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Newly Diagnosed 1YO- Treating Hypos

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D

Daddy-O

New Member
Relationship to Diabetes
Parent of person with diabetes
Hi there, my daughter has recently been diagnosed with Type 1, in which she spent her first birthday in hospital with severe DKA.
We're finding it extremely hard at the moment managing her BS, especially as she's had a sickness and diarrhoea bug. She's fairly happy to have orange or apple juice when treating a low, but struggling to give a long lasting carbohydrate as biscuits etc aren't ideal when you only have four teeth! could anyone give any insight on how they deal with hypos with a T1 so young? Thanks for any guidance you can give.
 
Welcome to the forum, there are quite a few parents with young children diagnosed with Type 1. It must be hard at this early stage to think of things. Hopefully a few of the others will be along soon.
How about rice pudding or cake. The important thing is not to over treat but what might work in an adult may not be suitable for a small child.
Has her diabetic nurse suggested anything as they must have experience of this.
 
To be honest, most of them hadn't worked with someone as young as her as she was diagnosed days before her first birthday.
They've said biscuits and that's about all. Although it can be fairly hard as it can take a very long time for a one year old to eat a digestive biscuit ;o
 
Daddy-O said:
To be honest, most of them hadn't worked with someone as young as her as she was diagnosed days before her first birthday.
They've said biscuits and that's about all. Although it can be fairly hard as it can take a very long time for a one year old to eat a digestive biscuit ;o
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How quickly does she respond to the fast acting treatment as it may need to be something more concentrated so she doesn't have to drink so much.
Can you then follow up with her normal food.
I saw a peanut butter sandwich suggested but I don't think young children are suppose to have peanuts. But a cheese spread sandwich.
Maybe an easier biscuit to eat but I 'm not sure if the fast acting treatment has worked that the follow up slow acting carbs with fat and protein need to be eaten quickly.
Do check with her diabetic team as they should be there in these early days to help her and you.
 
Leadinglights said:
How quickly does she respond to the fast acting treatment as it may need to be something more concentrated so she doesn't have to drink so much.
Can you then follow up with her normal food.
I saw a peanut butter sandwich suggested but I don't think young children are suppose to have peanuts. But a cheese spread sandwich.
Maybe an easier biscuit to eat but I 'm not sure if the fast acting treatment has worked that the follow up slow acting carbs with fat and protein need to be eaten quickly.
Do check with her diabetic team as they should be there in these early days to help her and you.
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Usually she reacts quickly to the fast acting treatment, but since having a bug it's knocked everything everywhere.

And if she was to have a low at night, it really isn't easy trying to persuade a grumpy baby to eat something let alone having juice etc.
 
Daddy-O said:
Usually she reacts quickly to the fast acting treatment, but since having a bug it's knocked everything everywhere.

And if she was to have a low at night, it really isn't easy trying to persuade a grumpy baby to eat something let alone having juice etc.
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How are you testing, does she have a libre then. If you say what insulins and regime she is on then it will help those in the know about these things to try to give you some suggestions.
 
She has a Dexcom fitted, we've had that for around four weeks now. She's on Levimir and Novarapid insulin. We're both fairly new to this so each day presents new challenges. It's just whilst the doctors are working out what ratios suit her, at the minute it feels like a game of highs and lows.
 
Oh bless you, she’s so young. Does she have cow’s milk? That is a medium release for carbs if biscuits and breadsticks and things don’t work. Or those pouches of mush (Ella’s kitchen etc) - maybe one with the veg in if she’ll eat it. At this point you’re looking at whatever you can get in her. If she’ll only tolerate juice while she’s ill then go with more juice. Once she’s feeling better and they’ve got the ratios a bit more even if will get easier. You’ll have a lot of challenges as she grows because things will change often but you’ll learn to go with the flow.

We’re here to cheer you on.
 
Daddy-O said:
And if she was to have a low at night, it really isn't easy trying to persuade a grumpy baby to eat something let alone having juice etc.
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Would Milk be ok for your little one? As a small children I always ended up with some milk to drink.
 
Could you mix up a little milk and Ready Brek or baby rice or similar? That might go down easier than a biscuit.
 
Welcome to the forum @Daddy-O and pleased that you have found us.

