the Libre 3 is available as it sounds like a game changer; a CGM that people have been crying out for, unlike the Libre 2, which apparently has a number of flaws and isn't a huge improvement on the original Libre. I'd be interested to know if anyone on here has any knowledge/ experience of the Libre 2.

I would not think the 3 is going to be here any time soon here, it has took them long enough to release the 2!

 

[Ivostas66]

I would not think the 3 is going to be here any time soon here, it has took them long enough to release the 2!

I read recently that it was approved in Europe back in September, but not heard anything since. It will cost the same as the previous iterations, but looks like the device we have all been crying out for. I have heard that some people with the Libre 2 pair it with a Bubble or MiaoMiao, which does much of what the Libre 3 is going to do.

 

[Kaylz]

I have heard that some people with the Libre 2 pair it with a Bubble or MiaoMiao

People have done this with the Libre 1 since it was released

 

[Lucyr]

I would be interested to know when the Libre 3 is available as it sounds like a game changer; a CGM that people have been crying out for, unlike the Libre 2, which apparently has a number of flaws and isn't a huge improvement on the original Libre. I'd be interested to know if anyone on here has any knowledge/ experience of the Libre 2.

Not sure what the flaws are and I’ve only tried one libre2 sensor (self funder) but I found Libre 2 great, accurate sensor that you can use ad hoc or regularly, with alarms to tell you when high and when low is perfect for me.

 

[helli]

I read recently that it was approved in Europe back in September, but not heard anything since. It will cost the same as the previous iterations, but looks like the device we have all been crying out for. I have heard that some people with the Libre 2 pair it with a Bubble or MiaoMiao, which does much of what the Libre 3 is going to do.

I have read it is possible to make Libre 2 into a CGM without a Miaomiao or Bubble. I have not got my hands on one yet but will be trying it out when I do. The battery in my Miaomiao is on its lasts legs and I am reluctant to buy another if possible. However, my current Miaomiao has been worth every penny with my Libre 1.

 

[everydayupsanddowns]

As far as I know people are being advised to wait until their next regular review/appointment and ask then.

And switching isn’t compulsory if people would rather stay on Libre1.

I’ve got a couple to try, but I’m waiting until my Dex transmitter dies.

 

[everydayupsanddowns]

I have read it is possible to make Libre 2 into a CGM without a Miaomiao or Bubble.

Out of the box Libre2 should prompt you to scan when your BG hits various limits, not sure about the automatic sending of data though.

 

[Broomey]

Northampton diabetes centre advised me this week that this will be an automatic upgrade and nothing for me to do.

 

[Kaylz]

As far as I know people are being advised to wait until their next regular review/appointment and ask then.

Unfortunately I'll be declining seen as I haven't left the door since March so that's not an option for me, I know I shouldn't but I just can't xx

Northampton diabetes centre advised me this week that this will be an automatic upgrade and nothing for me to do.

Different areas will be doing things differently I imagine like usual and I'm not even in England so majorly different up here lol xx

 

[everydayupsanddowns]

Unfortunately I'll be declining seen as I haven't left the door since March so that's not an option for me, I know I shouldn't but I just can't xx

I would imagine clinic appointments will be offered via video call for a while yet - would that be a possibilty?

 

[helli]

Out of the box Libre2 should prompt you to scan when your BG hits various limits, not sure about the automatic sending of data though.

Correct, “Out of the box Libre” does this.

The patched LibreLink app passes “the glucose values that it interprets from the data it receives over bluetooth from Libre2 out to another listener app. It effectively creates an external interface for the LibreLink app.

To be very clear here, the output is not the raw data from the sensor, rather it is the output of the Abbott algorithm that “doesn’t require” calibration.

xDrip has been updated to include a receiver for this data and is then able to use it as it would any other CGM source. “

 

[Kaylz]

I would imagine clinic appointments will be offered via video call for a while yet - would that be a possibilty?

I wouldn't be able to get my relative checks though and I highly doubt I'd manage calls, my grandad appears whenever he feels like it and my mum wont stop him from doing so no matter how much I beg and plead so I have to be too alert to go and deal with cleaning up behind him, it's all having a huge negative impact on my management and I'm not doing great with it at the moment but they cant seem to see that or that it could effect me long term, sorry very frustrated xx

 

[everydayupsanddowns]

I wouldn't be able to get my relative checks though and I highly doubt I'd manage calls, my grandad appears whenever he feels like it and my mum wont stop him from doing so no matter how much I beg and plead so I have to be too alert to go and deal with cleaning up behind him, it's all having a huge negative impact on my management and I'm not doing great with it at the moment but they cant seem to see that or that it could effect me long term, sorry very frustrated xx

Awwww sorry things are so difficult for you. You can only do your best under the current difficult circumstances. That’s all anyone can ask of you.

Interestingly I am volunteering as the PPI coordinator on a clinical trial into severe hypoglycaemia, and they have needed to develop materials which allow participants to sample their own bloods for HbA1c, and it has gone so well they are thinking it could be used much more widely - particularly at the moment.

I wish something like that was available for you.

 

[Paulbreen]

@Ivostas66 I know @Paulbreen has experience of the Libre 2, he has a thread about it but I haven't had the chance to go through it but he may also offer some input on this thread xx

Hi @Kaylz i don’t use the libre2 anymore but I did an experiment over the holidays with one because I used them for over a year and never really got them working correctly, good news now is they work well, this is what I found.

The libre2 is quite simple and doesn’t need any third party equipment like maio maio.

With the reader

Set up your high and low alarm points in the reader alarms settings then Start the libre2 with the libre2 reader and keep the reader around you, in your pocket handbag or within 20 feet on a table, it will warn you of high and low BG and then you can scan it with your reader to see the actual BG reading.

With your phone

Download the latest librelink app, it doesn’t work with the older versions. Set up your alarm points in the app.

Start the libre2 with the phone app and keep the phone near you, again pocket, handbag, convenient table within 20 feet.

It will warn you of a high or low and you can scan with the phone to see actual value of you BG.

Which ever device you start the libre2 with will give you the alarms but you can read BG with both devices

 

[Amity Island]

WOW.....Libre 2 just arrived in post! Can't wait....
Waiting to order next prescription (of libre 2 sensors) at end of month.

 

[SB2015]

This will be another big game changer, providing the alarms for highs and lows.
I look forward to hearing how this goes for people.