can’t cope anymore

[Whitney]

Hi! Sorry to know that you are not well. Just to let you know my personal experience. I had very high sugar 13.5 hba1c and I was advised by my Doctor and specialists to change my diet to very low carbs. I took that diet and became worse. I could not even walk or do the house work. Even my sugar was not reducing much.
I tried keto diet and other diets but results were even worse. That I found one diet which is mastering diebeties.
In which eat as much carbs you want but to avoid very oily stuff and eat all fruits, just avoid procedsed fruits. Since started that the results are amaising.
I eat rice, chapati, potatoes, all starch vegetables and fruits. Sugar level came dramatically down in just less than 2 months now my sugar levels from 13.5 to 7.5 just in two months.
I never starve myself. I feel each day more energetic and happy. I don't eat anything processed of the market. Even the juice I take out in the house to avoid added sugar. I hope it would help.

I have only ever eaten normally and I still get the symptoms much like you I can’t do simple tasks either, such as house work as I feel so weak! glad you’re feeling better though

 

[Inka]

Nah they referred me to them as I asked whether I’m just extremely sensitive to my blood sugar changing. I was just on the phone to the gp they booked me some bloods for milk, eggs and gluten on Monday however she was saying she can’t do anything again and to be honest I’m now thinking either this is going to end up killing me due to it keeps getting worse, (now when Im forced to nap i can feel my heart beating faster, it feels like i cant move and my throat dries and crisps up) or I’ll end up killing myself I can’t cope anymore and I feel like none of the professionals care about it or care to figure out what it is just because no other diabetics feel this way. Got off the phone from the gp feeling worse than before calling them!

Ah, ok - well, it’s still good news that you’ve been referred to the pump team. I have a pump and it made me feel normal again - not for psychological reasons, but physical ones. Getting the right amount of basal each hour does help a lot. It might not be the cause of your problems but it could help, and at least you’ll get some information about pumps. Despite what a few medics say, animal insulin can be used in pumps so it wouldn’t stop you trying that 🙂

It’s also good news that you’ve got some blood tests booked for Monday - that’s very quick. I know it’s only a few but they’re very common allergens and, as I said, every little thing helps you get closer to the answer.

Did you mention your heart beating faster to the GP? There are lots of causes for that, some as simple as a vitamin deficiency. So that could be sorted out too.

The answer is out there. You will feel better. I know it must be horrible to feel so bad, but I really do honestly think this can be sorted. I wouldn’t say that to you if I didn’t believe it.

You can always post here if you’re feeling bad or down. There are always people around. Lots of people have replied to you and I’m sure every one of those people and all the others who didn’t reply care that you’re ok and wish you well. You’re young and your life stretches ahead of you. I know things are hard at the moment, but they won’t always be that way.

Look after yourself - you’re not alone.

 

[MrDaibetes]

Nah they referred me to them as I asked whether I’m just extremely sensitive to my blood sugar changing. I was just on the phone to the gp they booked me some bloods for milk, eggs and gluten on Monday however she was saying she can’t do anything again and to be honest I’m now thinking either this is going to end up killing me due to it keeps getting worse, (now when Im forced to nap i can feel my heart beating faster, it feels like i cant move and my throat dries and crisps up) or I’ll end up killing myself I can’t cope anymore and I feel like none of the professionals care about it or care to figure out what it is just because no other diabetics feel this way. Got off the phone from the gp feeling worse than before calling them!

So sorry you are feeling like this, have you rung samaritans on 116 123, they will help you get through this horrible time and you will feel better if you speak to someone. My inbox is open if you want a chat too. Stay safe

 

[Whitney]

Hello everyone, I’m thinking of doing another experiment, I’m thinking of going very low carb for a few days to see if I get the symptoms. I’ve never done this and can feel the diabetic team getting annoyed at me so I don’t really want to bother them again but I’m wondering if I need to keep my background insulin the same or whether I’d need to lower it if I’m going very low carb for a few days? Was thinking maybe 5 days for the experiment. I don’t really understand background insulin as I was never really taught about it, I usually go to bed with my bloods at about 10 and they get brought down to 5 overnight by my background I believe? However, if I go to bed at 5 already does that mean I will hypo? I don’t really understand how it works and if I do low carb I’ll be trying not to go over 9/10 for the experiment. Thanks! Hope you’S are all well 🙂

 

[MrDaibetes]

Hello everyone, I’m thinking of doing another experiment, I’m thinking of going very low carb for a few days to see if I get the symptoms. I’ve never done this and can feel the diabetic team getting annoyed at me so I don’t really want to bother them again but I’m wondering if I need to keep my background insulin the same or whether I’d need to lower it if I’m going very low carb for a few days? Was thinking maybe 5 days for the experiment. I don’t really understand background insulin as I was never really taught about it, I usually go to bed with my bloods at about 10 and they get brought down to 5 overnight by my background I believe? However, if I go to bed at 5 already does that mean I will hypo? I don’t really understand how it works and if I do low carb I’ll be trying not to go over 9/10 for the experiment. Thanks! Hope you’S are all well 🙂

I understand you don't want to speak to your team but for insulin advice, I would speak to your team. Good luck and let us know how you get on, lots of people find success in managing glucose levels with low carb.

