Struggle with type 1 diabetes

Status
Not open for further replies.
T

TyleranneKirkham

Member
Relationship to Diabetes
Type 1
I have had diabetes for nearly 2years now and I feel like it has killed my life :( I can't get it under control at all I run on hi for days then give myself a burst of insulin just for a boost, I need help badly!
 
Hi Tyleranne, welcome to the forum 🙂 What insulin are you on? Have you ever been on a course to learn how to inject according to what you want to eat? You need to start doing the basics at least, missing injections will make you feel terrible and could be doing you great harm. It's more than likely that you are spending longer feeling bad about not looking after your diabetes than you would spend taking care of the necessaries and then getting on with your life.

Try not to fight it - there is lots of help available, and if you can tell us a bit more about things we may be able to give you some suggestions to help get you back on track 🙂
 
All day every day, I suffer from desperation too which doesn't help, when a take insulin I just guess how much to take, life just keeps going down never up am only 19 and am sick of life already and knowing I will have diabetes the rest of my life omg :(
 
Hi.
I'm 25 and get depressed about my diabetes too. I've been on it about 5 months now.
I would contact your hospital consultant and say that you want to go on a carb counting course so that you aren't guessing your doses.
Also the carbs and cals book from amazon or iPhone app wih the same name I find amazingly helpful.
I find it strange that your team have not helped you more. Down here when you go on basal bolus routines the hospital holds a course for you on carb counting and help you out for the next 6 months. This should be done everywhere in my opinion.

I really would contact your healthcare team and not accept a no.

I had to fight for help but feel a hell of a lot better after getting it.

Goods luck x
 
TyleranneKirkham said:
All day every day, I suffer from desperation too which doesn't help, when a take insulin I just guess how much to take, life just keeps going down never up am only 19 and am sick of life already and knowing I will have diabetes the rest of my life omg :(
Click to expand...

It doesn't have to be this way. I would suggest getting in touch with your DSN and telling her/him how you are struggling. Have you done a course in carb counting? It's not that difficult and much better than guessing even if you don't get it right every time. Diabetes shouldn't stop you from doing anything you want to do in life, try not to focus on the negatives or get overwhelmed by it all. Start by doing regular tests before and one or two hours after meals. Make a diary of your results and insulin doses you have taken, along with the food you ate, particularly the carbs in it. This way you will quickly build up an idea of whether your doses are too high or too low and be able to make adjustments. Remember, you're not alone in this - if you want to post your results here we will be happy to look at them and make suggestions. Make tomorrow the day you start looking after yourself - you will feel so much better! 🙂
 
Am there like every week but feel like am going round in circles they come up with options but never follow it through :( I also had a miscarrage not that long ago an I feel like it was my fault coz my really bad control, I just want to get myself sorted! Carb counting a feel really difficult coz a just cant get it in my head x
 
Might be worth trying some really boring meals for a while where you know exactly how much carbs are in them, and so that you can compare your results day to day. What sort of things do you like to eat?
 
Good luck sorting everything out. You have done yourself a big favour coming on hear (lots of people who know where you are coming from) . Do you have a diary of what you are doing/eating & times ? Rome wasnt built in a day 😉
 
If you had a week of results & what & when you ate, your nurses could help get things sorted better. I dare you to try it & you will be better. I have had 47yrs at it 😱 Good luck 🙂
 
TyleranneKirkham said:
I don't really have time for a diary, actually I don't really have time for my diabetes.
Click to expand...

Nonsense, it only needs to take a few minutes each day - you probably spend more time watching a tv programme you're not really interested in than it would take you to do a few tests and injections. You have to make time fr it, no-one can do it for you.
 
Did you find it difficult when you first got diabetes, how long it take you to get it under control? I was thinking about maybe getting a food substitute if one meal a day so at lease I could get that meal under control but don't know if that is possibil
 
TyleranneKirkham said:
Did you find it difficult when you first got diabetes, how long it take you to get it under control? I was thinking about maybe getting a food substitute if one meal a day so at lease I could get that meal under control but don't know if that is possibil
Click to expand...

That might be one place to start. You do need to think about ditching the Mcdonalds and pizzas though, at least until you start to get things under control as they can be very difficult to calculate injections for. What do you normally have for breakfast? Start with that - have the same breakfast a few days running and do tests before and one or two hours after, and then before your next meal. Pretty soon you'll have an idea how closely your insulin dose has matched up to what you have eaten - if you are too high, then you need a bit more novorapid, if too low then a bit less. Once you've cracked it you won't need to do as much testing.

Take little steps - it will take time but you will get there! 🙂
 
TyleranneKirkham said:
I don't really have time for a diary, actually I don't really have time for my diabetes.
Click to expand...

I'm sorry but you have to, yes diabetes is horrible for young people who've had a "normal" life & have this landed on them.
It's a few minutes 4 times a day (depending on your background dose possibly 5) to make sure your health is taken care of.
You need to ditch your diet & eat properly by getting used to the basics before fast food is thrown into the mix. I know McDonalds is nice but I have it once a blue moon as it does my blood sugars no good & it's expensive.
I'm sorry if I sound horrible but I was 15 when I was diagnosed so I've been there & bought the t shirt. Thankfully I came out the other side & so can you
 
TyleranneKirkham said:
I have had diabetes for nearly 2years now and I feel like it has killed my life :( I can't get it under control at all I run on hi for days then give myself a burst of insulin just for a boost, I need help badly!
Click to expand...

Hi Tyleranne

so sorry to hear you have so many problems.
But you did the first step , you asked for help . People here give you their opinion and try to point you in the right direction .
If you want to feel better , and you will you have to do something. You need to see a nurse or a doctor and learn how to work with your tools , Insulin and food .
To give you a little help . Get yourself an accound on myfitnesspal , you only need a username and password , it is very easy and it is free . On their data you can find even Mac Don. food and the amond of carbs in it . Then you have a little help how much insulin you need.
But this is only a little help to sort you out , most important go on the course and learn how to count carbs .
You can do that and you will feel better , right away !

Best
Gabi
 
Hi Tyleranne!

Sorry to read you're struggling! This forum is a great place, so I hope you find lots of support advice from the people here. I was diagnosed three years ago, at the age of 17, and you're right, it is a struggle, but trust me when I say all that perseverance with logging sugar levels and counting carbs is so worth it as you'll begin to feel "human" again - less of the highs and more within range sugar levels. I've also sent you a PM. Feel free to message me whenever!
 
Hi Tyleranne,

I was diagnosed when 12 and I've been there and know how hard it is... but a few minutes a day to test your sugars and count your carbs will save you so much more time that making yourself seriously ill and ending up in hospital! It's tough, but if you put a few minutes a day into it now then your diabetes will take up much less of your time in the future... It takes me 30 secs to test my blood sugar and then maybe another minute to work out my carbs and 30 secs to do my injection so that's only 2 mins (guestimate!) at a meal time - I bet you stand in a McDonalds queue longer than that some times 😉 The highs will make you feel rubbish to start with so by going on a carb counting course you will get your BGs under better control and that alone will make you feel like you have more time in the day if you're like me and feel depressed/tired/fuzzy when your sugars are high and I'm sure my brain slows down 😉

You can do this... Good luck 🙂

Xx
 
Status
Not open for further replies.
Back
Top