It’s all guesswork!!

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Yes, you really don't appreciate just how it is until it doesn't work properly or has gone.

I really want to emphasize that nothing is actually taboo to you now food wise, you just need to learn how to dose for different foods. At the moment whilst you are still learning it is easier to keep things simple with your diet and particularly when you are on foxed doses, but we are all trying to tell you that longer term, once you start carb counting and adjusting your doses and becoming more confident, you do not have to restrict any foods, so you can have cakes and puddings and chocolate and big meals with lots of chips or pasta or whatever you wish to eat. You just need to work out how much insulin (and Creon) you need for those things you want and get the right timing for the insulin. It takes practice and if you get a poor result the first time, then that is an excuse to have it again so that you can adjust what you did and see if your adjustment is better. Practice makes perfect... well almost.... so if you get very high or low levels after a meal that you enjoy, then that means you need to practice more by having it more often until you learn how to mostly get it right.
You will find that there are some things which you don't enjoy enough to warrant that level of experimentation/practice or you don't have the opportunity to have it very often.... I am like that with Chinese Banquets.... Once or maybe twice a year and not being able to practice at home means I have to wing it when the occasion arises and accept that I won't get it anywhere near right and if I do, then I am an absolute genius 😎 of course and nothing at all to do with a lucky not so educated guess 🙄.
What I am saying is that you have to find a more relaxed approach as otherwise you will be miserable. Diabetes is all about balance. If we can gradually learn to get things near enough right most of the time, then that is good enough. I still hit high teens occasionally. As long as I deal with it, try to figure out why and don't do it every day now that I am 5 years down the line then that is OK. When I was first diagnosed, my levels used to shoot up to mid teens every morning for the first few months until I learned how to prevent that.
 
rebrascora said:
I really want to emphasize that nothing is actually taboo to you now food wise, you just need to learn how to dose for different foods.
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I think you are referring to using insulin.
Is it true that the correct dose of creon can overcome the issues of having a pancreas that does less than that of someone with Type 1? Maybe @Proud to be erratic can confirm with his Type 3?
 
helli said:
I think you are referring to using insulin.
Is it true that the correct dose of creon can overcome the issues of having a pancreas that does less than that of someone with Type 1? Maybe @Proud to be erratic can confirm with his Type 3?
Click to expand...

I was talking about both Creon and insulin as they both need to be adjusted for different meals or snacks. Creon to a lesser extent but I believe there is some adjustment between larger and smaller meals or snacks and also those with more fat.

The OP has had his pancreas removed so he has no pancreatic function.
Maybe I am missing or misunderstanding your point...
 
rebrascora said:
I was talking about both Creon and insulin as they both need to be adjusted for different meals or snacks. Creon to a lesser extent but I believe there is some adjustment between larger and smaller meals or snacks and also those with more fat.
Click to expand...
That's interesting but, as I don't take creon, in future I will leave it to the Type 3cers to confirms things like this.
I feel nervous even making suggestions to people with type 2 although I read a fair amount from them because there are more type 2ers.
I have no issue with what other for call "cross-posting" but I try to leave it to experts whether the question is about Type 3c or even HCL for someone with Type 1.
 
rebrascora said:
Yes, you really don't appreciate just how it is until it doesn't work properly or has gone.

