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Tough day

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

melissaf

Member
Relationship to Diabetes
Type 1
Its only been 6 days since I was diagnosed and I was so weepy at work its embarrassing. At work people complaining down the phone about stupid things that Im normally so helpful with - I just want to scream at them and tell them to get over there little issues.
Im angry today and upset with people who I thought I was close to seem to be avoiding me. I just didnt need another thing to worry about - had enough on my plate without having this. Forcing myself to eat when Im not even hungry is not helping. I know life goes on - but I just want it to stop for a minute til I get myself sorted out. I know that it could be worse and Im sorry for the mums (that I have read on the forums) with little ones to have to be dealing with diabetes and I know it could be worse and I could have other health problems but Im still so annoyed. :(
 
You summed it up yourself "it's only been six days" ! I don't know how your even managing back at work at all - hats off to you for not wanting to lie down to things but you need to go easy on yourself physically and emotionally. I can only imagine what it must be like to get your head round the diagnosis and fluctuating bloods already playing havoc with your emotions. Don't apologise to anyone here - your situation is no easier or better than mine as a parent. I found many people avoided us purely through fear of saying the wrong thing and with time as they saw you learn to cope they will come back - tbh there were people I would rather have avoided me than have to listen to there insensitive comments! It is really really hard and there will I'm sure be lots of tough days but it will get better soon I'm sure. Just hang in there.
Ruth x
 
Hi melissa.

After diagnosis, it's quite common to go through a period of 'mourning' for what you've lost. A kind of post traumatic stress.

It can take hours or years for it to materialise and can last from minutes to years. You'll feel angry, scared, lonely and a lot more besides.

I suspect your colleagues/friends have the British habit of feeling uncomfortable around anyone upset and don't really know what to say in case they upset you. And of course, they probably don't understand what it is to have diabetes.

You'll get through it. We've all been there. Mostly. 🙂

Rob
 
Hi Melissa

Sorry to hear you're having a tough time, like the others have said it's only been 6 days so you're bound to be all over the shop with emotions. For me personally it took around 3 months to break down about being diagnosed, and I still have the odd days now too, 2 years later.

I went back to work a couple of days after diagnosis, and did find people a bit quiet with me. They didn't want to ask me how I was or what happened as they didn't want to make me upset or uncomfortable which I'd imagine is the same for your colleagues 🙂

Sending lots of hugs your way x
 
Hi Melissa - it is only 6 days, as others have said.

Just wanted to check one thing with you - you mention forcing yourself to eat when you're not hungry. I can remember thinking that I'd never be able to get hungry and then eat to satisfy that, when I was firt diagnosed. However, with MDI / basal bolus insulin regime (which I discovered only after an Australian friend invited me to travel to Belgium with her, and must have said something to her mum, a pharmacist in Tasmania, because a couple of weeks later, she sent me an article from a pharmacy journal, so I asked my clinic if I could change) things are much more flexible - you adjust your insulin to what you are going to eat, plus other factors such as physical activity, stress, infection etc. It does mean more injections, typically 4 or 5 per day, than 2 bimodal injections per day, but well worth it for the flexibility, I reckon.
 
Hi Melissa
You are new to all this and you will have good and bad days , I still have a bad day every now and then and I have had it just over 3 years , when I get feb up of testing and injecting , but I do promise in time you will get on with things and T1 will become part of your day and will get easier
 
Its only been 6 days since I was diagnosed and I was so weepy at work its embarrassing. At work people complaining down the phone about stupid things that Im normally so helpful with - I just want to scream at them and tell them to get over there little issues.
Im angry today and upset with people who I thought I was close to seem to be avoiding me. I just didnt need another thing to worry about - had enough on my plate without having this. Forcing myself to eat when Im not even hungry is not helping. I know life goes on - but I just want it to stop for a minute til I get myself sorted out. I know that it could be worse and Im sorry for the mums (that I have read on the forums) with little ones to have to be dealing with diabetes and I know it could be worse and I could have other health problems but Im still so annoyed. :(

Hi, have you thought about some time out to get your head around things? It is so early from your diagnosis you must still be reeling (sp?) And to then deal with work and others complaining can be just too much! You have a lot to adjust to at home before all the other stuff, give yourself a break and don't struggle on. ( and please don't need to apologise to us parents, it's hard on everyone here and we are here to support one another 🙂) You tc x
 
Sorry that you are finding it so hard - as Rob said its a bit like the grieving process. Give yourself the space to feel upset and don't get annoyed with yourself for feeling upset - your world has been turned upside down and you are trying to find your feet again.

Some people will avoid you as they don't want to say the wrong thing - just like some people keep their distance from the newly bereaved. They just don't know what to say when you just want them to treat you the way they always have.

Keep posting, keep unloading and if you feel the need ask about counselling - some areas offer counselling to help you come to terms with your diagnosis.
 
Hear Hear! - it was weeks till I went back to work. That was mainly my eyes though - but in any case I reckon I'd have needed a fortnight after I came out of hospital to start trying to get my head round it a bit.

{{{Hugs}}}
 
Hello Melissa, just wanted to say hi as I hadn't got round to it when you first posted. I got diabetes out of the blue when I was 26, it is such a shock isn't it? I felt like saying to the doctor "no, give that disease to someone else, that's not me" and everything I read about it felt like it didn't apply to me because I wasn't diabetic, in my head.

