New Type 3C

[Kris85]

I'm pretty sure having tea at breakfast time will not impact the "extended fasting" experiment, but if you are not going to be eating, I don't think you will need creon... hopefully someone will correct me if I am wrong on that.... was just thinking if you were having cream in coffee, that might need some.
Do you keep a food diary along with your readings? That can be really helpful, particularly when you are experimenting to see what works or doesn't. With diabetes, a one off result is rarely worth giving much credibility to as there are so many factors which affect BG levels other than food, so you are usually looking more for trends than individual test results. For instance, your walking tomorrow will almost certainly impact your readings tomorrow morning as your muscles can take up to 24 hours to claw back their reserves from your blood stream. So if you fast Monday morning and still drop low it is just as likely to be the after effects of your walk tomorrow as a reflection that the fasting test failed. I find exercise has a very significant but delayed effect on my levels.

That's true, no Creon with no food 🙂
I do keep a food diary, have for three years since the pancreatitis started its appearance. So I have that habit in check! You make a good point about the exercise. The hike is not something I do everyday, so that will effect the experiment. I will keep that in mind, if I find good results with the experiment, I will run it for a longer period of time and see what comes of it. I did research the beta cell when you mentioned it and it appears that the islets of Langerhans reside primarily where I had my surgery, so the beta cells are def reduced, but as to them "malfunctioning" the first information that comes up is how we can sure diabetes by taking Vitamin D. Which I might add that I take Vit D, hasn't cured me yet lolPj

The effect of exercise lasts approx 48 hours. My clinic used to say (jokingly I stress!) that they advised Type 1s to only exercise every other day.

OH then I got that covered. Once a week for me. Aside from short walks. 🙂

 

[rebrascora]

The hike is not something I do everyday, so that will effect the experiment. I will keep that in mind, if I find good results with the experiment, I will run it for a longer period of time and see what comes of it.

I would suggest that even if you get poor results from the experiment (particularly the day after your hike, that you try it for a longer period.... or wait 2 days after your hike before doing the experiment. The hike will take your levels down.

I would be very wary of anything which suggests it will "cure" diabetes.

 

[eggyg]

I’m a hiker too @Kris85, lucky enough to live close to the Lake District, curtailed at the moment unfortunately, but I walk everyday. If I’m fell walking I often have hypos but am well supplied with snacks. Cold, wet, windy weather makes them more likely as does really hot weather, it’s great fun! I would suggest just protein and lots of it before you go on any great hike, eggs, cheese, bacon, sausage etc. Before I had my op, I consulted Dr Google and saw that the insulin producing cells were located in the tail and body which of course a distal removes, I was told I may wake up from the op fully diabetic but not necessarily and of course I didn’t. I was put on Metformin after about a year to try and stave it off but to no avail. It’s inevitable really and as you say how can they think we’re Type 2? It’s crazy. I’ve never, ever seen an endocrinologist, my nurse did confer with one about putting me on insulin many years ago now, but I don’t see anyone specialist about my type, the initial consultation with the DSN at the hospital resulted in going on a weeks course to learn about insulin etc. Me and three Type 1s. She also wrote to my GP to ask them to treat me as a Type 1 so I can access any services I may need in the future, CGM or pump. It’s a constant battle, good job I’m stubborn and bolshie! It sounds like you’re very switched on about it all so I’m certain you’ll crack it. BTW, mine all started with one attack of acute pancreatitis, caused by gall stones, 20 years ago. I sometimes have to pinch my self that I’m still here and doing ok. That’s the stubbornness again! Elaine.

 

[Kris85]

I would suggest that even if you get poor results from the experiment (particularly the day after your hike, that you try it for a longer period.... or wait 2 days after your hike before doing the experiment. The hike will take your levels down.

I would be very wary of anything which suggests it will "cure" diabetes.

Okey dokey. I’m with you. Tuesday I start the experiment 😉. As far as “cures”, I take Vit D anyways, not for the intent of curing myself 🙂. I think it’s Tom foolery to think you can cure diabetes with Vit D. If that were the case, everyone would be cured. But, I have to point out, that when you are researching all the information you mostly get these foolish sites that recommend home remedies. That’s too bad, people will fall into that and it will do them no good.

 

[Kris85]

I’m a hiker too @Kris85, lucky enough to live close to the Lake District, curtailed at the moment unfortunately, but I walk everyday. If I’m fell walking I often have hypos but am well supplied with snacks. Cold, wet, windy weather makes them more likely as does really hot weather, it’s great fun! I would suggest just protein and lots of it before you go on any great hike, eggs, cheese, bacon, sausage etc. Before I had my op, I consulted Dr Google and saw that the insulin producing cells were located in the tail and body which of course a distal removes, I was told I may wake up from the op fully diabetic but not necessarily and of course I didn’t. I was put on Metformin after about a year to try and stave it off but to no avail. It’s inevitable really and as you say how can they think we’re Type 2? It’s crazy. I’ve never, ever seen an endocrinologist, my nurse did confer with one about putting me on insulin many years ago now, but I don’t see anyone specialist about my type, the initial consultation with the DSN at the hospital resulted in going on a weeks course to learn about insulin etc. Me and three Type 1s. She also wrote to my GP to ask them to treat me as a Type 1 so I can access any services I may need in the future, CGM or pump. It’s a constant battle, good job I’m stubborn and bolshie! It sounds like you’re very switched on about it all so I’m certain you’ll crack it. BTW, mine all started with one attack of acute pancreatitis, caused by gall stones, 20 years ago. I sometimes have to pinch my self that I’m still here and doing ok. That’s the stubbornness again! Elaine.