I really want to emphasize that nothing is actually taboo to you now food wise, you just need to learn how to dose for different foods. At the moment whilst you are still learning it is easier to keep things simple with your diet and particularly when you are on foxed doses, but we are all trying to tell you that longer term, once you start carb counting and adjusting your doses and becoming more confident, you do not have to restrict any foods, so you can have cakes and puddings and chocolate and big meals with lots of chips or pasta or whatever you wish to eat. You just need to work out how much insulin (and Creon) you need for those things you want and get the right timing for the insulin. It takes practice and if you get a poor result the first time, then that is an excuse to have it again so that you can adjust what you did and see if your adjustment is better. Practice makes perfect... well almost.... so if you get very high or low levels after a meal that you enjoy, then that means you need to practice more by having it more often until you learn how to mostly get it right.
You will find that there are some things which you don't enjoy enough to warrant that level of experimentation/practice or you don't have the opportunity to have it very often.... I am like that with Chinese Banquets.... Once or maybe twice a year and not being able to practice at home means I have to wing it when the occasion arises and accept that I won't get it anywhere near right and if I do, then I am an absolute genius 😎 of course and nothing at all to do with a lucky not so educated guess 🙄.
What I am saying is that you have to find a more relaxed approach as otherwise you will be miserable. Diabetes is all about balance. If we can gradually learn to get things near enough right most of the time, then that is good enough. I still hit high teens occasionally. As long as I deal with it, try to figure out why and don't do it every day now that I am 5 years down the line then that is OK. When I was first diagnosed, my levels used to shoot up to mid teens every morning for the first few months until I learned how to prevent that.
Click to expand...
Ahhh thank you….I look forward to getting more confident…All this advice is priceless
 
helli said:
I think you are referring to using insulin.
Is it true that the correct dose of creon can overcome the issues of having a pancreas that does less than that of someone with Type 1? Maybe @Proud to be erratic can confirm with his Type 3?
Click to expand...
I may have misunderstood but the Creon is about being able to digest fats and not related to diabetes. It can impact your insulin in terms of how quickly you digest food. The size and amount of fat in the meal influences how much you need. If you're having an apple then you don't need any but a pizza quite a bit more.
 
I may be wrong and I would fully expect to be corrected by other members if I am, but I was under the impression that Creon is a mixture of enzymes to help digest fat, protein and carbs.
I imagine there is probably enough amylase in your saliva to digest an apple or a hypo treatment, so that may be why it isn't needed for those, but I believe it would be needed for slower release or more complex carbs or bigger meals with more carbs like a dish of pasta, even if it was with a low fat sauce.
 
Yes, Creon contains a mixture of amylase, protease and lipase but as @rebrascora mentions there is some amylase to help digest starch in saliva and protease to digest protein in the stomach. Lipase is only produced by the pancreas, though. So although more amylase and protease
(from Creon) are needed to digest starch and protein we really notice it when we don't have enough lipase!
So Creon will have an effect on the amount of starch digested and that will affect blood glucose levels.
Creon isn't needed for fruit.
 
Ronnie5cakes said:
Ahhh thank you….I look forward to getting more confident…All this advice is priceless
Click to expand...

soupdragon said:
Yes, Creon contains a mixture of amylase, protease and lipase but as @rebrascora mentions there is some amylase to help digest starch in saliva and protease to digest protein in the stomach. Lipase is only produced by the pancreas, though. So although more amylase and protease
(from Creon) are needed to digest starch and protein we really notice it when we don't have enough lipase!
So Creon will have an effect on the amount of starch digested and that will affect blood glucose levels.
Creon isn't needed for fruit.
Click to expand...
Thanks for helping with the purpose of Creon… I’m new to all this…. But have hopes that one day I’ll get on a carbs counting course & then be able to have a pump fitted…. Have I got it right that you are type 3c & have an insulin pump?
 
Ronnie5cakes said:
Thanks for helping with the purpose of Creon… I’m new to all this…. But have hopes that one day I’ll get on a carbs counting course & then be able to have a pump fitted…. Have I got it right that you are type 3c & have an insulin pump?
Click to expand...
Yes. I've now had a pump for just over a year. I've found it very helpful, especially for managing being active, as my blood sugar tends to plummet with exercise so being able to reduce or suspend basal insulin makes things easier.
Has anyone mentioned the Bertie online course, which covers carb counting?
 