 

[everydayupsanddowns]

Hello everyone, I’m thinking of doing another experiment, I’m thinking of going very low carb for a few days to see if I get the symptoms. I’ve never done this and can feel the diabetic team getting annoyed at me so I don’t really want to bother them again but I’m wondering if I need to keep my background insulin the same or whether I’d need to lower it if I’m going very low carb for a few days? Was thinking maybe 5 days for the experiment. I don’t really understand background insulin as I was never really taught about it, I usually go to bed with my bloods at about 10 and they get brought down to 5 overnight by my background I believe? However, if I go to bed at 5 already does that mean I will hypo? I don’t really understand how it works and if I do low carb I’ll be trying not to go over 9/10 for the experiment. Thanks! Hope you’S are all well 🙂

You will need to keep taking your basal insulin, but it sounds like yours may not be set correctly?

Your background insulin should be set to hold your BG as steady as possible during the whole 24hrs, when you aren’t eating and you don’t have any fast acting (bolus) insulin working.

Ideally overnight and any time you skip a meal your basal shoukd hold your BG steady, not rising or falling by more than 1.7mmol/L

There’s a good write up of basal, and how to check and adjust it here

Basal Testing in Diabetes - Diabetes Support

Managing diabetes effectively requires constant monitoring and adjustments to ensure blood sugar levels remain stable. One key aspect of this management process is basal testing, which focuses on evaluating the effectiveness of basal insulin in the body. In this blog article, we’ll explore the...

www.diabetes-support.org.uk

If your BG drops by 5 every night it sounds like you have a little too much basal active

As @MrDaibetes says, do keep in touch with your team and lean on them for advice and support. Keep those lines of communication open 🙂

 

[Inka]

🙂Hi @Whitney Queen I think your basal is maybe a little high too. I understand you not wanting to speak to your team, but this is something fairly simple they could help with. You’re not bothering them - that’s their job.

I found low carb tedious because it just moves any issues to a different place. There’s a lot of rubbish about it online and it’s not a magic answer. For Type 1s the magic answer is insulin and using it correctly. What is useful though is a healthy diet, just like it would be for anyone else, a reasonable routine, and a good understanding of how insulin works. There are enough people with diabetes and an eating disorder, and they’re particularly prevalent on the low carb sites. This forum isn’t immune from them either. If you feel your control needs tightening, then that’s to do with your insulin not ‘bad’ foods. Most people with Type 1 eat a reasonable amount of carbs. A half-unit pen is always useful to have for your bolus insulin as you can then do more accurate corrections when needed.

I can’t remember if you said you’d done a DAFNE course but there’s an online version if you haven’t.

Is it your blood tests today? Good luck if it is : )

 

[Whitney]

🙂Hi @Whitney Queen I think your basal is maybe a little high too. I understand you not wanting to speak to your team, but this is something fairly simple they could help with. You’re not bothering them - that’s their job.

I found low carb tedious because it just moves any issues to a different place. There’s a lot of rubbish about it online and it’s not a magic answer. For Type 1s the magic answer is insulin and using it correctly. What is useful though is a healthy diet, just like it would be for anyone else, a reasonable routine, and a good understanding of how insulin works. There are enough people with diabetes and an eating disorder, and they’re particularly prevalent on the low carb sites. This forum isn’t immune from them either. If you feel your control needs tightening, then that’s to do with your insulin not ‘bad’ foods. Most people with Type 1 eat a reasonable amount of carbs. A half-unit pen is always useful to have for your bolus insulin as you can then do more accurate corrections when needed.

I can’t remember if you said you’d done a DAFNE course but there’s an online version if you haven’t.

Is it your blood tests today? Good luck if it is : )

Yeah I’m not planning on going low carb forever, only for a day or two to see if I get the same symptoms! I’m still injecting one or two units per meal as there will obviously be some! I think this way it will determine if it’s the blood sugars going up and down or not that’s causing my tiredness, sore eyes, headaches etc. I will record my symptoms etc in my notebook and see if there’s any patterns!

Yes it was my bloods today they’ve been taken and they said the results should be back in about a week. They’re testing me for coeliac disease again, dairy and eggs 🙂

 

[Inka]

That’s good that they repeated the coeliac test too. You’re gradually getting the information that will help you get to an answer. Every tiny piece helps 🙂

 

[EllsBells]

I’ve started taking a diary of my blood sugars exactly what I’m eating, carb content and symptoms! So far I’ve seen sausages, Yorkshire puddings, mashed root veg and cheesy broccolli forced me to have a nap for an hour or more. I’ve had melon, yogurt and banana muffins to cause me to nap for several hours and now the stuff from the experiment which caused me to have weak arms and legs! Some days in the diary I haven’t had as bad symptoms these 3 are just the major days, I’m going to try continue it for a while and see what they all have in common. Fingers crossed! I had to apply for personal independence payment today as I can’t even imagine working full time feeling this way!

Another thing to consider is Glycaemic load (GL) - I'm VERY new to this but bananas, melons and root veg have quite high GI/GL compared to some other veg so they convert into sugars much more quickly - I'm currently avoiding them for that reason. The other thing is that yorkshire puddings and muffins both contain wheat - was the cheesy sauce for the broccoli based on a bechamel sauce? That too would have wheat in it. Some types of sausages are also padded out with grains and carbs unless you get the fancy ones (eg Sainsbury's Taste the Difference or from a butcher). Baked beans come with a sugar packed sauce. The black pudding might contain oatmeal (for some, it's as bad as wheat) and your potato scones are also a root vegetable and probably using a higher GL type like a carbtastic king edwards or maris piper.

I'm wondering whether you have a double whammy of easily converted natural sugars together with wheat/grain products in each of these cases.

Edited to add that I hope you resolve it and feel much better soon!