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Trulocity injections

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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Elliemc

New Member
Relationship to Diabetes
Type 2
Hi everyone

Had Type 2 for some time but recently meds not working for me and sugars and BP were getting out of control. Have just had a 2nd Trulocity injection and, although I was warned about the side effects, I had no idea actually how bad they would be. Am finding it is very hard to make myself eat anything at all - am having crackers just so I can have the metformin - and managing only a couple of mouthfuls of anything else. I also feel sick all the time and now getting probs the other end! Hardly surprisingly I lost half a stone the first week. The almost immediate effect on blood sugars is wonderful which has also meant my BP is correcting itself so I can't complain about that.

I have been back to my diabetes nurse with questions re how long am I expected to take this - apparently the side effects calm down, or you learn to tolerate them, after about 6 weeks - will I be able to reduce it to maybe once a month etc but she is unwilling - or unable - to give this info. So I'm on here and hoping there are members out there who have experience of this. Obviously at the moment with the lockdown its the best time to deal with this but I am unhappy at the thought of it going on for too long. Can anyone help with their experience of having the injections? Hope so!

Ellie
 
Welcome to the forum @Elliemc

Goodness what a horrid time you are having with the change in meds :(

I’ve not used Trulicity myself, but you might find some threads with other people’s experiences here

forum.diabetes.org.uk

Search results for query: trulicity

forum.diabetes.org.uk forum.diabetes.org.uk

This member (who hasn’t visited the forum for a month or so) found that feelings of sickness subsided after a few weeks
forum.diabetes.org.uk

Trulicity update

hi guys thanks for all your replys to my first post regarding the Trulicity pen. I am pleased to say that the side effects have pretty much all gone. I took my second dose yesterday and although it was really unpleasant ive felt fine since. ive spoke to the nurse last week who said I shouldn't...
forum.diabetes.org.uk forum.diabetes.org.uk

Do let your Dr know how difficult you are finding things, and let us know how you get on over the coming weeks.

Hope things settle for you.
 
Thank you for taking the time to send these links to me. I have just spent a couple of hours reading through posts-not a problem as I don't feel as sick staying still.
I seem to have coasted for years with my diabetes and not taken it seriously at all. I feel as if I know so little about it. Probably because I had a serious accident and was totally out of it on high morphine levels. Coming out of that and dosage low enough for me to feel that my brain isn't encased in fog. Will keep looking for info but can you tell me what BG is? Keep spotting that. I've noticed it seems Trulocity users don't keep up with info so will try to let everyone know how that is going. Like others I was told not to bother with blood sugar readings but have found that when I have felt particularly awful they have been very in-between 5 and 6.
Also am not at all technical what does 'enable push notifications' mean ?
Am getting over a fall where ligaments were damaged so feel its been a lot to manage but hoping to become more informed -a bit late but never mind!
 
BG stands for Blood Glucose but means the same as Blood Sugar. I think that is what @grovesy was trying to say.
 
The 'push notifications' thing is just something that this forum has - it isn't actually essential.
 
Elliemc said:
Will keep looking for info but can you tell me what BG is? Keep spotting that...
Click to expand...
Hehe! Sorry about all the jargon. You might find this list of common abbreviations helpful 🙂
forum.diabetes.org.uk

Acronyms and Abbreviations

Here is an alphabetical list of acronyms and abbreviations you may come across on the forum: Health-related A1c - Shortened version of HbA1c the blood test that checks average BG over previous 6-12 weeks ADA - American Diabetic Association Basal - 'Background', long acting insulin (eg Lantus...
forum.diabetes.org.uk forum.diabetes.org.uk

Elliemc said:
Also am not at all technical what does 'enable push notifications' mean ?
Click to expand...
Yes sorry about that! it started when the forum software had a minor upgrade - some new feature that we don’t really use here. I am asking to see if we can get the alert switched off, but there should be a way to set ‘never ask again’ in the alert box, depending on your browser.
 
Learning all the time!!
Update on Trulocity - had the 3rd injection yesterday evening. Prior to having it I had felt less sick during the day and actually had a bit of lunch (dessertspoon full of creamy yogurt). This was after a crumpet for breakfast. I even enjoyed a 2inch square of lasagne with half an avocado salad for my evening meal. So this was some progress.
First food I have enjoyed without feeling too sick to have anything in 2 weeks but,of course, have had to have something in order to take the metformin. Haven't been able to sort a good food regime, it's been a case of just have the driest easiest things I can stomach. No wonder I lost so much weight. 9lbs in 2 weeks.
BS this morning was 6.4 so the injection does do what it is needed for, and very quickly. This is presumably why I was awake with stomach pain in the night. BP is now on the low side so will have to discuss this together with a slight reaction on my arm which I first noticed in week 1. It's an oval area about 2 inches under my wrist which doesn't look swollen but is when you touch it. It's also sore. This morning there is a red line in an L shape which wasn't there yesterday.
I am back to feeling very sick again this morning, trying not to move too much as that seems to make it worse!
Sorry it's a bit of an essay but trying to give as much info as poss and hopefully this will help anyone else who may find themselves in my situation.
 
Some promising signs @Elliemc, but sorry the nausea has returned :(

So tricky when starting a new medication isn’t it, because any new thing or sensation feels like it might be related. Does the Patient Information Leaflet in the box mention anything about skin reactions?
 
No, nothing there re this but have had a text from the GP saying they want to discuss meds by phone early next week so I'll talk to them then about it. I do seem to have allergies to some meds, getting worse as I get older. I can't have most anaesthetics because of bad reactions.
Think I should have marked the rash as it seems to be over a larger area this morning.
Am going to check the list of reactions again anyway as today am getting bad back pain.
 
Elliemc said:
No, nothing there re this but have had a text from the GP saying they want to discuss meds by phone early next week so I'll talk to them then about it. I do seem to have allergies to some meds, getting worse as I get older. I can't have most anaesthetics because of bad reactions.
Think I should have marked the rash as it seems to be over a larger area this morning.
Am going to check the list of reactions again anyway as today am getting bad back pain.
Click to expand...
Where is the back pain?
 
This is just an update for those who are interested in my experiences of the Trulocity injections.
Pain in back has become just an ache all across it so I was relieved I was having a telephone appointment, at the surgery's request. Turns out it wasn't for the injections but for the annual review by the practice pharmacist of the morphine I take. Apparently I have to phone the diabetes nurse about Trulocity and, of course, I can't get through. To be fair they have over half the staff off with Covid or isolating following contact with staff with Covid. I did ask how they are doing with the Covid vaccinations but with staff shortages it obviously isn't going as planned and, more worrying, they are awaiting deliveries.
Thankfully the sickness has settled down more than in week 2 and am actually eating about a quarter of a normal evening meal. Only a crumpet still for breakfast and a dry cracker at lunch!
Unsurprisingly the weight loss now is 12lbs in 3 weeks.
The 4th injection is tomorrow evening.
 
Hope things continue to improve @Elliemc
 
Thank you.

Latest update:
Awake a lot in the night with stomach pains after the 4th injection and feel as if my stomach and back have been punched today BUT I am definitely not feeling as sick so that's a big step forward. Still feel I can't eat so had to miss metformin in the evening as only had 2 crackers and a bit of cheese!
BS in early sevens and mid sixes. BP is probably a bit too low.
Still trying to get through to the GP surgery but no luck so far.................
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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