Hi im lorraine 39 and just diagnosed t1 4 weeks ago post having covid, no symptoms until then, anyway my sugars are running between 10-16 generally which i know is high but my team have said not to worry yet as we are still working doses of levimer out, im doing carb counting which i feel sometimes works and sometimes doesnt, im just looking for a bit of reassurance, forgot to say was in DKA so quite unwell initially
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- Thread starter Lori39
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Ljc
Well-Known Member
- Relationship to Diabetes
- Type 1.5 LADA
Hi @Lori39 welcome to the forum, I hope you have fully recovered from Corvid and DKA,
You sure don’t believe in doing things by halves do you (((Hug))).
I have T2 but I am on insulin, Insulatard and Novorapid.
Others who have T1 will be along later who will know far more than I do about T1.
It can take time and some twiddling till they learn what your Basal and bolus (mealtime) needs are, they also don’t want to bring down your BG levels too quickly as that can can cause some unpleasant symptoms such as blurry vision, false hypo’s etc .
In these early days You need to keep in close contact with your team , so they can gradually work out the units you need. It probably doesn’t seem like it now but In time you will be able to do this yourself .
At times we all find that our insulin doesn’t work as we expect it too, sometimes it’s because what we have eaten sometimes not. It sure is fun becoming our own personal D detective .
Ask all the questions you need to about diabetes, we’ll do our best to help .
Their is a book I have often seen mentioned on here, that you should find helpful, don’t worry about the title, it’s suitable fir people of all ages
You sure don’t believe in doing things by halves do you (((Hug))).
I have T2 but I am on insulin, Insulatard and Novorapid.
Others who have T1 will be along later who will know far more than I do about T1.
It can take time and some twiddling till they learn what your Basal and bolus (mealtime) needs are, they also don’t want to bring down your BG levels too quickly as that can can cause some unpleasant symptoms such as blurry vision, false hypo’s etc .
In these early days You need to keep in close contact with your team , so they can gradually work out the units you need. It probably doesn’t seem like it now but In time you will be able to do this yourself .
At times we all find that our insulin doesn’t work as we expect it too, sometimes it’s because what we have eaten sometimes not. It sure is fun becoming our own personal D detective .
Ask all the questions you need to about diabetes, we’ll do our best to help .
Their is a book I have often seen mentioned on here, that you should find helpful, don’t worry about the title, it’s suitable fir people of all ages
Type 1 Diabetes in Children, Adolescents and Young Adults Seventh Edition: Amazon.co.uk: Ragnar Hanas: 9781859597989: Books
Buy Type 1 Diabetes in Children, Adolescents and Young Adults Seventh Edition Seventh by Ragnar Hanas (ISBN: 9781859597989) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.
www.amazon.co.uk
Kaylz
Well-Known Member
- Relationship to Diabetes
- Type 1
Hi and welcome to the forum 🙂
Sorry to hear of the tough period you have been through recently
As @Ljc says, it's better to bring levels down slowly, dropping too quickly can cause more than just blurred vision and false hypo's, I speak from experience with that as nobody warned me of the dangers of dropping quickly
Carb counting is a fantastic tool but it isn't just the carbs that play a part, the fat/protein content is involved as well with some foods spiking quickly and others spiking far later etc, once you feel confident you can alter the timings of injections to try and iron out any spikes, you can also split your doses for meals should it have a higher fat content etc
Its a lot to take in and get used to but you will get the hang of things
If there are any specific questions you have then please do feel free to ask them, between us we have a lot of knowledge
xx
Sorry to hear of the tough period you have been through recently
As @Ljc says, it's better to bring levels down slowly, dropping too quickly can cause more than just blurred vision and false hypo's, I speak from experience with that as nobody warned me of the dangers of dropping quickly
Carb counting is a fantastic tool but it isn't just the carbs that play a part, the fat/protein content is involved as well with some foods spiking quickly and others spiking far later etc, once you feel confident you can alter the timings of injections to try and iron out any spikes, you can also split your doses for meals should it have a higher fat content etc
Its a lot to take in and get used to but you will get the hang of things
If there are any specific questions you have then please do feel free to ask them, between us we have a lot of knowledge
xx
Kaylz
Well-Known Member
- Relationship to Diabetes
- Type 1
Yes diagnosis brings a huge shock, I myself had been feeling fine and was even working from 9am but that evening was admitted to hospital and given my diagnosis, I've been through my fair share of problems in my few short years, 1st being a related eye condition due to the drop less than a month in, that Christmas I developed an eating disorder (irrational fear of carbs) and then less than 2 years in came a 2nd eye related complication, I'm still here though and plough on, if it wasn't for the guys here though I'd be in a much darker/lonelier place xx
SB2015
Well-Known Member
- Relationship to Diabetes
- Type 1
Welcome to the forum @Lori39 from another late starter .
It is indeed a big shock and a lot to learn very quickly.
I do remember they brought my levels down slowly after DKA and it took a while to get the doses of the background (Basal) insulin and the quick acting insulin (Bolus) which deals with the food you eat. It is great that you are already getting to grips with carb counting. Don’t be surprised if the carb counting isn’t exact , especially whilst they are sorting your basal insulin, as this will impact your after meal levels until they get them sorted. Just use it as a time to get more familiar with the carb content of your favourites, and you will be arming yourself for the future.
I found the book T1 Diabetes in Children Adolescents and Young Adults by Ragnar Hanas an excellent resource of info. Ignore the age reference (I was 53 at ex and T1 is T1. It is well written, easy to read, just miss out the chapter of giong back to school!!