soupdragon said:
Yes. I've now had a pump for just over a year. I've found it very helpful, especially for managing being active, as my blood sugar tends to plummet with exercise so being able to reduce or suspend basal insulin makes things easier.
Has anyone mentioned the Bertie online course, which covers carb counting?
Click to expand...
Thank you for replying….I am thrilled you have a pump …. I imagine that makes life so much easier than finding places to have your injection before you eat! I’ve not really had much help from Powys DSNs or Shropshire DSNs…. To be honest I don’t think they have experience with type 3c. I have been told to inject just as I eat now as the Novorapid often seems to get in my system really quickly & my reading starts to plummet. My food seems to take a lot longer to get into my system so after eating I go low then hours later it’s climbing through the roof….I’d love to count carbs & get a pump someday but to be honest I always have to “under inject” the Novorapid because of what happens with this numbers regime I’ve been given… if I counted carbs and even saying 15 carbs = 1 unit… it would send me into a hypo…
Back to Bertie…can I sign up for this or do I need to be referred? I thought a Dafne course was the one to do but needed a referral..?
Do you see a consultant or is everything sorted through DSNs..?
You can see I am really keen to learn how to manage & really haven’t had much help
 
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Ronnie5cakes said:
Thank you for replying….I am thrilled you have a pump …. I imagine that makes life so much easier than finding places to have your injection before you eat! I’ve not really had much help from Powys DSNs or Shropshire DSNs…. To be honest I don’t think they have experience with type 3c. I have been told to inject just as I eat now as the Novorapid often seems to get in my system really quickly & my reading starts to plummet. My food seems to take a lot longer to get into my system so after eating I go low then hours later it’s climbing through the roof….I’d love to count carbs & get a pump someday but to be honest I always have to “under inject” the Novorapid because of what happens with this numbers regime I’ve been given… if I counted carbs and even saying 15 carbs = 1 unit… it would send me into a hypo…
Back to Bertie…can I sign up for this or do I need to be referred? I thought a Daphne course was the one to do but needed a referral..?
Do you see a consultant or is everything sorted through DSNs..?
You can see I am really keen to learn how to manage & really haven’t had much help
Click to expand...
BERTIE is on line and you can self refer.
 
NB DAFNE is not 'Daphne' - DAFNE stands for 'Dose Adjustment For Normal Eating' - so it's a course intended to teach people with Type 1 diabetes how to adjust their dose(s) of fast acting insulin to negate the increase in blood glucose that their food produces. However - this is not an exact science anyway for the simple fact that firstly we are all individuals and secondly the rate at which food increase each of our blood sugar, in equally individual, including eg if it's fatty food the carbs in that meal will increase the BG more slowly than if it wasn't fatty - so boil a spud and eat it, increases BG pretty soon, but make chips with the same spud, eat it and those same carbs gets there slower. That is where a pump is a help since having calculated how may carbs in either the boiled spud or the chipped on, and converted that to the same amount of insulin for either - for the chips meal you can drip the bolus in bit by bit over some time, rather than injecting it all in one fell swoop upfront of eating it all. You can of course do that without a pump by having eg 10 doses of half a unit over the next hour, but what a ruddy palaver that would be!
 
trophywench said:
NB DAFNE is not 'Daphne' - DAFNE stands for 'Dose Adjustment For Normal Eating' - so it's a course intended to teach people with Type 1 diabetes how to adjust their dose(s) of fast acting insulin to negate the increase in blood glucose that their food produces. However - this is not an exact science anyway for the simple fact that firstly we are all individuals and secondly the rate at which food increase each of our blood sugar, in equally individual, including eg if it's fatty food the carbs in that meal will increase the BG more slowly than if it wasn't fatty - so boil a spud and eat it, increases BG pretty soon, but make chips with the same spud, eat it and those same carbs gets there slower. That is where a pump is a help since having calculated how may carbs in either the boiled spud or the chipped on, and converted that to the same amount of insulin for either - for the chips meal you can drip the bolus in bit by bit over some time, rather than injecting it all in one fell swoop upfront of eating it all. You can of course do that without a pump by having eg 10 doses of half a unit over the next hour, but what a ruddy palaver that would be!
Click to expand...
Ahh thank you…the old predictive text tripped me up there!! I’ve changed my post to correct spelling & it tried to trip me up again
 
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