Libre's

[Kaylz]

I haven't signed for any delivery since the first lockdown.
As I am always in, I don't know about designated "safe places".
Most deliveries take a photo of the parcel in front of my open door as proof of delivery.
I usually stand back, ask them to place it just inside the front door and leave it there untouched for a 48 hour quarantine to give any potential Covid cooties time to die.

I have everything go to Bruce's as our lobby is only about 2ft wide so no room to leave parcels sitting and with Bubbles he'd interfere with them as well hence why nothing gets delivered here anymore and as he's still working it has to be put to a safe place xx

 

[trophywench]

Well our porch is 2 ft deep but it is almost 6ft wide, so plenty of room for all sorts before you come in the actual front door and meet fitted carpet in the 22ft long hall. (the number of times I've mentally knocked all the internal walls down and rearranged it ......)

 

[Kaylz]

@trophywench I wish we had something like that but sadly living in a closey with 5 other flats we cant have stuff laying about outside the front door lol xx

 

[trophywench]

Whereas our porch door is our final exit door to the front of the house and the porch isn't stuck onto the front wall like a pimple, the smallish patio door on the front of it is level with the front wall, so when you step into the porch, you're inside the 4 walls of the house, though still outside the front door. Useful for invited visitors of course cos they can get out of the rain before they knock the front door to be let in - and of course when we've been out and come back in - can sort the keys out and unlock the door in the dry! The outer porch door also gets locked at night and when we're going out, so that does have to be unlocked in the wet when its raining but as they say - into every life, a little rain must fall!

(and the lady of this house doesn't step out the car till the bloke's opened the porch door at the very least 😉 )

 

[helli]

@Kaylz apologies if I offended you in any way.
I was relaying my experience not questioning why you (or anyone else) could not receive parcels into a quarantine pile.
Small spaces are a problem.

 

[Kaylz]

@Kaylz apologies if I offended you in any way.
I was relaying my experience not questioning why you (or anyone else) could not receive parcels into a quarantine pile.
Small spaces are a problem.

Don't be daft! Not offended at all!

It's something I would totally do if I could but as I'm unable to I have no option but to have stuff go to Bruce's, he just takes them in when he gets in from work, tips whatever out onto a "clean" surface, disposes of the packaging and then washes his hands as he has nowhere to "quarantine" either seen as there's a ruddy great set of stairs about 1 step in from the front door! lol
xx

 

[nonethewiser]

Sent repeat request last week adding note to say Libre 2 sensors instead of 1, Dr rang to say weren't not on system but would ask practice pharmacist to check & add them on if trust has approved them, sensors arrived today no mention of 2 on packaging so assume they are 1 sensors.

 

[trophywench]

My hospital are awaiting the pronouncement of the local CCG.

It has always had the reputation of being considerably slower than a sloth on a go slow ..... refused point blank to fund any training for either DSNs or patients and any thing else, to do with learning Dose Adjustment and carb counting, then the same with pumps. They simply did NOT want to fund it - so NICE are a very refreshing change making such useful recommendations - but make not much difference to them to be frank.

 

[danielmg]

I've just emailed my interest for a study which would provide me with a Libre 2 reader and sensors for a 10 week period. At least I may be able to test the updated Libre out this way if there are any issues with my prescription changing over.

 

[helli]

I contacted my DSN to ask what the plan was here wrt Libre 2.
She said the prescription would need to be changed and she would contact my GP to do so as long as I promised to use up any Libre 1 I had first.
Given my GP surgery takes a lead from the same sloth as @trophywench CCG, I think there is a possibility I see Libre 2 before Easter. But it is only a possibility not a certainty.

 

[trophywench]

I asked mine a fortnight ago, she said they hadn't heard anything from the CCG yet but as soon as they do, they would contact all patients that they have on prescribed Libre and tell us to get our prescriptions changed.

I have a booked ordinary D clinic appt towards the end of Feb - hope it gets sorted by then ...

 

[jparrie]

Quick question for those with a Libre device.

On day 14, the device takes a reading but doesn't give a "change device" message until the next day. (I'm guessing this as I order them for my Mum, I live overseas). So when her DN gets that message and changes the sensor, she has to wait 1 hour before she can take a reading. Because of this she pricks her finger, defeating the whole purpose of having this device. Can some one confirm that is that how the device works? If so, is tehre a workaround or are the DN's missing something?

Abbott have, as usual, failed to answer my query apart from a canned response.

 

[Bruce Stephens]

Because of this she pricks her finger, defeating the whole purpose of having this device. Can some one confirm that is that how the device works?

You do get a countdown, so it'll say the sensor has only 5 hours remaining, etc. But yes, you can't start a new sensor while still reading the old one, so you're stuck with the hour or so without being able to scan a sensor.

