Pump start 780G

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helli said:
@SB2015 when I had my old tubey pump and wore a dress, I would put it in a pump belt wrapped twice around my upper thigh. I was pretty good at surreptitiously getting the pump out under the table in a restaurant without exposing too much thigh.
I never tried it with a maxi-dress so didn't have to lift too much dress to access the pump.

I have read some women storing their pump in their bra. No idea how they discretely access it in public.
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I'd need a bra with 3 cups to do that!
 
Oooh - and make the button hole IN the pockets and pass the tubing through that to attach pump to cannula.
 
Maco said:
@SB2015 How are you getting on since restarting?
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Much happier this time @Maco. Still some wobbles with basal rates but I feel in enough control to sort these, and no longer have an infection to deal with.

I am glad that I put the time in when back on my old pump, to note what I was doing automatically on that and make sure that I knew how to do it on the 780. There are some things I will miss, but hopefully some of the things I am used to will become unnecessary once I am in auto mode. I am happy enough to keep going.

I shan’t bother with the Guide Link Meter. I find that their pots of strips, which now avoid spills of strips by having a grip on them, are too fiddly for me to get strips out. Also whilst it is paired with the pump and sends your BG over to the pump, you then have to access the pump and confirm it within 12 minutes. Not a difficulty but I plan to just use my old test kit with bigger strips.

I shall give it another week before I order my starter kit of sensors.
 
trophywench said:
Oooh - and make the button hole IN the pockets and pass the tubing through that to attach pump to cannula.
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Exactly my plan. The hole will be hidden and only needs to be big enough for the end of the tubing. Some pockets cover part of the seam so that will be even easier, just a slit and reinforce around, again in the pocket.
 
SB2015 said:
Much happier this time @Maco. Still some wobbles with basal rates but I feel in enough control to sort these, and no longer have an infection to deal with.

I am glad that I put the time in when back on my old pump, to note what I was doing automatically on that and make sure that I knew how to do it on the 780. There are some things I will miss, but hopefully some of the things I am used to will become unnecessary once I am in auto mode. I am happy enough to keep going.

I shan’t bother with the Guide Link Meter. I find that their pots of strips, which now avoid spills of strips by having a grip on them, are too fiddly for me to get strips out. Also whilst it is paired with the pump and sends your BG over to the pump, you then have to access the pump and confirm it within 12 minutes. Not a difficulty but I plan to just use my old test kit with bigger strips.

I shall give it another week before I order my starter kit of sensors.
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Pleased your having better results, I start training at 2pm tomorrow. Can’t wait to get started if I’m honest.

Can’t remember if I asked, but what was the reason your CCG declined funding for the CGM? It seems ridiculous that they would happily fund you a pump but refuse to give you the CGM that is absolutely vital for you to be able to get the most from the 780. Seems utterly pointless from them to be handing out 780G’s.
 
It is twice the cost of funding for the Libre, which I do get on the NHS.
When I self funded the Libre at the start I never dreamt that I would get those funded.
Who knows what will happen in the future.

There is always a difficulty as the CCGs are interested in short term savings.
The CGM will save long term as it improves our control and can help to avoid complications.
I suspect that funding will take time.
 
Maco said:
Can’t remember if I asked, but what was the reason your CCG declined funding for the CGM? It seems ridiculous that they would happily fund you a pump but refuse to give you the CGM that is absolutely vital for you to be able to get the most from the 780. Seems utterly pointless from them to be handing out 780G’s.
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CGM funding on the NHS is still very rare, and it’s not routinely recommended by NICE. Some clinics seem to have more success than others, but certainly my area’s CCG funds next to no adults for full time CGM, such that I have been told (every time I have asked) that it is not worth making the Individual Funding Request.

Until CGM gets a positive Technology Appraisal from NICE I suspect access will remain patchy.

jdrf.org.uk

Can I get a glucose monitor on the NHS? | Breakthrough T1D UK

Everyone with type 1 can access a continuous glucose monitor (CGM) or flash glucose monitor on the NHS. This page is a summary of what is available on the NHS.
jdrf.org.uk jdrf.org.uk
 
everydayupsanddowns said:
CGM funding on the NHS is still very rare, and it’s not routinely recommended by NICE. Some clinics seem to have more success than others, but certainly my area’s CCG funds next to no adults for full time CGM, such that I have been told (every time I have asked) that it is not worth making the Individual Funding Request.

