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Those aren’t side effects of insulin I hear about often @Tuesday (though I confess I’ve never used exactly those insulins)

Are they listed in the Patient Information Leaflet?

Could you not switch to different insulins? Sounds like you are having an unusual reaction to be so badly affected.

I’ve been taking insulin for decades and never had the problems you are experiencing. Will your insurance cover alternative brands?
 
everydayupsanddowns said:
Those aren’t side effects of insulin I hear about often @Tuesday (though I confess I’ve never used exactly those insulins)

Are they listed in the Patient Information Leaflet?

Could you not switch to different insulins? Sounds like you are having an unusual reaction to be so badly affected.

I’ve been taking insulin for decades and never had the problems you are experiencing. Will your insurance cover alternative brands?
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I can request tresiba.
The other basal is just another glargine(basaglar) and I was unable to operate the very tight pushing part. The part u push to inject. (Lantus and another bolus insulin was removed).So it's just tresiba and 2 different glargines and trurapi covered.
 
Tuesday said:
I can request tresiba.
The other basal is just another glargine(basaglar) and I was unable to operate the very tight pushing part. The part u push to inject. (Lantus and another bolus insulin was removed).So it's just tresiba and 2 different glargines and trurapi covered.
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Have you talked to your clinic (or a qualified pharmacist in your drugstore) about the side effects you are experiencing? They may have information about published data which might suggest which one could be involved?

Apologies if I’m getting the terminology wrong, I’m trying to translate transatlantically!
 
everydayupsanddowns said:
Have you talked to your clinic (or a qualified pharmacist in your drugstore) about the side effects you are experiencing? They may have information about published data which might suggest which one could be involved?

Apologies if I’m getting the terminology wrong, I’m trying to translate transatlantically!
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I have not. But I have read about other s having leg pain from insulins. The basal ones.
I can certainly ask my pharmacist tho.
 
For insulin use I really need a kind without the daily meal calculations. They are very exhausting for me when I'm so tired. I'm afraid of making an error. But I don't know of any like this except for the discontinued one I was on. Plus it actually helped lower my numbers. It was a 2x a day injection that covered meals and basal. Taken 30 minutes before 2 of the meals eaten. At that time I was able to eat 2x a day. But it can also just be taken 1x a day. But it's gone. Does anyone know of any insulin like this? Or is it all just the newer routines now?
 
Tuesday said:
Does anyone know of any insulin like this? Or is it all just the newer routines now?
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Sounds like a bimodal (mixed) insulin. Things like Novomix 30, Humulin M3, and Humalog Mix 25

These can work well for some people, but generally they aren’t as flexible and adaptable as basal:bolus. Partly because once the insulin is delivered, you are sort of bound to its timeline (and the sizes of meals it can permit).

Interesting that you found it worked well for you. Can you remember the name of it? Perhaps you could get an idea of which separate insulin(s) might best emulate it?
 
My pharmacist says ones like that aren't available now. I guess I just have to suck it up and keep with the daily calculations.
Or
Do as the first thing I got suggested to do when I first began insulin? Which was a fixed dose. And measure measure measure! It didn't work well. Sometimes the dose was way too high.
I'm just tired. Maybe a bad time right now for adjustments.
 
Tuesday said:
My pharmacist says ones like that aren't available now. I guess I just have to suck it up and keep with the daily calculations.
Or
Do as the first thing I got suggested to do when I first began insulin? Which was a fixed dose. And measure measure measure! It didn't work well. Sometimes the dose was way too high.
I'm just tired. Maybe a bad time right now for adjustments.
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It does look as if it is still available in Canada but it may have been withdrawn from those supported by your insurance.
 
rebrascora said:
I had a feeling diarrhoea after eating was the problem. Have you ever had gall bladder problems or pancreatitis?
Are you losing weight at all? Just wondering if you are getting enough nutrition from just 2 cups of soup a day, especially if my suspicion is correct and you are perhaps lacking digestive enzymes.
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What's the test for this? About the enzymes.
 
