Participants Needed for Professional Doctorate Research for People with Diabetes Type1 and Type2 Views on Barriers to Using Continuous Glucose Monitor

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Yettybam said:
Thank you Lucyr, However for this research, it is mainly the type 1 and type 2 diabetes patients, as there are many types of diabetes and if I have to include all, it will be too much for me to handle.
Thanks for taking the time to read the invitation letter.
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You miss the point entirely. It’s not about being some other type of diabetic. It is that you will get very few type 2 answering as hardly any qualify for it. The vast majority of type 2 using flash gm/cgm have to self fund and that automatically seriously limits numbers. For most type 2 the overriding barriers are cost/prescribed access to it. You are unintentionally eliminating most of your desired research pool.

And this research seems to be exclusively - not mainly - type 1&2 seeing as you exclude all others including type 3c the biggest group of funded cgm users outside of type 1
 
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Many /most Type 2s are lucky to be prescribed finger prick test equipment let alone the CGM technology so cost is an obstacle for many if Type 2. You are excluding quite a big group of people but I do know the problems in changing anything even small once you have gone through ethical approval.
 
Yettybam said:
Thank you Lucyr, However for this research, it is mainly the type 1 and type 2 diabetes patients, as there are many types of diabetes and if I have to include all, it will be too much for me to handle.
Thanks for taking the time to read the invitation letter.
Click to expand...
Not sure you understood. It is the majority of t2 you are excluding. The main barrier to access is cost. By only speaking to people who have used them about barriers to access you’re excluding the people who have the biggest barrier and can’t use them!
 
Leadinglights said:
Many /most Type 2s are lucky to be prescribed finger prick test equipment let alone the CGM technology so cost is an obstacle for many if Type 2. You are excluding quite a big group of people but I do know the problems in changing anything even small once you have gone through ethical approval.
Click to expand...
Good day Leadinglights,
Thanks for taking the time to read the invitation letter, thanks for understanding.
 
Lucyr said:
Not sure you understood. It is the majority of t2 you are excluding. The main barrier to access is cost. By only speaking to people who have used them about barriers to access you’re excluding the people who have the biggest barrier and can’t use them!
Click to expand...

Hello Lucyr,

I understand you very well, however, there are many people with type 2 diabetes who are using the CGM, especially type 2 diabetes patients who are insulin-dependent, I have been a nurse for the past 15 years and believe me, I have cared for so many types 2 that use CGM, However the ethics approval for NHS patients is not straightforward, which is why I am recruiting via the Diabetes UK forum, and I am grateful for the opportunity.
You are right that the majority of type 2 diabetes patients can't access the device due to the cost, and this research and other research will provide the government with evidence that type 2 diabetes patients should also have free access to CGM devices.
I really appreciate your time.
 
Yettybam said:
Good day MrPixels,
Thanks for taking the time to read the invitation letter, any chance I can recruit you for this research?
Thanks in anticipation
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most probably, although I don't think it will change my mind, it could influence somebody somewhere I guess...
 
HSSS said:
You miss the point entirely. It’s not about being some other type of diabetic. It is that you will get very few type 2 answering as hardly any qualify for it. The vast majority of type 2 using fgm/cgm have to self fund and that automatically seriously limits numbers. For most type 2 the overriding barriers are cost/prescribed access to it. You are unintentionally eliminating most of your desired research pool.

And this research seems to be exclusively - not mainly - type 1&2 seeing as you exclude all others including type 3c the biggest group of funded cgm users outside of type 1
Click to expand...

Good day HSSS,

Thanks for taking the time to read the invitation letter, I really appreciate being part of this conversation, there are still people who are type 2 and use CGM, Unfortunately, I can't amend any of this research as it has been approved and thanks for point this out I genuinely did not eliminate most of my research pool, thanks for understanding.
 
trophywench said:
Only other option was to revert to MDI. Will be another 3 years before I get another chance for anything different as the Roche ones last 5 years.
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Are you sure Jen? I've had 2 combos and I had them for only 4 years each, then the warranties ran out.

@Yettybam. Although the Libre 2 came out as a FlashGM they have updated the software so that it is now a rtCGM. However since I have an older phone it will not work as a rtCGM as I have had to stick with an older version of the software. Unless I am willing to part with considerable money for a new phone (and as a pensioner I presently can't afford to) then there is my first barrier to using rtCGM. I am also told by my pump team that although they are in process of introducing the Closed Loop System at my clinic, I will be way at the bottom of the list as my control is so good. So there is barrier 2 to any other type of CGM.
 
Yettybam said:
Good day HSSS,

Thanks for taking the time to read the invitation letter, I really appreciate being part of this conversation, there are still people who are type 2 and use CGM, Unfortunately, I can't amend any of this research as it has been approved and thanks for point this out I genuinely did not eliminate most of my research pool, thanks for understanding.
Click to expand...
Yes a very small % of type 2 do use them. And I bet most of those are self funded as we rarely meet the Ng28 criteria for prescriptions even now they have been widened a little to include slightly more type 2, not even all insulin users qualify, and theres an awful lot of non insulin type 2’s out here as you know.