Until CGM gets a positive Technology Appraisal from NICE I suspect access will remain patchy.

jdrf.org.uk

Can I get a glucose monitor on the NHS? | Breakthrough T1D UK

Everyone with type 1 can access a continuous glucose monitor (CGM) or flash glucose monitor on the NHS. This page is a summary of what is available on the NHS.
jdrf.org.uk jdrf.org.uk
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Ive been terribly lucky, County Durham & Darlington have always been brilliant when it comes to CGM. From what I can remember they where one of the first areas to have trials on the Libre. When I enquired about going back onto pump therapy I didn’t expect them to fund the guardian alongside the 780G.

Shame all areas don’t sing from the same hymn book.
 
Maco said:
Ive been terribly lucky, County Durham & Darlington have always been brilliant when it comes to CGM. From what I can remember they where one of the first areas to have trials on the Libre. When I enquired about going back onto pump therapy I didn’t expect them to fund the guardian alongside the 780G.

Shame all areas don’t sing from the same hymn book.
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I think everyone will get there eventually. But some are just dragging their heels!
 
@SB2015, how are you getting on? I’ve just finished my second training session today & ive gone into automode. I’m honestly finding this pump absolutely brilliant, I’m 85% in range at the minute with an averagereading of 7.4mmol.
 
I have my next training session on Tuesday. This is just to review how I have settled in after the restart in manual made. I am in no rush, although having had a couple of hypos today (normal for me) I realise that the auto mode will no doubt deal with thany se a lot better than I do and head them off. On Tuesday we will plan the switch to auto mode, although there is now a delay in getting sensors, as well as cannulas through the ports. It is ‘likely to be resolved soon’. Not being someone to worry (Ha ha!!) this has sent me into a bit of a flap. The government have assured us that Insulin will available but I am not sure that they have though about the cannulas that we need to deliver this. DUK have been great and are following this up.

I am very pleased that it is working well for you. I am currently on TIR of 90% in manual. The auto system will need to match that or nearly. Even if not if it reduces the number of hypos I have that will be great. (Only three today!!!!)
 
I’ve had quite a few hypos since moving back to the pump, that’s why my in range % is slightly lower than I’d like. What I have noticed is the “suspend before low” works a absolute treat. Usually when I drop to around 5.4mmol it’ll suspend, what I’ve been doing is having a little sip of orange juice when it suspends me & it’s usually enough to edge me back up to 6mmol and the pump will start doing it’s work again.

In regards to supplies, this is something that’s really annoying me. Last Thursday my trainer told me they have distribution centres dotted all around the UK, my nearest being 60/70miles away in Leeds. So we really shouldn’t have any issues with supplies at all.

Also, I’ve had it confirmed the new CGM ‘Zeus’ will be released in around a year. My trainer told me today that when my warranty is up on my transmitter I’ll be receiving the Zeus so hopefully not long to wait for people.
 
@SB2015 How are you doing on the 780G these days? Did you ever go ahead with purchasing the CGM? At first everything went great for me but slowly but surely I’m starting to agree with all the negative comments I saw before starting the pump. I’m seriously thinking about running manual mode 24/7 & knocking the CGM on the head to be honest. 4 days ago I had 6 sensors fail the same day, all while in the warm up period. I just kept getting a ‘change sensor, problem with sensor’ alarm. As I’m writing this I’m now getting ‘sensor updating’ & it looks like this one is going to now fail as well.

I’m just getting the point where I can’t be bothered with the hassle of needing to change sensors every couple of days when they fail + I’m doing a BG test more than ever because I’m losing trust in the SG reading. Seems like it would just be easier to run the pump without the CGM and check my BG reading between and after meals.

I’m also not a fan of the automode auto correction, if you miscalculated carbs it’s brilliant and does bring you back into range after a couple hours. The problem I’m having with it is during gym sessions, luckily I’ve got keys to a gym so I’m still training and my sugars are spiking massively during my session and automode isn’t even attempting to do anything about it. I started my gym session today at 8.0 and 1hr after I finished I was upto 16.6. When I had all the troubles the other day with sensors failing I had to go into manual mode for half the day and my readings where pretty perfect. My basal rate most of been set correctly & my carb ratios are bang on too so I was in range all the time I was in manual mode.