I had a week off work signed off by my nurse, and they would have signed me off for longer if I wanted it. Naively I initially thought I'd be back at work in the afternoon after being diagnosed around lunch time! I was fine until the doctor said "It's ok to get upset about this" and then it was like the flood gates opened. After about a week I dried up, then the flood gates kept opening again at random times (often in Sainsburys!) for months afterwards, so don't beat yourself up about being weepy in your first week!

People can be strange around you at first, I found it helpful to explain everything to my colleagues and friends so that they knew what I could eat and what a hypo was etc. Then the people who persisted in saying "are you sure you can eat that?" etc and telling stories about someone they knew whose feet dropped off were either shouted at or lost along the wayside somewhere and it filtered out the true friends!

One of the best things I did was attend a group at my clinic for newly diagnosed T1 adults - it was nice to meet people in the same boat and learn about food and how your insulin and body works, it cleared up a lot of confusion for me. So ask at your clinic if they run anything like this.

So, I hope things get better for you, it will take time so give yourself time and space, but don't forget that you're still the same person inside.

Take care. x
 
Hi Melissa

You've had lots of good advice and suggestions already, so I'll just say hang in there. It will get easier. The initial rawness, numbness and grief will pass in time. It's perfectly possible to live a full, lively and varied life with D, with fab food and plenty enough treats. Some things you may need to change a little, but these days there is very little that it will prevent you from doing. Modern treatment options and insulins make it possible to keep complications at bay.

Take some time for yourself.
M
 
Hi Melissa

Sorry to hear about your diagnosis. I can only give you my perspective as a parent, but after 48 hours in hospital with my son who was 15 at the time, having been really strong emotionally for the whole time there, it was the homecoming that opened the floodgates. My husband and I both spent the next week propping each other up. I went to pieces (silently) in the car on the way home from the hospital, feeling out of my depth, absolutely gutted for my son, just completely overwhelmed and thinking no-one else would truly understand. For the next few days I too would just randomly burst into tears, anytime, any place, anywhere. On one of our phone calls from the DSN team (it was over the Christmas/New Year break so we had different on call nurses ringing us) I went utterly to pieces about the fact I had bought all this party food for my son's 16th birthday and that he wouldn't be able to eat it. I really lost the plot then and had a good howl down the phone. The days I felt stronger, my husband seemed to get upset. Our son meanwhile, seemed to take it all in his stride.

Initally that was great for him, but once he started back to school that's when massive anxieties began, and things got really hard for him. I became his security blanket and he didn't want to leave the house without me. It was a tough time, but the school, his school nurse/first aider and our DSN were all really supportive. He went through a rough spell for quite a few weeks, some days it was a real battle to get him to school and it was his GCSE year so really important he didn't miss too much. Some days he was sent home, some days he spent more time with the school nurse than in lessons. He got there though, and though he is currently going through a period of rebellion/denial, he did make it back to school properly after a few weeks and sat his GCSEs in the summer and did very well, all things considered.

I guess I too am trying to say it's still very early days for you, you really do need to take just one day at a time and 'go with the flow'. Listen to your inner self, allow yourself to be emotional and not feel guilty, it is one hell of a big thing you have to deal with. It will take time to fully accept. Unless you are in that position, or a parent/carer, I truly don't think you can have half an idea just how involved it all is. I had a friend whose son was diagnosed aged 3. I thought I knew a lot from her, but of course I have now learnt I knew very little really.

Are you a very private person, or is there someone you could really open up to, show them all your kit, explain as much as you can/want to, so that someone else other than you has some idea of just how complex the whole thing is? My son is VERY private but I had to have this outlet for my stress, so I have 3 or 4 close friends who now must want to run every time I approach as I must have bored them to tears in the early days with every new bit of information I had learned. If I haven't mentioned my son for a while they do ask me how he is, or if they hear of any diabetes related information on the news, they are all dying to tell me.

If there is no-one you can really talk to, just keep coming on here. I have found this such a friendly and helpful place, it certainly helps to keep me sane. Just reading other people's comments can help to lift you and everyone just wants to help. Just be yourself, and 'let it all out'. It's perfectly normal to feel how you do, but don't try and fight it. If you feel you would benefit from time off, ask to be signed off, but you would probably then sit brooding about having to go back and face everyone. I personally think getting life back to 'normal' is the best tonic in the long run.

Good luck.
 
Hi Melissa, Just caught up with your original post. I echo all that the others have said on here - you've nothing to be ashamed of or to apologise for. The grieving/anger etc is quite normal and it can take one heck of a lot of time to adjust to things being so different for you - it really is such a shock isn't it ? Keep posting and chatting on here - they have helped me a lot. Good luck - all best wishes and big hugs,
 
Hi Melissa, it is only a short time since you were diagnosed and your reaction is very normal. I hope it helped you were able to tell us.

There is no need to appologise for having something you couldn't avoid, and you especially don't have to appologise her.

Although all of our situations are different we all have to deal with diabetes on a day to day basis. Because we are all different we all laso have different solutions and ways of dealing with things.

The only advice I will add to the good advice already given is to pop into the message boards as often as you can and ask as many questions as you like. No question is too trivial or too silly, so don't be worried about asking. And remember you are not alone, we are all here too.
 
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