rebrascora said:
Really sorry to hear that you feel so hopeless about things improving. You really should be getting medical help for such bad diarrhoea after eating, especially when that means you only dare eat once a day and you surely must not be getting the full nutrients from that food if it is passing through you so quickly.
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This is what would be required to get help with this and pretty much anything else wrong---- first u need to see a dr or np (nurse practitioner) costing $6.50 there and home again, next $6.50 per test she might send u to go do, next $6.50 back to the dr/np for results, next $6.50 to the pharmacy IF the meds are covered in ur insurance. So add all that then divide by $3 (daily food allowance) . So every $3 gone means 1 day of forced fasting. Ya too many days. Too difficult to manage especially on insulin. But I did the first $6.50 to see the np and she gave me meds to try while I went to get 2 tests to start with. Those meds weren't covered.
 
rebrascora said:
I had a feeling diarrhoea after eating was the problem. Have you ever had gall bladder problems or pancreatitis?
Are you losing weight at all? Just wondering if you are getting enough nutrition from just 2 cups of soup a day, especially if my suspicion is correct and you are perhaps lacking digestive enzymes.
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I don't seem to be losing any weight. I guess it's the insulin holding me the same. I have been told by Dr's that insulin will make it hard maybe impossible to lose weight on. Some medications alter your metabolism and other bad things to affect your weight.
I know it's that due to the immediate weight loss I get when I go off it for awhile. I was off with the surgery and lost 50 plus pounds.
If I go off for even 1 week I lose near 10 pounds.
 
Tuesday said:
What's the test for this? About the enzymes.
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Sorry I didn't see this earlier.

It is a Faecal Elastase test done on a sample of your poo. It identifies if you have Pancreatic Enzyme Insufficiency (PEI). If you are low on pancreatic enzymes then you need to take a supplement which comes in the form of capsules that you take with food, to help digest it. The most common brand name here in the UK is Creon but I don't know what is available in Canada. It is not cheap and unlike other supplements I do not believe that you can buy it over the counter, at least not here. If people who need it, don't take it, they often experience urgent and sometimes uncontrollable, explosive diarrhoea and their stools are greasy and sometimes quite yellow in colour and smell bad and usually float. Added to that they are unable to get the nutrition from their food so they usually lose weight and it can make their diabetes tricky to manage because the digestion of carbs is unpredictable as to how much releases glucose and how much doesn't get digested.

Sorry for the graphic description but just thought it might be helpful to you to assess if it ties in with what you are experiencing and whether the test might be useful to you. Pancreatic damage leading to this problem which also causes diabetes can be caused by gall bladder problems, cysts or tumours or pancreatitis or alcohol abuse or trauma or surgery to remove the pancreas or portions of it.
 
rebrascora said:
Sorry I didn't see this earlier.

It is a Faecal Elastase test done on a sample of your poo. It identifies if you have Pancreatic Enzyme Insufficiency (PEI). If you are low on pancreatic enzymes then you need to take a supplement which comes in the form of capsules that you take with food, to help digest it. The most common brand name here in the UK is Creon but I don't know what is available in Canada. It is not cheap and unlike other supplements I do not believe that you can buy it over the counter, at least not here. If people who need it, don't take it, they often experience urgent and sometimes uncontrollable, explosive diarrhoea and their stools are greasy and sometimes quite yellow in colour and smell bad and usually float. Added to that they are unable to get the nutrition from their food so they usually lose weight and it can make their diabetes tricky to manage because the digestion of carbs is unpredictable as to how much releases glucose and how much doesn't get digested.

Sorry for the graphic description but just thought it might be helpful to you to assess if it ties in with what you are experiencing and whether the test might be useful to you. Pancreatic damage leading to this problem which also causes diabetes can be caused by gall bladder problems, cysts or tumours or pancreatitis or alcohol abuse or trauma or surgery to remove the pancreas or portions of it.
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Thanks
 
The whole situation is sad. The side effects, the lack of medical help and testing and the lack of proper sufficient funds.
I feel completely powerless and have to fight falling into a mental pit of depression and despair.
 
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