Unfortunately I’m running very thin on trust for Guardian at the minute & the mega spikes during gym sessions is really running me down. With me training 6 days a week I’m having these spikes daily so it’s not fun.
 
Maco said:
I just kept getting a ‘change sensor, problem with sensor’ alarm. As I’m writing this I’m now getting ‘sensor updating’ & it looks like this one is going to now fail as well.
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Wow! that’s really unusual. Have you been speaking to Medtronic about this, because that really can’t be right!

I used Enlites and then G3 sensors for 4-5 years off and on, and restarted each sensor to run for 10-14 days without getting those errors. The only times I had issues like you describe was where the ‘filament’ got pulled back into the body of the sensor during insertion. That was only twice, and Medtronic replaced the sensor both times.

Have you got a different inserter you can try? Have you asked about trying a different transmitter?
 
everydayupsanddowns said:
Wow! that’s really unusual. Have you been speaking to Medtronic about this, because that really can’t be right!

I used Enlites and then G3 sensors for 4-5 years off and on, and restarted each sensor to run for 10-14 days without getting those errors. The only times I had issues like you describe was where the ‘filament’ got pulled back into the body of the sensor during insertion. That was only twice, and Medtronic replaced the sensor both times.

Have you got a different inserter you can try? Have you asked about trying a different transmitter?
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Hi bud, since posting this I managed to get a sensor working last Thursday at the 7th attempt. Then on Sunday i got ‘sensor updating’ which eventually corrected itself. I then got the sensor updating message again on Tuesday & 2hrs later the sensor failed. I decided to remove the oval tape, remove the transmitter and I stuck it on charge for 20 minutes. I then refitted the transmitter to the “failed” sensor and would you believe it, it came straight back to life and gave perfectly accurate results with my BG!! So from that little test I’m guessing it’s definitely the transmitter as the so called failed sensor was clearly still working.

I’ve actually been up all night again with “sensor updating” “sensor updating wait upto 3hrs” & then again “change sensor, problem with sensor”.

During all of these problems I’ve spoke to Medtronic all the way through, last Thursday they asked me to charge the transmitter fully & fit a 7th sensor. If it didn’t work they would send a new transmitter, typically that 7th did work until the last few days where I’ve had the same problems. Anyway, rang Medtronic again yesterday and luckily spoke to the same lady who dealt with me last week & she’s sent a new transmitter which supposedly will be here today.
 
That’s good to hear. I really hope the new transmitter works well for you. These systems are amazing when they work, but very quickly tech issues and glitches can make you want to lob them out of the window!

I suspect it will take a while for you to come around to the sensors again after this introduction, but I really hope the new transmitter sorts the problem, and that you can start over with them.
 
It really is an amazing system, that’s why I’m desperate to sort out any issues. Smart guard is incredible when the sensors are working.
 
I got the dreaded sensor updating message yesterday, after 4-5 hours it eventually started, sensor has 2 more days to go but this morning the sensor died, said sensor expired, not sure why but I can say this is the first time I've seen that, my biggest gripe is sensor change over day, normally it is taking more than 6 hours to complete it and get back into auto mode, the biggest bugbear is the "active insulin updating" this has no end even when there is no active insulin.
 
Paulbreen said:
I got the dreaded sensor updating message yesterday, after 4-5 hours it eventually started, sensor has 2 more days to go but this morning the sensor died, said sensor expired, not sure why but I can say this is the first time I've seen that, my biggest gripe is sensor change over day, normally it is taking more than 6 hours to complete it and get back into auto mode, the biggest bugbear is the "active insulin updating" this has no end even when there is no active insulin.
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I really dislike the sensor updating message, do you ensure your ISIG is in range, no? Nor do I but that is often the reason why this message occurs!
Also, why does your sensor changeover take 6 hours? I don’t understand that, mine always takes a maximum of 2 1/2 hours, 30 mins for the transmitter to charge (I charge it on sensor changeover day every 7 days) and 2 hours for the sensor to be back in Auto mode.
 
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