You’re right. I have learned to bring snacks with me in my hikes. Learned that lesson the hard way! Got me a little backpack with my snacks, h2o and my ever present Creon just in case I strike upon a good first date lol lol. I never leave home without Creon 😉
Oh pancreatitis is the worst isn’t it? The first time I had it I thought I was going to die. It struck me in the middle of the night and I could hardly move to resolve any pain and barely breathing. No relief whatsoever. That’s what started the journey to discover what was wrong. Two years later and countless events with Pancreatitis, resulting a a low fat diet until the day of my surgery, and they discover a 4.5cm Mucinous Cystic Adenoma. In short a precancerous leech in my body of my Pancreas. They slated me for surgery and I took vacation two weeks prior. While on vacation and eating extremely low fat, the adenoma ruptured. Not worse than pancreatitis but horrible none the less and brought on a case of pancreatitis. They still did surgery, but because of the mucinous material having exploded all over my pancreas, they removed more than they had originally said they would. It left me with 30% remaining. I consider myself lucky. Should I have never gotten the pancreatitis, they would not have found the precancerous mass as I am otherwise very healthy. I was told pancreatic cancer has a 4% survival rate because it is hard to detect in the early stages. I am very lucky. Needless to say I didn't wake up full diabetic, like you. They classes me as pre-diabetic. It took five months for my pancreas to get lazy lol. So by April of this past year, I was struggling. Because of COVID and lockdown, I spoke with a dietician who didn’t know what to do with me and tried to manage me with diet and exercise. Finally by Oct (!) she said “I just don’t know what to do with you” and send me to the endocrinologist. And we know how the story goes from there.
I feel that I am almost as stubborn as you might be! I feel incredibly lucky to be here even with the struggles I have with my sugar. I am going to do more research this week and experiment with the fasting in the morning as has been suggested in the thread and see where I can get. I have to work something out with my own body, because the traditional helps seems to framed for type 1&2 and unfortunately don’t always work for us.
I am so glad to have found this thread!!!
Thank you!

 

[trophywench]

FWIW there are absolutely no immovable treatments for any type of diabetes @Kris85 for the simple reason we are all different. Just because I do this and it works fine for me by no means ensures it would for any other Type 1.

However - it really IS very worthwhile, sometimes enlightening and above all, comforting to be able to discuss what we happen to be struggling with currently, with others who might have been in the same boat themselves, rather than only with people who may well have Certificates and letters after their names - but simply haven't been here or done this themselves.

It's the same as buying a car or a household appliance - it was no good me talking to my best mate about either because they've always had shedloads more ££££££ to throw at it. Cars (which her husband has always had a interest in, but ask him to do anything more intricate than change a wheel and he's stuffed) so both always bought new cars and probably still do and all their household appliances are top of the range. I know damn well her brand new 1972 Miele top loading washing machine washed and rinsed better than my 3rd hand top loading Hotpoint I was given in 1971 - but there you go. My husband, not being well heeled, could and still can diagnose most problems manifesting in automotive engines. (Used to be fully capable of mending em too, but modern engines are deliberately built to try and prevent anyone happily giving free labour from doing so)

So, we try and ask people for advice who we think we can trust about whatever - and diabetes is no different.

 

[eggyg]

You’re right. I have learned to bring snacks with me in my hikes. Learned that lesson the hard way! Got me a little backpack with my snacks, h2o and my ever present Creon just in case I strike upon a good first date lol lol. I never leave home without Creon 😉
Oh pancreatitis is the worst isn’t it? The first time I had it I thought I was going to die. It struck me in the middle of the night and I could hardly move to resolve any pain and barely breathing. No relief whatsoever. That’s what started the journey to discover what was wrong. Two years later and countless events with Pancreatitis, resulting a a low fat diet until the day of my surgery, and they discover a 4.5cm Mucinous Cystic Adenoma. In short a precancerous leech in my body of my Pancreas. They slated me for surgery and I took vacation two weeks prior. While on vacation and eating extremely low fat, the adenoma ruptured. Not worse than pancreatitis but horrible none the less and brought on a case of pancreatitis. They still did surgery, but because of the mucinous material having exploded all over my pancreas, they removed more than they had originally said they would. It left me with 30% remaining. I consider myself lucky. Should I have never gotten the pancreatitis, they would not have found the precancerous mass as I am otherwise very healthy. I was told pancreatic cancer has a 4% survival rate because it is hard to detect in the early stages. I am very lucky. Needless to say I didn't wake up full diabetic, like you. They classes me as pre-diabetic. It took five months for my pancreas to get lazy lol. So by April of this past year, I was struggling. Because of COVID and lockdown, I spoke with a dietician who didn’t know what to do with me and tried to manage me with diet and exercise. Finally by Oct (!) she said “I just don’t know what to do with you” and send me to the endocrinologist. And we know how the story goes from there.
I feel that I am almost as stubborn as you might be! I feel incredibly lucky to be here even with the struggles I have with my sugar. I am going to do more research this week and experiment with the fasting in the morning as has been suggested in the thread and see where I can get. I have to work something out with my own body, because the traditional helps seems to framed for type 1&2 and unfortunately don’t always work for us.
I am so glad to have found this thread!!!
Thank you!

Similar situation to me. Pancreatitis 2001, just one attack but serious enough to be hospitalised for six weeks. Pseudo cysts to be drained and emergency gall bladder removal. Slow recovery but plodded on. 2007, on holiday in Spain, familiar pains, straight to GP when home. Sent for ultra sound found “cystic areas”. The lots of other tests and found like you pre cancerous tumour. Had to come out obviously along with spleen. If I hadn’t had the pancreatic pain again and knew what it was, I may have left it too late. I feel very lucky it was found and dealt with promptly. PS I NEVER leave the house without my Creon!

 

[everydayupsanddowns]

Hope your experiments go well @Kris85

Let us know how you get on 🙂