Should more be done to inform patients of shortages?

Hi standup,
Would not think Internet pharmacies are restricted by geography unless the prescriptions are different in varying regions.
It was my GP that suggested it and as I said they are located very close to my house and I think the benefit they have is they use various wholesalers
 
Wendal said:
Hi standup,
Would not think Internet pharmacies are restricted by geography unless the prescriptions are different in varying regions.
It was my GP that suggested it and as I said they are located very close to my house and I think the benefit they have is they use various wholesalers
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All prescriptions in Wales are free rather than some are exempt or some people qualify. I'd imagine there's no easy way of claiming back the cost from the Welsh government which is why the ones I looked at said you must be registered with a GP in England.
 
My GP surgery got back to me yesterday, as promised. My case was brought up in a meeting that was held on Wednesday. It was decided as I have complex gastric issues along side the fact I don’t have a pancreas, that I will be referred to the gastroenterologist where, I’m hoping, a plan will be put together for when the time comes that I can’t get anymore Creon. It’s something at least, I’ve been heard and I’m in the system. In the meantime I’m to carry on with the rationing of the Creon and cutting down on fatty/oily food etc,. Which I won’t be doing today as I’m going out for lunch with three of our grandchildren. Full dose required!
 
Well, despite my inner fears earlier this month, today I collected my full request from earlier this month of both 10k and 25k Creon capsules. I'd received some tubs of my normal 25k capsules a week ago and now have the rest. But I also have 10k tubs on my repeat scripts as a fall-back option and my Surgery's pharmacist allowed my request of both sizes to go through to Tesco. So I've been very fortunate and now have a buffer, which is a great relief.
 
Proud to be erratic said:
Well, despite my inner fears earlier this month, today I collected my full request from earlier this month of both 10k and 25k Creon capsules. I'd received some tubs of my normal 25k capsules a week ago and now have the rest. But I also have 10k tubs on my repeat scripts as a fall-back option and my Surgery's pharmacist allowed my request of both sizes to go through to Tesco. So I've been very fortunate and now have a buffer, which is a great relief.
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Great to hear Roland and glad Eggy is in the system on a Plan of sorts.
Although I have not run out I have tried to reduce my dosage and experimented quite a lot recently to try and manage on a much reduced requirement just in case the shortages really bite.
So far so good with no major issues but do understand that those who have had pancreatic removal surgery partial or full have a greater need for guaranteed future supply.
Good luck in getting whatever you require for normal control as it is a major concern for anyone on regular medication.
 
nonethewiser said:
Looks like going to have to speak with hospital consultant about creon shortages as been waiting now for 3 weeks & pharmacy still has no idea when stock will be in.

Been taking reduced dose already but dare not reduce it anymore.
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I’ve rang all the pharmacies in Carlisle not a thing. Hope you get sorted.
 
eggyg said:
I’ve rang all the pharmacies in Carlisle not a thing. Hope you get sorted.
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Really sorry to hear that @eggyg

Hope you can get some supplies soon. Must be frightening and frustrating in equal measure :(
 
Mr Eggy popped to chemist for my prescription. Guess what? 8 tubs of Creon! I can’t believe it. Do I celebrate with a slice of buttery toast laden with a rich duck pâté all washed down with a glass of Spry Crisp and Dry or be boring and still ration them? 😉
 
eggyg said:
Mr Eggy popped to chemist for my prescription. Guess what? 8 tubs of Creon! I can’t believe it. Do I celebrate with a slice of buttery toast laden with a rich duck pâté all washed down with a glass of Spry Crisp and Dry or be boring and still ration them? 😉
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Splurge, but sacrifice one cap to the gods of Supply Chain Resilience.
 
JBB70 said:
Thank you, that saves me ringong them alll too, as suggested by my dietician.
It doesn’t help the issue though.
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I got mine from Dalston Pharmacy you could try there. If you’re struggling I could give you a couple of tubs. With what I’ve got and what I’ve just picked up I’ve got 18 weeks worth, that’s without rationing but I think I still will whilst I am able ie not leaving the house.
 
eggyg said:
Mr Eggy popped to chemist for my prescription. Guess what? 8 tubs of Creon! I can’t believe it. Do I celebrate with a slice of buttery toast laden with a rich duck pâté all washed down with a glass of Spry Crisp and Dry or be boring and still ration them? 😉
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Eggy am so pleased for you and saves me being embarrassed about saying I got back home to say 4 tubs had been delivered ( owed from previous prescriptions).
So hopefully it is evidence of supply improving or at least takes away some of the worry
 
Afternoon and I tried to post this on a previous more relevant thread Creon shortages) but it is not accepting new posts or replies so am posting here.
I have just seen this report on Sky News and it does seem to be a postcode lottery as I have been getting regular supply’s and wanted to know how others are coping with any Creon shortages in their area.


news.sky.com

Pancreatic cancer patient 'left in lurch' due to global shortage of medication that helps him digest food

Dan Godley, 31, says ordinarily he would be prescribed around 10 bottles of Creon a month, but the most he has had from his pharmacy in the last five months is three bottles.
news.sky.com news.sky.com
 
I had a shortage of the 25k a while ago but managed to get some 10k to fill in. Now there's a shortage of the 10k but I have no trouble getting the 25k. Fortunately I have prescriptions for both and use them in different situations. I only need 3x 25k bottles each 30 days but luckily I have managed to build up a stock of both sizes.
 
Hi Victor,
Thanks for response and as I said I have been having no issues securing Creon the last few months but was surprised to see it highlighted on the TV this afternoon.
Again am lucky in that I can probably get away with being sparse with my usage if required but I know that several on here have major issues if they cannot get their regular supply and I really feel for them if they live in one of those difficult to source areas.
I really can’t understand how some areas can get Creon but others cannot unless it is a cost issue but then they blame manufacturing difficulties.
 
To be honest, this is old news to me. I saw the original report some months ago where it reported that the shortage would last into 2025. Apparently it's due to a sudden uptick in demand from people who don't have a pancreas problem.

I had a go-around with my local pharmacy who reported a shortage as why my prescription went unfilled and literally just shrugged the shoulder at me when asked about a replacement. I then found that there was a supply of the 10k (Google is a wonderful thing), obtained a secondary prescription and thence a supply.
 
Wendal said:
Afternoon and I tried to post this on a previous more relevant thread Creon shortages) but it is not accepting new posts or replies so am posting here.
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I’ve moved your post (and the replies) into this thread, which was the one I think you were referring to @Wendal

The mods are happy to re-open any old threads - or you can simply start a new one if that’s easier 🙂
 
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