The best comparison I read was that getting used to managing T1 is like learning to drive. It seems complicated at the start but it quickly becomes mainly automatic. So it will be with all that you are diong now for your Diabetes.
Keep in touch on here. I have learnt so much from others on here and there is plenty of support and encouragement too. No questions are considered silly on here. Just ask.
It is indeed a big shock and a lot to learn very quickly.
I do remember they brought my levels down slowly after DKA and it took a while to get the doses of the background (Basal) insulin and the quick acting insulin (Bolus) which deals with the food you eat. It is great that you are already getting to grips with carb counting. Don’t be surprised if the carb counting isn’t exact , especially whilst they are sorting your basal insulin, as this will impact your after meal levels until they get them sorted. Just use it as a time to get more familiar with the carb content of your favourites, and you will be arming yourself for the future.
I found the book T1 Diabetes in Children Adolescents and Young Adults by Ragnar Hanas an excellent resource of info. Ignore the age reference (I was 53 at ex and T1 is T1. It is well written, easy to read, just miss out the chapter of giong back to school!!
The best comparison I read was that getting used to managing T1 is like learning to drive. It seems complicated at the start but it quickly becomes mainly automatic. So it will be with all that you are diong now for your Diabetes.
Keep in touch on here. I have learnt so much from others on here and there is plenty of support and encouragement too. No questions are considered silly on here. Just ask.
Thank you i feel so much better already
Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
Welcome @Lori39 🙂
A Type 1 diagnosis is overwhelming to start with. You don’t realise just how much your pancreas does until bits of it fail! I agree with the above comments about getting your blood sugar down slowly. Not only does this help avoid any damage, it also gives you a bit of a breathing space to get your head round controlling your sugars and all the extra jobs you suddenly have to do. It also reduces the risk of hypos.
Keep testing lots and keep good records of your blood sugar and what you eat and do (eg exercise). Your team and you can then gradually smooth out any problem areas and bring your levels down. Carb counting is crucial so it’s excellent you’re doing that.
A Type 1 diagnosis is overwhelming to start with. You don’t realise just how much your pancreas does until bits of it fail! I agree with the above comments about getting your blood sugar down slowly. Not only does this help avoid any damage, it also gives you a bit of a breathing space to get your head round controlling your sugars and all the extra jobs you suddenly have to do. It also reduces the risk of hypos.
Keep testing lots and keep good records of your blood sugar and what you eat and do (eg exercise). Your team and you can then gradually smooth out any problem areas and bring your levels down. Carb counting is crucial so it’s excellent you’re doing that.
KARNAK
Much Missed Member
- Relationship to Diabetes
- Type 1
Welcome to the forum @Lori39.
You have been given great advice from our fantastic members, your present
figures although high but as already been said slowly does it reducing your
figures. May I reiterate what @Kaylz said? if they come down too fast you
may create more problems and sadly I`m one of those who did.
I`m now left with a lifetime problem caused by too quick a reduction with BGL`s
(Blood Glucose Levels), stick with your D team who are advising you and get
very friendly/close to your DSN (Diabetic Specialist Nurse) he/she should be one
of your best friends. The forum should become one of your best friends too the
amount of advice is second to none as you are finding out, your D journey has
only just started but you are doing very well, once again welcome.
You have been given great advice from our fantastic members, your present
figures although high but as already been said slowly does it reducing your
figures. May I reiterate what @Kaylz said? if they come down too fast you
may create more problems and sadly I`m one of those who did.
I`m now left with a lifetime problem caused by too quick a reduction with BGL`s
(Blood Glucose Levels), stick with your D team who are advising you and get
very friendly/close to your DSN (Diabetic Specialist Nurse) he/she should be one
of your best friends. The forum should become one of your best friends too the
amount of advice is second to none as you are finding out, your D journey has
only just started but you are doing very well, once again welcome.
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
Welcome to the forum @Lori39
Sorry to hear about your diagnosis, but it sounds like you are making great progress 🙂
It also sounds like you’ve made a really important discovery for yourself already - which is that there‘s more to BG management than just carbs and food... or carbs and food and exercise... or even carbs and food and exercise and illness and alcohol.
In fact there are at least 42 factors that can throw a spanner in the works with any dose calculation
See: https://forum.diabetes.org.uk/boards/threads/42-factors-that-affect-bg.84836/
So count yourself a diabetes superhero when doses work out, and cut yourself some slack when your diabetes throws you a curve ball.
It’s important to realise that perfection isn’t possible, but that you can probably always learn a new trick and make small improvements to your BG juggling however long you play the game 🙂
I’m a mere 30 years in and still regularly learning and observing new things
Sorry to hear about your diagnosis, but it sounds like you are making great progress 🙂
It also sounds like you’ve made a really important discovery for yourself already - which is that there‘s more to BG management than just carbs and food... or carbs and food and exercise... or even carbs and food and exercise and illness and alcohol.
In fact there are at least 42 factors that can throw a spanner in the works with any dose calculation
See: https://forum.diabetes.org.uk/boards/threads/42-factors-that-affect-bg.84836/
So count yourself a diabetes superhero when doses work out, and cut yourself some slack when your diabetes throws you a curve ball.
It’s important to realise that perfection isn’t possible, but that you can probably always learn a new trick and make small improvements to your BG juggling however long you play the game 🙂
I’m a mere 30 years in and still regularly learning and observing new things
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nonethewiser
Well-Known Member
- Relationship to Diabetes
- Type 1
Good advice by team.
Rough guess next couple of weeks you'll have levimer dose right & can then work on carb count & boluses, all takes time & patience, all been there in same position as you.
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