Good luck Matt. Hope things go according to plan 🙂Got my letter today for the CGM loan and it is over a weekend, in April. Hopefully get a couple of rides in.Should be interesting!
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Love my Pump !
- Thread starter HOBIE
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I still do🙂 🙂
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
Posted an update in the cycling thread but I'll carry on and put it in here as well: Got the CGM sensor on yesterday at the clinic but no reader given so I can't see what it's doing. The nurse said they download all the data from it when it's taken off on Monday and I have to keep a food diary as well including bg readings and injections. The nurse who fitted the sensor was very nice and a T1 of 30 years herself. We talked a bit about pumps as she uses one. The DAFNE course letter and information has also come through and it's 3 consecutive Fridays in June. So I've booked them off work and looking forward to it. 🙂
Northerner
Admin (Retired)
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- Type 1
Hope it goes well with the CGM Matt - annoying that they haven't given you a reader! 🙄
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
Yes, that's what I was looking forward to. 🙄 I suppose it's for them to have a look at what I'm doing - eating, injecting, exercising and how this affects affects me. 🙄
I've already seen it on the Libre but hopefully it will give them (and me) useful information i.e. any patterns to it (I'm not sure there are) and to take it forward from there. For instance, Thursday into Friday according to my meter I had a 1.9 at 1am which neither I or my OH can remember me testing but I must have done it on autopilot. I then woke and tested at 4am with another 1.9 and corrected this one. Then waking at 6.15am at 6.2. This was all after going on the bike Thursday afternoon, reducing nightime basal and going to bed on a 5.8. It meant I must have been at lowish hypo levels for a lot of the night. 😱🙄
You are always thinking/worrying about figures are you not (being T1). Those numbers are not good. Good luck Matt 🙂
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Scary numbers Matt 😱
Still Do 😎. After nearly 50yrs of T1 I think I have a reasonable idea. Up to 4 injections a day for nearly 50 yrs. 😱
Hi all, finally started on my pump last Wednesday.
So far, I am loving it. Great not having to try and remember did I do my injection or not.
Had a couple of hypos first few days but still trying to work out the right basal and that's despite reducing the basal by 6 units compared to what I was injecting for levimer.
So far, I am loving it. Great not having to try and remember did I do my injection or not.
Had a couple of hypos first few days but still trying to work out the right basal and that's despite reducing the basal by 6 units compared to what I was injecting for levimer.
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Well done Shanko ! Good luck with getting it sorted to you. Things will only improve 😎
Hey all - I've been offered a pump and I keep putting it off... but you lot all rave about it so should I change my mind?
My biggest concerns are:
- Having something attached to me all the time (especially with a climbing v active toddler who regularly knees/elbows me in the stomach for example), plus sleeping I'm a wriggler etc.
- What if it goes wrong? isn't that more dangerous?
Opinions very welcome 🙂 Thanks in advance
My biggest concerns are:
- Having something attached to me all the time (especially with a climbing v active toddler who regularly knees/elbows me in the stomach for example), plus sleeping I'm a wriggler etc.
- What if it goes wrong? isn't that more dangerous?
Opinions very welcome 🙂 Thanks in advance
Annette
Well-Known Member
- Relationship to Diabetes
- Type 1
Hi Grainger - on the sleeping side - I am also a wriggler. On the few occasions I have just let it loose in the bed like some people manage, it was hanging out the side of the bed after about 20 mins. I have found the trick for me is to wear it on a lanyard (I got mine with the pump) round my neck. its loose enough to 'follow' me - if I turn over, it is pulled along with me, but there's enough slack that it lies out the side of me if I'm on my front so I'm lying on top of it. (which would happen if I clipped it to my jamas.)
With regards to the actions of a toddler - you'd probably be best trying to keep it under your clothing at all times to reduce the chance of them hooking a fist or foot through the tubing loop and tugging it out! So wearing it in a pocket might not work. but there are plenty of ways you can do that - on a clip inside your waistband instead of out side, in a spibelt type thing under your clothing, hanging from your bra, that sort of thing. If they do knee/elbow it, it wouldnt hurt it - they are amazingly robust items!
If it goes wrong, you have less time before blood sugars go very high - as there is no 'background' (basal) insulin in your system to carry you along - the fast acting acts as a constant basal insulin instead. So yes, it could be more dangerous, if you dont check yourself. But by less time, I mean a few hours before sugars start to rise, and a few more hours before they get well high. So as long as you are testing on a regular basis - at least several times a day, preferably more like 5-7, then you'll pick up on a problem before it gets to the danger point.
I would say it has made my life so much easier, that I would always advocate getting a pump. But how about asking if your team if they have a dummy pump you can wear for a few days/weeks - to get used to the idea of carrying something round? Trust me, you do get used to it really fast - days for some people, weeks for others. It took me about 3 weeks before I was totally at home with having the pump, and probably 6 months before I totally trusted it, but now, I love it and wouldnt return it for the world.
Hope this helps!
Grainger I would take there arms off at the shoulders ! & I mean it. If you get one you after a few weeks think why did I wait so long. A lot of people have very different lives & you can suit it to yourself. Miles more adaptable. They ARE the future ! Good luck 🙂
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
Just an update on this for me. Saw the consultant at the clinic last week and she said I'm on the list for a pump. She couldn't give any idea of timescales as the waiting list was quite long apparently but I'll keep in touch with my clinical nurse specialist to see what is happening.
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