(Well, if you also use a phone to scan sensors you can reduce that time, but it's fiddly enough that I don't bother. The idea is to use your phone to keep scanning the existing sensor until it entirely runs out, and (an hour before) start the new sensor with the reader. Then, once the new sensor is ready (which you can tell with the reader) to give readings you can get readings either using the reader or your phone.)

 

[JJay]

Quick question for those with a Libre device.

On day 14, the device takes a reading but doesn't give a "change device" message until the next day. (I'm guessing this as I order them for my Mum, I live overseas). So when her DN gets that message and changes the sensor, she has to wait 1 hour before she can take a reading. Because of this she pricks her finger, defeating the whole purpose of having this device. Can some one confirm that is that how the device works? If so, is tehre a workaround or are the DN's missing something?

Abbott have, as usual, failed to answer my query apart from a canned response.

You get a day-by-day, and on the last day, 24 hours warning of the sensor ending and the countdown is then hour by hour.

However, a Libre and a finger-prick are measuring different things - while the blood test gives you a real-time reading of BG, Libre measures interstitial fluid and lags at least 10-15 minutes behind.

You don't say if your Mum is Type 1 and/or using insulin or other BG lowering meds, but in my experience Libre is never sufficiently accurate on which to base insulin dose decisions, so personally I'm still finger-pricking at least 4 times a day in any case.

 

[trophywench]

Yes and me @JJay - very keen to get my mitts on the Libre 2 sensors, as that is reportedly, more accurate. Still have to finger prick before meals etc though, so my meter can calculate the bolus taking the IOB from my pump into account, same with correction doses when I shoot too high for comfort.

 

[JJay]

Yes and me @JJay - very keen to get my mitts on the Libre 2 sensors, as that is reportedly, more accurate. Still have to finger prick before meals etc though, so my meter can calculate the bolus taking the IOB from my pump into account, same with correction doses when I shoot too high for comfort.

I would describe Libre2 as "marginally" more accurate than L1 (though I'm only 1 & a half sensors in so far!) Using them with Xdrip so as to get continuous readings on phone and Apple watch. On average xDrip reads 1.0-2.0 higher than Libre (especially at the low end) and matches BG readings pretty closely.

 

[jparrie]

You get a day-by-day, and on the last day, 24 hours warning of the sensor ending and the countdown is then hour by hour

My mother is type1. The nurses only prick her once a day, but at 87 her fingers were so sore I decided to just pay for this device so she didn't have to. Are you saying that the device does in fact give 24 hours notice that the sensor will need changing? So if the DN took a reading at 9AM Monday morning, the device would say that there was only one day left? If so, that would suggest the DN's aren't reading what's on the device.

I'm overseas so I have no idea what readings the device gives.

 

[Robin]

My mother is type1. The nurses only prick her once a day, but at 87 her fingers were so sore I decided to just pay for this device so she didn't have to. Are you saying that the device does in fact give 24 hours notice that the sensor will need changing? So if the DN took a reading at 9AM Monday morning, the device would say that there was only one day left? If so, that would suggest the DN's aren't reading what's on the device.

I'm overseas so I have no idea what readings the device gives.

When you scan towards the end of the sensor life, the Libre gives you a 'Sensor ends in 3 days' warning, then 2, the 24 hours, then it counts down by the hour right at the end. There will always be an hour's gap between the old sensor ending and starting the new, because of the one hour 'warm up' period.
I'm not sure I understand you correctly, are you saying they only scan her once a day? Or do you mean they finger prick once a day and scan her the rest of the time? If they only scanned once a day, they could just miss the 24 hour warning one day, and then find it's run out by the next. But shouldnt they be keeping a record on her notes of when it was changed, so they know when changeover day is?

 

[Bruce Stephens]

Are you saying that the device does in fact give 24 hours notice that the sensor will need changing?

Yes. I just scanned, and the reader shows the reading and (in smaller type, admittedly) "Ends in 14 days". (I changed the sensor yesterday.) And when it gets closer I have to click through the warning that the sensor is nearing its end.

 

[jparrie]

I'm not sure I understand you correctly, are you saying they only scan her once a day? Or do you mean they finger prick once a day and scan her the rest of the time? If they only scanned once a day, they could just miss the 24 hour warning one day, and then find it's run out by the next. But shouldnt they be keeping a record on her notes of when it was changed, so they know when changeover day is?

They scan her once per day, in the morning. This replaces the once per day finger prick that they used to do. It seems to me that they are missing the 24 hour notice, like you say.

My experience of people who one would think should know what they are doing, is often they don't. And common sense is not so common. But I do think the way it operates is a fault with this device.