Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
No problems Jojo - there is a lot to take in, so don't feel you need to know everything at once.
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Whats the hardest thing for you .
- Thread starter Steff
- Start date
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No problems Jojo - there is a lot to take in, so don't feel you need to know everything at once.
am64
Well-Known Member
- Relationship to Diabetes
- Type 2
hi jo jo please dont panic...its scarey when first diagnosed so much to take in but big deep breathes..go prepared when you see dsn ...write down some questions if you want....write down what they say ...and then come back to the forum for a translation! my mind goes so blank when i see my DSN i have write it all down ! good luck xx🙂
That just about covers it for me too, that and the lack of support. My care is with my GP, if I go ask him questions he's well why are you asking me and the last time I saw the nurse I spent longer listening to her problems than anything else.
MartinX123
Well-Known Member
- Relationship to Diabetes
- Type 2
For me the hardest thing normally is the 24/7 "riding a tiger" aspect of using mdi/DAFNE - you can get really good control, but it's really hard whilst having a hectic life toddler-wrangling & especially when pregnant...not least because of the added stress of being so responsible for baby's health at a time when all the normal control rules seem to not work any more! 😱 (vvvvvv scary!!).
My main current gripe though, is being quizzed every time I see an eye specialist / doc about my current proliferative retinopathy & bleeds in my eye...I had a really nasty bleed some weeks ago now so have been to some degree blind in my left eye (it's just taking ages to drain). The not being able to drive, knocking my hands etc on everything, headaches, not being able to read / watch TV/Vdu's easily etc I can cope with (albeit they are very annoying!!) but the really infuriating thing is that every bl**** specialist assumes this is all happening because I have somehow been negligent in my diabetes control - their first question is always preceded with a suppressed sigh and "is your diabetes control poor?" in a really judgmental tone.
Actually I have just had T1 for 30+ years, had awful pre eclampsia last pregnancy & happen to be pregnant now, which is why it's gone haywire - thank you for not jumping to conclusions!!!!! 😡 GRRRRRRR!!!!
(Sorry, feeling a bit sorry for myself. Will go & think about how lucky I am not to live in Haiti & get some perspective now!!!!)
My main current gripe though, is being quizzed every time I see an eye specialist / doc about my current proliferative retinopathy & bleeds in my eye...I had a really nasty bleed some weeks ago now so have been to some degree blind in my left eye (it's just taking ages to drain). The not being able to drive, knocking my hands etc on everything, headaches, not being able to read / watch TV/Vdu's easily etc I can cope with (albeit they are very annoying!!) but the really infuriating thing is that every bl**** specialist assumes this is all happening because I have somehow been negligent in my diabetes control - their first question is always preceded with a suppressed sigh and "is your diabetes control poor?" in a really judgmental tone.
Actually I have just had T1 for 30+ years, had awful pre eclampsia last pregnancy & happen to be pregnant now, which is why it's gone haywire - thank you for not jumping to conclusions!!!!! 😡 GRRRRRRR!!!!
(Sorry, feeling a bit sorry for myself. Will go & think about how lucky I am not to live in Haiti & get some perspective now!!!!)
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Not at all Twitchy, you were only answering the question! It's about the things that exasperate us and are a constant worry or grievance, not what we love about being diabetics!
muddlethru
Well-Known Member
- Relationship to Diabetes
- Type 2
For me it is watching what I eat and like others going for a meal out or even staying with friends. It's there all the time. Being the cook of the household I don't expect others to go without certain foods just because I don't eat them so it is hard at times when I don't get to eat some of the goodies. Also I find it hard when I get a down day for no reason at all. I get fed up with visiting the loo more than I did before the diabetis and while I keep smiling and making light of it with the family, bless them as I couldn't stand a lot of fussing over me I just wish I wasn't diabetic but I am so one just has to deal with it and carry on.
Steff
Little Miss Chatterbox
- Relationship to Diabetes
- Type 2
Extremely good point r.e being the cook of the house I almost feel like saying you do the cooking luv lol, they get all the food i want to eat but cant i guess its mind over matter.
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