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Epic Fail...what a day!

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

KookyCat

Well-Known Member
Relationship to Diabetes
Type 1
Well I've had a bit of a day of it today. I've been having a wee bit of an issue with post meal spikes at lunch time. For me this can be a sign that I have too much basal insulin, because I seem to need more background insulin between 10am and 12:30 than any other time so by 12:30 I start to trickle downwards if there's a bit too much basal. Whilst at work I have a fixed lunch at 12 till 1 normally, so it can be tricky to work out if the post meal spikes are actually caused by a rebound when I inject bolus at roughly the same time as I'm already on the trickle downwards. Still with me? Sorry this is a bit complex.

Anyway today I had a meeting till 1pm so decided to see if I dropped between 12:30 and 1:00, and yes there it was I dropped about 1.5 mmol/l in 30 minutes and ended up with a mid 3, must have been still dropping because I most definitely wasn't with it. Had three jelly babies, then ate half my lunch and injected mid meal. This strategy generally works for me. At 3 I felt funny tested and was 15mmol/l. I never go that high, well I haven't since the six weeks post diagnosis. Tested twice just to make sure, and it was 16 so clearly a problem. Looked at the LCD screen on the pen and it showed I'd injected half a unit😱. I'd intended to inject 2.5 units. So I whipped out my pen and jabbed in 2.5 units without thinking. So it was coming down nicely, and when I left work it was about normal, by the time I got to the bus stop I realised I was having a hypo so tested in the peeing down rain (challenging 🙄) 1.9, panic riffle for jelly babies, none in my bag, and remember they're on my desk where I'd left them. Super panic because the bus stop isn't near a shop. Bit more riffling and I find a sachet of sugar I've thrown in there at some point. So there I am dripping wet through eating sugar from a packet. Knew it wouldn't be enough but thought it might get me up enough to get across the dual carriage way and walk to sainsburys. Nope tested again 1.5. Major panic, and everyone at the bus stop is riffling through bags looking for sugar. Thankfully a mum with a tot had some juice in a carton, so I glug that down and thank god my bus turns up. Just before getting off the bus I've managed to get back to 3.9. Tested when I got back in the house and I'm back to 2.9. Seven jelly babies later I was 5.2. Ruddy Norah is all I can say. I feel like I've been hit by a bus!

On the plus side I now know my correction factor in the afternoon is the same as the evening 1 unit for a 5mmol/l drop, and the basal needs to go back down. The reversey Percy routine of spikes meaning I need less insulin is just so counterintuitive and hard to get my head around I'm not sure I'll ever get used to it. Also insulin sensitivity is just crappy, there I've said it, I know it means I get generally lower blood sugar more easily but seriously it's like a constant white knuckle ride, half a unit too much insulin and I'm off. Just felt the need to vent, and confess my stupidity o_O
 
Very sorry to hear this KookyCat :( Thank goodness there were people who could help out with the juice! Sounds to me like you're really benefit from a pump - any possibility?
 
Eek, Kooky. Not a nice day. A case for one bag of jelly babies in your work drawer and a separate one in your bag, methinks.
 
Sounds like a rough day Kookycat. I hope the evening is more settled and that you have a better day tomorrow, with an extra bag of jelly babies for your bag.
 
Very sorry to hear this KookyCat :( Thank goodness there were people who could help out with the juice! Sounds to me like you're really benefit from a pump - any possibility?

No, pumps are not an option at my clinic. They only fund them for kids. The CQC did pick them up on an exceedingly low percentage of pump users but I haven't seen any action to increase the number. Plus I discovered recently I'm still categorised as extremely high risk for DKA, but I'm waiting for my consultant appointment to find out why, but that makes me less likely to be considered for a pump apparently. Given that I spend an inordinate amount of time trying to stay above the line, DKA would seem the least of my worries o_O.

Robin that's the stupid thing. I have two bags of jelly babies at work, I just took the ones from my bag instinctively...I might have to wear a jelly baby necklace!
 
It would be worth having a word with INPUT - you don't have to get a pump from your own clinic as far as I know, so you might be able to get one elsewhere. I know that everyone in Southampton used to go to Bournemouth at one time, although apparently Soton have now started funding them 🙂
 
What a nightmare Kooky! Glad you're ok though. I've heard they can be quite fetching those jelly baby necklaces!

I share the nightmare day feeling too! :(
 
Sounds like some of my hypo adventures, I'm so glad you're home safe. I've learned to keep small ziplock bags of JBs in all my pockets and bags and drawers, if I get low enough, I know I probably won't have the intellectual capacity to go searching for them, or looking for shops.

It occurred to me that keeping notes on dear old Excel might help in the short term, as a way of keeping track of what's happening and how to deal with it, at least until you can get your head around the complexities. I find it often helps me to see it all in black and white.
 
