Struggle with type 1 diabetes

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Did you find it difficult when you first got diabetes, how long it take you to get it under control? I was thinking about maybe getting a food substitute if one meal a day so at lease I could get that meal under control but don't know if that is possibil

Hiya, I'm 16 and have been diagnosed for a few months. You first need to get a better mind set, reading the conversation it sounds like you havent accepted your diabetes. Its nothing that will go away if you ignore it! You need to make time for it to be able to sort anything. As soon as I accepted what I needed to do, then you will fall into a routine and think nothing of it. It varies from person to person with how quickly they get it uner control...I mean I was diagnosed in December and I have pretty good control of my sugars...and I a not carb counting or anything like that. I use good guessing, write all my results down and what I eat to see how it affects me, only you know what your body needs and how it reacts to insulin. Hope this helped, need anything feel free to message me
 
Hi Tyler 🙂

I can relate to a lot of what you're saying - it's not something anyone would ever voluntarily sign up for & can be a lot to deal with even without depression in the mix. If your sugar levels aren't fairly steady at a reasonable level that will make you feel worse emotionally too, it can be a bit of a viscious cycle.

It might be worth speaking to your dsn & asking if you can access some specialist help via your clinic to address bith how to manage your diabetes & how you feel about it. In terms of tools to deal with diabetes a dafne course will probably be a big help - for me it was like someone finally switched the lights on about multiple daily injections / mdi & gave me some rules to go bybthat regularly worked! In terms of how you feel about it I believe that most clinics should provide access to psychiatric help these days I think in the form of counselling...failing that your gp might be able to help by getting you some therapy like cbt (cognitive behavioural therapy), where you can be helped to change the way you looks at things. I'm doing cbt at the mo, I was very cynical at first but actually, it does seem to help (shock horror lol).

In the meantime, it might be worth setting yourself a basic menu for a few days to see if you can then spot a pattern - eg stick to 2 weetabix & milk for breakfast, a 2 slice sandwich & medium apple for lunch & say a set weight of boiled potatoes (+ meat & veg) for tea just to give an idea, that way you'd only need to figure out the carb values once...you could have non carby snacks (cheese, cold meat, salad etc) between meals as this shouldn't dramatically affect your levels. at least this way there would be less variables so it might be easier to spot patterns?

Whatever you do feel free to let off steam here - it's a support forum after all & we're here to try & encourage each other. 🙂 Take care x
 
Tyler,

Here is a posting from another forum, which just shows you what can be done ...

Getting there!

"Hello all, I'm Sean and I'm new to this forum! This is kind of an introduction as well as a success story so I suppose I've posted in the right place here.

I was diagnosed with type 1 diabetes when I was taken into hospital at age 6. It was a weird thing to get used to - what child of that age WANTS to prick their fingers all the time and have injections multiple times a day?

I'm now 20 years old and it's been a tough ride. In my teen years I was constantly in and out of hospital because I hardly ever took my insulin. It was only in January last year that I felt something needed to change, after I spent 2 weeks in hospital. I had never felt as gravely ill in my life as I did during that particular month of my life. I had lost so much weight that I barely recognised myself. All of this was topped off by a doctor telling me I was going to die if I continued this way.

It was time for me to change. As I was unemployed at the time, I decided it was time for me to get a routine together that didn't involve sitting around eating as much rubbish as I wanted and neglecting my injections. I started running 3 days a week (was hard at first but an absolute breeze after a while!), eating at regular times and attended a DAFNE course so I could figure out eating habits and carb counting. I won't lie, it was tough to get my head around it all to begin with and it's always difficult to change old habits.

One of my dreams has always been to travel across the world, and I knew I'd never get to do that if I didn't take control of my condition. I've now gotten my HbA1c down to 6.1% with that motivation constantly at the forefront of my mind and I've never felt better.

The best advice I can give to someone who goes through the same phase of neglect that I did is to just think of all the things you could end up missing out on if you let diabetes get the better of you!"
 
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