Keep pumping Lauren 🙂 Good luck with new one
-
Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
-
Learn more about joining the Diabetes UK Support Forum team here: https://forum.diabetes.org.uk/boards/threads/volunteering-opportunities-why-dont-you-join-us.112862/
Love my Pump !
- Thread starter HOBIE
- Start date
- Status
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
Got my appointment through today with the consultant at the hospital on 16th February to discuss pumps. Obviously nothing agreed yet but I'm quite surprised and pleased with the speed it's happened as I only discussed it with the DN at the surgery in the week before Christmas. I'm looking forward to the consultation. 🙂
trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
Sounds very promising Matt!
Now - don't forget to remind him of your morbid and constant fear of hypos, will you?
LOL
Now - don't forget to remind him of your morbid and constant fear of hypos, will you?
LOLGood for you Matt. If you want to go out on bike just put a temp basal on. When you are tuned in to it they are great.
Not long now ! Let us know how it goes pls 😎
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
(Not all pump related stuff but as I started it in here I'll continue).
Well, had the appointment at the hospital clinic today and it was very productive. I saw the consultant but I suppose to him I was a new patient so it means assessing everything again. They had a bit of trouble accessing my records from my surgery (computer said no) but said they should get them - although I had bloods done again. He has put me forward for a DAFNE course which will be interesting and they are going to loan me a CGM (yay!) for a few days - I'm hoping it's over a weekend so I can use it on the bike. I didn't mention the Libre as I will only be buying sensors for that occasionally.
Before considering a pump he wants to try and get back the hypo awareness symptoms by running at slightly higher levels and tweaking my doses but I've been trying this to a certain extent over the last few months with little effect.
Overall then, very pleased. 🙂
Well, had the appointment at the hospital clinic today and it was very productive. I saw the consultant but I suppose to him I was a new patient so it means assessing everything again. They had a bit of trouble accessing my records from my surgery (computer said no) but said they should get them - although I had bloods done again. He has put me forward for a DAFNE course which will be interesting and they are going to loan me a CGM (yay!) for a few days - I'm hoping it's over a weekend so I can use it on the bike
. I didn't mention the Libre as I will only be buying sensors for that occasionally. Before considering a pump he wants to try and get back the hypo awareness symptoms by running at slightly higher levels and tweaking my doses but I've been trying this to a certain extent over the last few months with little effect.
Overall then, very pleased. 🙂
Lynn Davies
Well-Known Member
- Relationship to Diabetes
- Type 2
It all sounds good
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
Unfortunately studies show that this does not tend to work as a strategy. Rather than 'running higher', you need to 'not have any hypos' and the two are not as connected as logic suggests they ought to be at first glance.
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
I was a bit taken aback when he suggested running at 10-15 mmol/l !! I'm not sure I'd want to or be capable of doing that. Apart from the fact I'd feel awful with levels like that for a period of time it's taken years of damned hard work to get them where they are now and I don't want to undo that for something which as you say may not work anyway.
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
I feel quite unwell if I go into double figures
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
As part of the NICE Guideline update we reviewed the current literature regarding the best approaches, and relaxing BG targets offered only very minor improvements in low or very low quality studies, which also showed clinical harm. (ie hypogycaemia didn't really change and HbA1c went up).
These were the drafted guidelines in relation to hypoglycaemia unawareness, which evidence shows is often improved by avoidance of hypoglycaemia:
11.2.6 Recommendations and link to evidence
88. Ensure that adults with type 1 diabetes with impaired awareness of hypoglycaemia have had structured education in flexible insulin therapy using basal–bolus regimens and are following its principles correctly. [new 2015]
89. Offer additional education focusing on avoiding and treating hypoglycaemia to adults with type 1 diabetes who continue to have impaired awareness of hypoglycaemia after structured education inflexible insulin therapy. [new 2015]
90. Avoid relaxing individualised blood glucose targets as a treatment for adults with type 1 diabetes with impaired awareness of hypoglycaemia. [new 2015]
91. If target blood glucose levels preferred by adults with type 1 diabetes who have impaired awareness of hypoglycaemia are lower than recommended, reinforce the recommended targets (see recommendations 49-51). [new 2015]
92. Review insulin regimens and doses and prioritise strategies to avoid hypoglycaemia in adults with type 1 diabetes with impaired awareness of hypoglycaemia, including:
- reinforcing the principles of structured education
- offering continuous subcutaneous insulin infusion (CSII or insulin pump) therapy
- offering real-time continuous glucose monitoring. [new 2015]
93.If impaired awareness of hypoglycaemia is associated with recurrentsevere hypoglycaemia in an adult with type 1 diabetes despite these interventions, consider referring the person to a specialist centre.[new 2015]
https://www.nice.org.uk/guidance/ng17
88. Ensure that adults with type 1 diabetes with impaired awareness of hypoglycaemia have had structured education in flexible insulin therapy using basal–bolus regimens and are following its principles correctly. [new 2015]
89. Offer additional education focusing on avoiding and treating hypoglycaemia to adults with type 1 diabetes who continue to have impaired awareness of hypoglycaemia after structured education inflexible insulin therapy. [new 2015]
90. Avoid relaxing individualised blood glucose targets as a treatment for adults with type 1 diabetes with impaired awareness of hypoglycaemia. [new 2015]
91. If target blood glucose levels preferred by adults with type 1 diabetes who have impaired awareness of hypoglycaemia are lower than recommended, reinforce the recommended targets (see recommendations 49-51). [new 2015]
92. Review insulin regimens and doses and prioritise strategies to avoid hypoglycaemia in adults with type 1 diabetes with impaired awareness of hypoglycaemia, including:
- reinforcing the principles of structured education
- offering continuous subcutaneous insulin infusion (CSII or insulin pump) therapy
- offering real-time continuous glucose monitoring. [new 2015]
93.If impaired awareness of hypoglycaemia is associated with recurrentsevere hypoglycaemia in an adult with type 1 diabetes despite these interventions, consider referring the person to a specialist centre.[new 2015]
https://www.nice.org.uk/guidance/ng17
I don't think anything is easy with being diabetic but pumps are the best up to now.
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
How is it going Matt ? Pumps don't stop you doing anything. Has really changed things for me not that anything has stopped me before
No updates to report really. Next step will be the DAFNE course. 🙂
Matt Cycle
Well-Known Member
- Relationship to Diabetes
- Type 1
(Not all pump related stuff but as I started it in here I'll continue).
Well, had the appointment at the hospital clinic today and it was very productive. I saw the consultant but I suppose to him I was a new patient so it means assessing everything again. They had a bit of trouble accessing my records from my surgery (computer said no) but said they should get them - although I had bloods done again. He has put me forward for a DAFNE course which will be interesting and they are going to loan me a CGM (yay!) for a few days - I'm hoping it's over a weekend so I can use it on the bike
Before considering a pump he wants to try and get back the hypo awareness symptoms by running at slightly higher levels and tweaking my doses but I've been trying this to a certain extent over the last few months with little effect.
Overall then, very pleased. 🙂
Got my letter today for the CGM loan and it is over a weekend, in April. Hopefully get a couple of rides in.
Should be interesting!- Status