I am sorry not to be able to help with any advice for a 1 year old around hypo treatments. Certainly juices are absorbed quickly but they may not be very palatable to such a young child. I would certainly get back in touch with her team as they will have dealt with so many different situationsand children with very different tastes.

keep in touch and let us know how you get on.
 
Thanks for all the replies,

Unfortunately she's not a fan of milk and hasn't had any since diagnosis. She just randomly stopped and refuses it. We'll give some of the suggestions a go, we're hoping to get some stability soon. Since the bug her BS has been so erratic, we've ended up visiting the hospital twice in the past few days. Yesterday at 6pm she had a BS between 3.4-3.9 for three hours and nothing would increase it. Then after three and a half hours it went up. But then climbed to 22 for a majority of the night. We're in close contact with the diabetes team though who are continually changes ratios etc.

Just when we think we're getting there, we feel we're thrown so many steps backwards.
 
Is she going to get a pump @Daddy-O ? That will make control easier as you’ll be able to give tiny doses and make small adjustments.

Back to the cereal, I wonder if some can be mixed with water or juice? The boxes of baby cereals have a reasonable amount of carbs per portion. There are flavoured ones which might work with water or juice.
 
It’s really hard in such a young child and you shouldn’t feel like you’re failing if you need to take her back to hospital at any point. It’s much better to make sure she’s safe.

Stubborn hypos are horrible and it’s not unusual to then get a huge rebound high.

What does she like to eat? A small bowl of cheerios, a yogurt, a bit of porridge, rice crackers?
 
We were told the pump was being fast tracked and we were to get it soon after diagnosis. Although since then we've been told Mid September as they're waiting for someone being available to train us on it.

We'll have to try a few baby cereals to see if we can find one that works with her. She loves most food, although when she's having a hypo you're almost fighting her to eat some. Regarding treating the hypos we've been told to try some full fat coke that's gone flat if juice isn't cutting it. It almost feels wrong trying to give a one year old coke.

Some days we do feel like we're failing, as I said one day it feels like you're getting there. The next you're sitting in a hospital. We just want a form of stability if anything else.
 
Daddy-O said:
We'll have to try a few baby cereals to see if we can find one that works with her.
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Have a look at some of the baby pouches that have fruit and other pudding mixes in them. I know they are very high carb as looked at them one day and was shocked.
You can also get liquid jelly in pouches as well, do check the different makes though as some higher carb than others.
Those icing tubes for decorating cakes are good as well.
Would your daughter be interested in flavoured milk if not in proper milk?
Daddy-O said:
Some days we do feel like we're failing, as I said one day it feels like you're getting there. The next you're sitting in a hospital. We just want a form of stability if anything else.
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No you are not failing diabetes has a lot of ups and downs, as you know there are growth spurts to contend with and hormones plus children's normal illnesses. Easiest way to cope is to take the blood sugar readings as just numbers and adjust/treat as needed.
When you said about sitting in the low 3's was this from a finger prick or did you rely on Dexcom?
Dexcom has a habit of telling porkies when numbers are low or very high so always double check with a finger poke.
 
Funnily enough me and my partner were debating whether to try milkshake of some sort. But we'll definitely have to have a look at alternatives to biscuits and whatnot. We tried her with a Jaffacake earlier which she destroyed.

In terms of monitoring, we mainly rely on the Dexcom, but whenever we're in doubt we usually check with a finger poke. When we was sat in the 3s yesterday we checked a few times and it was pretty accurate.
 
Daddy-O said:
Funnily enough me and my partner were debating whether to try milkshake of some sort. But we'll definitely have to have a look at alternatives to biscuits and whatnot. We tried her with a Jaffacake earlier which she destroyed.

In terms of monitoring, we mainly rely on the Dexcom, but whenever we're in doubt we usually check with a finger poke. When we was sat in the 3s yesterday we checked a few times and it was pretty accurate.
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How many grams of fast acting carbs have you been advised to give.
How frequently is she having hypos.
 
Hi Daddy-O, have you found the Parents forum yet? There's also a link for parents to get a free type 1 bag with information and stuff in, which might be helpful.
I hope that things get a bit steadier for you all, it must be a very steep learning curve, especially with such a young child.
Sarah
 
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