I hadn't even heard of a Distal until mine, I joined a FB group and that's where I met a lot of other people all over the world who have had this surgery. Who knew? So my surgery was Dec 2019, so just over a year, my sugar ran high right after surgery and then by April 2020 was too high and they got concerned and sent me to the dietician and the endo. There they decided to keep and eye on it. It seems to be getting worse as the year progresses. With COVID and all the lockdowns, I can't get the resources I need. They want to pigeon hole me into type 2 also, but there are defined differences between and type 2 and myself, yet the health care team struggles to understand me. I had heard that Creon interfered with blood sugar, but my endo told me that it would increase my blood sugar, not decrease it, but I have heard of others who have had low sugars from Creon, but you would think you would struggle with low every day, all day, not just morning...
I shall look into reactive hypoglycemia for sure. I don't know a lot about that. It's true, the remaining part of my pancreas has no idea whether it is coming or going, I only have 30 percent remaining and at first I thought maybe it was struggling with my new norm, now I just feel it is spasmodic and needs a chill pill lol.
You're theory does make sense, I will have to research those ideas and see what I can come up with. Hopefully a solution, like I said, I felt like maybe my diet was all wrong, but with the information I got from the nutritionist, I am actually doing the right thing, and that's why this is so confusing.
Other than the diabetes issue, I am living a totally normal life, popping Creon with my meals, not so hot for a single girl on a first date 🙂 No, they left my spleen, but it is enlarged, so there is talk about it, but again COVID and lockdowns make everything difficult. I will also receive a vaccine soon as I work in healthcare. Looking forward to the day when we can all return to normal, or close to normal, living.
Thank you for all your help Elaine, it is always nice to hash things out with people who get it, instead of doctors who don't get you!