By saying a person must have used cgm you are only asking precisely the people who have overcome the barriers. So you are eliminating those that found the barriers too high ie the very ones you need to know most about. - ie most type 2. I don’t understand why you can’t see that. I also understand now your study has begun there’s little you can do other than recognise this limitation in your discussion following the results. I sincerely hope the small pool of type 2 you do manage to recruit will help change the barriers we have for these devices.
 
It all depends on what the Uni happen to have gained funding to research something and how they allocate that to researchers. However - explaining to researchers where they 'could be doing better' on our very own 'specialist subject' should - we hope! - be useful/helpful to them and their Uni.
 
Hello Yetunde,
I was diagnosed type 2 just in January. I am currently using the Libre 2. It is self funded, although on a very limited income this has been a struggle for me. I got the introductory free sensor, and decided it was worth some sacrifice to better understand my condition. It has really helped me get my BG levels under control, but I have received no help, advice or even interest from my doctor - not even advice on setting a target range, or on why my fasting BG is so high. I have had to do all my own research online. I would be happy to be interviewed for your research on the barriers to effectively accessing and using this technology, and on the potential advantages too (i.e. what can be achieved if more people could make use of it).
 
HSSS said:
By saying a person must have used cgm you are only asking precisely the people who have overcome the barriers. So you are eliminating those that found the barriers too high ie the very ones you need to know most about. - ie most type 2.
Click to expand...
Is that the case for Libre when Abbott have been offering a free trial for as long as I can remember?
I feel the limitation is that the candidates for this trial must have used rtCGM when Libre was a flash CGM until this summer.
 
Vivi M said:
Hello Yetunde,
I was diagnosed type 2 just in January. I am currently using the Libre 2. It is self funded, although on a very limited income this has been a struggle for me. I got the introductory free sensor, and decided it was worth some sacrifice to better understand my condition. It has really helped me get my BG levels under control, but I have received no help, advice or even interest from my doctor - not even advice on setting a target range, or on why my fasting BG is so high. I have had to do all my own research online. I would be happy to be interviewed for your research on the barriers to effectively accessing and using this technology, and on the potential advantages too (i.e. what can be achieved if more people could make use of it).
Click to expand...
Many wonder why their fasting glucose level remains high when other day time and after meal reading are coming down and for some people that is due the something commonly referred to as Foot on the Floor phenomenon where the liver releases glucose in the absence of food to give you the energy for the day and your organs to function. People find that it can be lower by taking their reading whilst still in bed. Also morning readings are often the last to come down and for some always remain stubbornly highish compared to other readings. There appears little that Type 2s can do about it other than patience.
 
Well I don't think it is (in the strict terms of UK Law) Illegal Discrimination.

For it to be that, you would be required to have the same medical condition for starters.
 
Pattidevans said:
Are you sure Jen? I've had 2 combos and I had them for only 4 years each, then the warranties ran out.

@Yettybam. Although the Libre 2 came out as a FlashGM they have updated the software so that it is now a rtCGM. However since I have an older phone it will not work as a rtCGM as I have had to stick with an older version of the software. Unless I am willing to part with considerable money for a new phone (and as a pensioner I presently can't afford to) then there is my first barrier to using rtCGM. I am also told by my pump team that although they are in process of introducing the Closed Loop System at my clinic, I will be way at the bottom of the list as my control is so good. So there is barrier 2 to any other type of CGM.
Click to expand...

Good day Pattidevans,

Thanks for taking the time to read the invitation letter, any chance I can recruit you for this research?
Thanks in anticipation
 
Vivi M said:
Hello Yetunde,
I was diagnosed type 2 just in January. I am currently using the Libre 2. It is self funded, although on a very limited income this has been a struggle for me. I got the introductory free sensor, and decided it was worth some sacrifice to better understand my condition. It has really helped me get my BG levels under control, but I have received no help, advice or even interest from my doctor - not even advice on setting a target range, or on why my fasting BG is so high. I have had to do all my own research online. I would be happy to be interviewed for your research on the barriers to effectively accessing and using this technology, and on the potential advantages too (i.e. what can be achieved if more people could make use of it).
Click to expand...
Good day Vivi M,
Thanks for taking the time to read the invitation letter, any chance I can recruit you for this research?
Thanks in anticipation
 
AceFace said:
I have had to fund my CGM for years although I'm type 2 I'm on the same regime as any type 1 talk about discrimination
Click to expand...
Good day AceFace,
Thanks for taking the time to read the invitation letter, any chance I can recruit you for this research?
Thanks in anticipation
 
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