My 2 Year Old Has Just Been Diagnosed With Type 1 :(

[HOBIE]

Please don't worry about your negative post. We all feel for you & know how hard it must be. On a better note I have been T1 since the age of 3. When a football team did good in a competition, World Cup.

 

[Spireite72]

I’m

Thank you all so so much for all of your lovely messages ❤️ They are a great comfort to me and so appreciated xx

We are now home I am so grateful to be home don’t get me wrong but it feels like I’ve come home straight into an oncoming train ..
Willow recovered amazingly and has been so brave and strong, since being home her sugars have been up and down, mainly in the hyper bracket, which I’ve been told is quite normal for the early days, but obviously this scares me so much as I fear we will end up back in hospital, that I’m doing it all wrong. I will be honest but this is breaking me I cant stop crying, I feel like someone has ripped my heart out and stamped all over it, I’m really struggling with the injections, she is beginning to really cry and struggle when it comes to me doing it, especially with the bedtime Lantis one and I break down every time when I try my hardest to be strong - I then panic as i know I’ve got to do it but trying to keep her still and calm is impossible at the moment . I ended up scratching her a little on this mornings insulin where she was fighting staying still and it broke my heart
I can’t eat, as I feel I’m constantly on the clock watch until the next time I have to inject her, work out foods etc. - and I almost dread her wanting a snack because I have to do it again, please tell me this is normal and I’m not just weak, please tell me this gets easier?
My partner goes back to work Tuesday and I honestly don’t know how I’m going to manage giving her insulin, as he helps keep her still .
I’m sorry this is such a negative post ❤️

no such thing as a negative post on here. It’s scary especially after you get home after having all the medical staff to help and looking after you. I felt alone and lost and that was me not me having to look after my child going through this. But in the last week from the forum and the amazing people on here.I’m slowly getting there still loads to learn and get my head round.its not easy and you will have ups and downs. I’m on lantus at night when I first got home I was keeping my pen in the fridge until I learned I could keep the one I’m using at room temperature for 28 days. Cold it stung it’s a lot more tolerable at room temperature. Really hope things start to improve for you and your little girl soon.

 

[HOBIE]

Please keep asking Sam. Your head will be spinning.

 

[SB2015]

Lots of people on here in the same boat, and we all need a rant now and then.
Just keep in touch.

 

[Jeandp]

Hi @Samantha Dunn How is it going? I know next to nothing about Type1 so I can't be much help there, but I really do sympathise with you. This whole thing must be so daunting at first, but it WILL get better. Try to enjoy this amazing bank holiday weather and have a nice day.
Thinking of you ((((HUGS))))

 

[Samantha Dunn]

Hi Everyone,

Since I last posted my little girl has been put on the pump, it’s been 6 days since we went “live” so to speak and it’s been a rollercoaster of emotions.
I feel bad for saying this, as Willow is the one that has Type 1, but I just feel exhausted .. since the pump went live I’ve had to be up in the night 4 or more times,(as they are trying to adjust the basal to limit highs and lows) - some of them I’ve had to wake willow up as she has been having a hypo and getting a toddler back to sleep after eating a jellytot or two is not an easy task .. I just feel so drained, I’m struggling to get housework done, fit in time to go and see my mum who suffers with anxiety/panic attacks and doesn’t come out of her bungalow - she relies on me to visit am I normal to be finding it so time consuming? And like the day revolves around it?
I’m sorry if others don’t agree but I’m starting to get really 😡 at people that say “better that she has it now than years done the line” It would be better if she didn’t have it all, is what I want to reply .. maybe I just feel that way because it’s all a bit “raw”.

Sorry for the rant

Sam x

 

[Ralph-YK]

I’m sorry if others don’t agree but I’m starting to get really 😡 at people that say “better that she has it now than years done the line”

Even at 54 years of age, I wonder at the f*** dumb people out there.

since the pump went live I’ve had to be up in the night 4 or more times,(as they are trying to adjust the basal to limit highs and lows) - some of them I’ve had to wake willow up as she has been having a hypo and getting a toddler back to sleep after eating a jellytot or two is not an easy task

Disdurbed sleep will make it hard for you to cope, practically and emotionally. Both of you.
Don't say sorry, it's what we're here for.

 

[Northerner]

Sam, sorry to hear that you are finding things are so tough right now It will get better once the pump is fine-tuned. Forget about the housework and use what time you get to try and take a break. It's a very intense period at the start, especially with a pump, but you are doing the absolute best you can for your little one,and that is what matters right now.

 

[Lucy Honeychurch]

Totally agree with Northerner, sod the housework, concentrate on yourself and your daughter. Have you got a partner who can share the load?
You're still very early days into diagnosis and, from what I've read on here, pumps are hard work to start with and the fine tuning etc. Take one day at a time and remind yourself it will get better.
Ignore twatish comments, you can't argue with stupid!
Take care and all the best x

 

[Jeandp]

It would be better if she didn't have it at all, but she has, and she is lucky she has you at this difficult time. It will be hard until you both adjust to having diabetes in your lives. Housework can wait till you have time for it.

Your mum will understand if you don't visit quite as much as previously, just till you get the right balance in your life. My dad often used to say "I can't do everything" (my mum was very needy) and nor can you. Just do what you have to do until you can do a little more. It will get easier x

 

[Zillah]

Hi Sam.....housework will be there in a months time so ignore it........I am in awe of how you are coping with Willow I know from experience that having a child with an illness is devastating- you have a mixture of guilt (is there something I could have done to prevent it)/anger (why my child)/frustration (why can't I wave a magic wand and make it better/make it happen to me)/Anguish (having to do things that make them cry to make them better) Just focus on the fact that you WILL make things better for her and she WILL have a normal life and future....but most importantly she'll know she has a mum who loves her 🙂