Hi all, I've had a quick browse and you all seem jolly helpful; I'm quite new to my latest diabetes diagnosis (2 days!) but I've had a few years to prepare for it 😛
Short version - 6.5 years ago I had acute necrotising pancreatitis which landed me in ICU for 11 days with multiple organ failure and required both a necrosectomy and cholecystectomy once I was well enough for surgery. I was in hospital for around 4 months in total, much of which I was on an insulin drip and taking supplementary enzymes. I was told after the necrosectomy that I had anywhere between 5% and 50% of living pancreas remaining but miraculously by the time I got home what was left of it had taken up the slack and I was able to return to a relatively normal diet. The only thing I stopped completely was alcohol as I was told this is the most common cause of pancreatitis next to the gall stones which had caused my original problem.
I had CT scans every 12 months or so for the first few years, and after that just annual blood tests. My glucose tolerance tests were always bad but my HbA1c was always normal. The prognosis was I was able to produce enough insulin overall but not able to produce it quickly enough to deal with spikes.
Fast forward to last week when I get a rather panicked call from my GP a day after my annual blood tests... Here we go again
So it seems my HbA1c is now 84. Yikes. I'm booked in for an emergency CT scan tomorrow to check nothing acute is happening with my pancreas (GP mentioned the C word a few times, good to rule that out!) but I've also been started on Metformin. I'm currently taking 500mg in the morning, but I have to ramp that up over 3 weeks to hit 1500mg total daily. I've bought a monitor and have probably pricked my finger 30 times in the last few days but so far no real pattern is emerging in the results. Most have been around 8mmol/l but I was 10.3 this morning when I would have expected it to be at its lowest, so I have a lot to learn 🙂 I've ordered a Freestyle Libre sensor on the free trial, might be useful to get a plot of whats going on over the course of a few days. I'm an engineer, the numbers will comfort me if nothing else 😛
They couldn't get me an appointment with the Diabetes nurse until the 22nd so I'm making it up as I go along until then but it seems I need to avoid carbs and hang tight for the time being. I'd be interested to hear from anyone thats been in a similar boat, I'm not even sure what type of Diabetes I have right now or what the medium/long term implications might be.
Thanks! John
Short version - 6.5 years ago I had acute necrotising pancreatitis which landed me in ICU for 11 days with multiple organ failure and required both a necrosectomy and cholecystectomy once I was well enough for surgery. I was in hospital for around 4 months in total, much of which I was on an insulin drip and taking supplementary enzymes. I was told after the necrosectomy that I had anywhere between 5% and 50% of living pancreas remaining but miraculously by the time I got home what was left of it had taken up the slack and I was able to return to a relatively normal diet. The only thing I stopped completely was alcohol as I was told this is the most common cause of pancreatitis next to the gall stones which had caused my original problem.
I had CT scans every 12 months or so for the first few years, and after that just annual blood tests. My glucose tolerance tests were always bad but my HbA1c was always normal. The prognosis was I was able to produce enough insulin overall but not able to produce it quickly enough to deal with spikes.
Fast forward to last week when I get a rather panicked call from my GP a day after my annual blood tests... Here we go again
So it seems my HbA1c is now 84. Yikes. I'm booked in for an emergency CT scan tomorrow to check nothing acute is happening with my pancreas (GP mentioned the C word a few times, good to rule that out!) but I've also been started on Metformin. I'm currently taking 500mg in the morning, but I have to ramp that up over 3 weeks to hit 1500mg total daily. I've bought a monitor and have probably pricked my finger 30 times in the last few days but so far no real pattern is emerging in the results. Most have been around 8mmol/l but I was 10.3 this morning when I would have expected it to be at its lowest, so I have a lot to learn 🙂 I've ordered a Freestyle Libre sensor on the free trial, might be useful to get a plot of whats going on over the course of a few days. I'm an engineer, the numbers will comfort me if nothing else 😛
They couldn't get me an appointment with the Diabetes nurse until the 22nd so I'm making it up as I go along until then but it seems I need to avoid carbs and hang tight for the time being. I'd be interested to hear from anyone thats been in a similar boat, I'm not even sure what type of Diabetes I have right now or what the medium/long term implications might be.
Thanks! John