Struggle with type 1 diabetes

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TyleranneKirkham said:
Am there like every week but feel like am going round in circles they come up with options but never follow it through :( I also had a miscarrage not that long ago an I feel like it was my fault coz my really bad control, I just want to get myself sorted! Carb counting a feel really difficult coz a just cant get it in my head x
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Also, wanting a baby is a great motivation to get your sugars under control Tyleranne... My husband and I desperately want to start a family so I spoke to my DSN who told me of all the risks (scared the life out of me but now I have calmed down I can look at it more rationally) and that I have to get tighter control of my sugars to have the safest possible chance of having a baby and I can tell you it is the biggest motivation ever! I've been a diabetic 18 years now and try to control my sugars, never skip injections unless I accidentally forget occasionally but I am now so strict with my testing etc and I am more strict/firm with my diabetes team that they have to help ME to do this as it is something we want so much. I have never been on a carb counting course although attempted to self teach using the carbs and cals book and diabetes UK info so I have got myself on one, and it took a bit of persuasion but I am determined with some hard work to get my HBA1C below 7!

Don't blame yourself for a miscarriage, I think they are more common than people realise, and you cannot know that it was your diabetes that caused it - my mum had 4 before my brother was born and she isn't a diabetic so try not to carry the guilt with you. Concentrate on getting your levels better and look to the future if you want to start a family 🙂

xx
 
Thank you all for your support, I know I need to get myself sorted but every time I try I fail! Who does these carb counting courses ?
 
TyleranneKirkham said:
Thank you all for your support, I know I need to get myself sorted but every time I try I fail! Who does these carb counting courses ?
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Speak to your nurse.
You can do DAFNE which is 5 days full time, I'm doing it after 10 years.
Have you been taught how to carb count?
 
I done my Dafne about 4/5 year ago. And that was after 40 odd years T1. You do learn from them. & you meet others in the boat 😉
 
TyleranneKirkham said:
A think al have a look into these courses but never been offered anything like this up in Scotland ?
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There should be, depending where you are in Scotland you might have to travel to the nearest one.
Are you due at hospital soon or have a telephone number for your nurse to ask them to put you on it
 
I see a young persons nurse and see her every 2 weeks when am on a get myself sorted faze, then I hit a low and stop then do see her for months and they don't contact me ether so only see her when I can really, she's off the now aswel and not back to work for 2 weeks so am stuck...
 
TyleranneKirkham said:
I see a young persons nurse and see her every 2 weeks when am on a get myself sorted faze, then I hit a low and stop then do see her for months and they don't contact me ether so only see her when I can really, she's off the now aswel and not back to work for 2 weeks so am stuck...
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In that case, try doing what I suggested earlier - start a diary (or use the app that was suggested) so that you have lots of information to show the nurse when you next see her. Really, you will feel so much better once you start doing something positive about controlling your diabetes instead of just letting it hang over you all the time 🙂 How about giving us some regular updates to help keep you motivated? 🙂
 
I'd ring the hospital & ask if there are any nurses working you can speak to.

I had a main nurse when I was young but now I have a pump nurse (as I'm in transition) but any normal problems one of the other nurses help out if she isn't available.
 
Diary wise & it's a lot to record but it will help.

Before each meal
2 hours after
Before bed
IF you get up in the night

record units of insulin
And anything odd (illness/stress) etc

but you will see a huge difference once you get an idea with your bloods & patterns
 
I'm surprised they've not given you a diary to keep... I have a BM diary where I write down my insulin and BMs before breakfast, 2 hrs after, before lunch, 2 hrs after, before dinner, before bed and before activity or if feeling hypo (I can try and PM you a scan of a blank page of my book and you can maybe print and photocopy it?) and at the moment I am keeping a food diary as my sugars have gone a bit crazy and even my DSN can't work out why - I've just designed my own version (I'm a designer so like adding pretty pictures to make things cheerier!) so I could send you the PDF of that too if it helps? But basically I have a column for time, BM, insulin, food, carbs in food...

I am still waiting for my hospital's mini version of DAPHNE (apparently they don't have funding for a full course) so I'm no expert but I've been recording my sugar levels for 18 years and it works for me...

xx
 
Vix said:
I'm surprised they've not given you a diary to keep... I have a BM diary where I write down my insulin and BMs before breakfast, 2 hrs after, before lunch, 2 hrs after, before dinner, before bed and before activity or if feeling hypo (I can try and PM you a scan of a blank page of my book and you can maybe print and photocopy it?) and at the moment I am keeping a food diary as my sugars have gone a bit crazy and even my DSN can't work out why - I've just designed my own version (I'm a designer so like adding pretty pictures to make things cheerier!) so I could send you the PDF of that too if it helps? But basically I have a column for time, BM, insulin, food, carbs in food...

I am still waiting for my hospital's mini version of DAPHNE (apparently they don't have funding for a full course) so I'm no expert but I've been recording my sugar levels for 18 years and it works for me...

xx
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That's stupid Vix!
Ooohhh pretty diaries 😱
 
Which bit Laura?? 😉

Yes, my DSN admires my diary every time and tells me I should sell them 🙂 I'm not sure if they're all standard but the ones I get have a guy playing a saxophone on the front and I just don't get the relevance so I sew some fabric covers on them to make them a bit prettier... and I'm addicted to washi tape (pretty Japanese tape) at the moment so everything is looks a bit crazy at the moment!!

xx
 
Vix said:
Which bit Laura?? 😉

Yes, my DSN admires my diary every time and tells me I should sell them 🙂 I'm not sure if they're all standard but the ones I get have a guy playing a saxophone on the front and I just don't get the relevance so I sew some fabric covers on them to make them a bit prettier... and I'm addicted to washi tape (pretty Japanese tape) at the moment so everything is looks a bit crazy at the moment!!

xx
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The fancy diary - I want one! I don't like my sax diary either!
 
If I can get a blank one before we meet up I'll make you a pretty one Laura 😉 xx
 
Vix said:
If I can get a blank one before we meet up I'll make you a pretty one Laura 😉 xx
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Oooooooohhhh!!! 🙂
You could make sleeves for the standard diaries & start a new trend
 
you're on Laura - will you be my tester??? 😉 xx
 
Vix said:
you're on Laura - will you be my tester??? 😉 xx
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Yup!! Tom (yup I finally named my diabetes) is excited about this (probably coz he's grounded for a month)
 
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