I think I will speak to INPUT again, I don't really feel like my clinic actually take the sensitivity issue very seriously, so it might be time to reconsider. I'm pretty sure it's not honeymoon related since it doesn't seem to be going away 🙂

Amigo hope your nightmare day has ended now and you're enjoying a bit of peace and quiet.

I'm currently rocking a 7.2 which is pleasing given the amount of sugar consumed, and will spend the rest of the evening piercing the heads of jelly babies to string into a necklace.
 
Glad you're okay now KookyCat. The joys of diabetes eh. I always try to have sweets or gels dotted around and usually months later find some mouldy old sticky sweet that's fallen out of its wrapper at the bottom of a bag or coat pocket. 😱

I'm always amazed at the range of doses on here and some of the miniscule doses people have. Is it a case of some beta cells still in operation?
 
Certainly people go to Bournemouth from all over the country. Voting with your feet is a good option.

I'm always amazed at the range of doses on here and some of the miniscule doses people have. Is it a case of some beta cells still in operation?
Not in my case!... I have tiny doses and in total use less than a third of my pumpful in 6 days. some people have to refill every couple of days. I'm a very sensitive little soulo_O
 
I'm currently rocking a 7.2 which is pleasing given the amount of sugar consumed, and will spend the rest of the evening piercing the heads of jelly babies to string into a necklace.

That sounds cruel! though I would have no problem doing it to the green and yellow ones.:D
 
Thank goodness for the sugar sachet and people at the bus stop KookyC, very glad you managed to save yourself and get home safely, phew.

A pump is a fantastic option with super insulin sensitivity, I would plummet if I corrected or over bolused with 0.5/1 unit so use corrections like 0.2/0.3 of a unit and it does the trick. That seems an odd anti pump argument to say you are at high risk of DKA when you are also at high risk due to insulin sensitivity.

Get that jelly baby necklace threaded and make a co-ordinating bracelet too and I hope things stabilise for you 🙂
 
Glad you are better kookiecat. You could make a funky jelly bean nevklace with the odd upside down ones-perhaps the green ones
 
I sometimes think there is a carbohydrate blackhole that orbits around at random and when it collides with us it just sucks all the carbs out of us
 
We're decorating - well when I say 'we' it is the Royal we, and means my husband is.

In our house we have one papered ceiling, no papered walls and everything therefore requires paint. That means every surface that is going to be decorated - needs cleaning first.

Don't get me wrong - I/we do clean in between decorating BUT we certainly don't wash the walls down, especially behind furniture that weighs half a ton ! (eg the 7ft bookcase) very often. I am trusted to do that ..... and was required to get a move on since someone was waiting to do the ceiling and where are walls the dirtiest? Hypo, BP up and down - gallon of Lucozade - biscuits, scones, cheese biscuits, sandwiches, dinner - and pump turned off (ie TBR 0%) for about 4 hours. Aaarrgghh - and that was just the hall!
 
I got my pump from Bournemouth as Poole do not deal with them in adults just paediatrics
 
What a bad day Kooky. I hope you're feeling much better again now. Bet you're exhausted from all the stress.
 
Glad you're okay now KookyCat. The joys of diabetes eh. I always try to have sweets or gels dotted around and usually months later find some mouldy old sticky sweet that's fallen out of its wrapper at the bottom of a bag or coat pocket. 😱

I'm always amazed at the range of doses on here and some of the miniscule doses people have. Is it a case of some beta cells still in operation?

Beta cell recovery doesn't explain my issues sadly, I had a test last year (I'm guessing it was c-peptide again) and it was higher than that at diagnosis (which was zilch) but not high enough to help apparently. I wasn't actually paying much attention because I only agreed to it to prove my issues weren't honeymoon related. The conclusion is I'm super sensitive to insulin, which is probably why I managed to get to a blood sugar of 62mmol/l before the DKA got me because my body was able to use the tiny amounts of insulin I was producing. My rheumatologist reckons it could also be related to the Ehlers Danlos Syndrome, the type I have means I have the wrong muscle tissue, not enough smooth muscle, all striated instead and apparently that alters the relationship with insulin. He's looking it up for me and going to send me the research. Funny isn't it how one body differs from the next? I nearly swallowed my own tongue with anxiety when out with my friend who has just moved onto MDI (she's type 2), she injected 20 units for the exact same meal I needed 2 units for, I had my hand on the jelly baby trigger for hours afterwards, so convinced was I that she'd taken a massive overdose. She was fine, it was me who needed a biscuit at the 3 hour mark 🙄
 
OMG, Kooky. I'm sure we've all had a bad dream like you describe, but it really happened to you. :confused:Thank heaven for mothers with juice boxes! Your homework today, young lady, is to stuff jelly babies in all the handbags you own...glad to hear you're ok.😱🙂
 
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