IMPORTANT - Inappropriate advice and reporting posts

Copepod

Moderator
Relationship to Diabetes
Type 1
Welcome back to the forum @BIM. Can you remember what name you used when you posted here before? Then we can check back to your earlier posts and replies.
 

Bubbsie

Well-Known Member
Relationship to Diabetes
Type 2
Actually the poster also advised I increase my T2 medication. Anyway, I was only offering my opinion but am clearly saying something that makes the Forum defensive. Amigo: I know watching carbs isn't 'detrimental', I'm quite intelligent.
BIM...no one here is suggesting you are unintelligent...no one here is being defensive...however...the suggestion from your consultant to take care when you post 'appears' defensive...you failed to mention you were advised to increase your medication without medical supervision/support...had you done so...no doubt the response to your thread would have been vastly different...I have seen one member here respond to another who had increased their medication without consulting their GP...they advised 'I wouldn't worry about increasing your dose to xxxx...since the maximum dose of that drug is XXX anyway'...that was offensive to me...wrong...I cautioned the individual concerned... said they should consult their health care team before making that decision...occasions like that are rare...usually picked up by the moderators...or reported (as they should be by members)...however...that is not analogous to your circumstances...the real issue as you presented it was your misdiagnosis...I agree with @Amigo...it was a discussion...nothing more...no one here wished to offend you...like her I am relieved to hear you have been correctly diagnosed now...and wish you well.
 

trophywench

Well-Known Member
Relationship to Diabetes
Type 1
Copepod, or any other Moderator or indeed, Admin - you know when you actually enrol yourself onto the forum - is there not, within all the things you say you are agreeing to (like not using foul language and not bullying etc) a caveat to say that none of us are medics, just other people either with diabetes or a very strong association with it eg parents, carers etc - and we don't offer medical advice? - so all we do is say what we think we'd do in that situation, or what we happen to think might work?

(It has been SO long since I joined and of course I know very well most people don't think about such things and just tick an 'I agree' box without considering it, but that's their problem not the site's)
 

everydayupsanddowns

Administrator
Staff member
Relationship to Diabetes
Type 1
Copepod, or any other Moderator or indeed, Admin - you know when you actually enrol yourself onto the forum - is there not, within all the things you say you are agreeing to (like not using foul language and not bullying etc) a caveat to say that none of us are medics, just other people either with diabetes or a very strong association with it eg parents, carers etc - and we don't offer medical advice? - so all we do is say what we think we'd do in that situation, or what we happen to think might work?

(It has been SO long since I joined and of course I know very well most people don't think about such things and just tick an 'I agree' box without considering it, but that's their problem not the site's)
The current terms are here, https://forum.diabetes.org.uk/boards/help/terms
which are more indemnity style than 'expected behavoiur' style. I htink there was something a little more verbose before the DUK re-style.

I will consult the mods to see if we can put something together for the Newbies thread.
 

Ralph-YK

Well-Known Member
Relationship to Diabetes
Type 2

Northerner

Admin (Retired)
Relationship to Diabetes
Type 1
Actually the poster also advised I increase my T2 medication. Anyway, I was only offering my opinion but am clearly saying something that makes the Forum defensive. Amigo: I know watching carbs isn't 'detrimental', I'm quite intelligent.
Hi @BIM, as we are reviewing our guidelines and the way we present them it would be really helpful if you could let me know your former User Name - your thread and the advice you received would help us in assessing potential areas for change/update :) If you don't wish to give it publicly you can let me know using the 'Contact us' link on the bottom right of the screen :)
 

Steff

Little Miss Chatterbox
Relationship to Diabetes
Type 2
I'd certainly say none of us come with fancy letters after our name nor profess to know it all. Something I would not do is come back years later under a different guise and post negatively but that's your choice to do so. I'd take northeners advice then it can be investigated
 

trophywench

Well-Known Member
Relationship to Diabetes
Type 1
BIM - are you American? - just wondering cos you said 'home-made cookie' - none of us here about the same age as you, would usually make cookies - we call em biscuits!
 

Bloden

Well-Known Member
Relationship to Diabetes
Type 1
My specialist advised me to take care when posting on this forum.
Hi BIM.:) I always take care when listening to my specialist!:rolleyes: Mind you, she'd have to actually listen to me in order to find out that I use this forum...unlikely to happen.

I hope you still get to have your daily home-made cookie, now you're T1.:p
 

Diabetes UK

Know Diabetes. Fight Diabetes
@trophywench thanks for raising the point about the previous tick box :) As @Northerner mentioned, we are currently reviewing the sign-up process and re-writing the guidelines. Also hoping to do some jiggling about so that the guidelines will much more prominent and easy to find :rolleyes: - so watch this space!
 

mikeyB

Well-Known Member
Relationship to Diabetes
Type 1
Earlier, TW mentioned that none of us are medics. I am, retired, admittedly. I've learned more about Diabetes by being on this forum than I ever learned at med school and during my career, so I don't know any more than anybody else.

Just saying.
 

Ingressus

Well-Known Member
Relationship to Diabetes
Type 2
Just carnt help diving in on this one, a few months ago as you know i was put on insulin, and was terrified, knew nothing about it, i took good advice from many people and sources, as we are all totally individual and somethigs work for some and not others, lets face it its nearly all trial and error, i still have my DBN to have the final say, but i knew with adice on here what questions to ask.

Now to my real point this is not just about the medical gritty stuff, let me tell you, i went through hell when i was given insulin, and i am by no means weak negotiating deals at a high levels, it was this site or the samaritans, the emotional support i got got me through, not there yet, i think its important say personal experience and emotional support can never be bad advice which i thank you all
 

Amberzak

Well-Known Member
Relationship to Diabetes
Type 1
I'd certainly say none of us come with fancy letters after our name
(Jokey voice) speak for yourself. I'm currently studying my masters and then will go straight on to my PhD. You will have to call me Dr AmberZak. And I currently have MTA (member of the Tutor's Association) after my name.
 

BinkyJo

Member
Relationship to Diabetes
Type 2
Type 2

I have received the most supportive welcome, and good tips and advice such as eating 30 minutes after my insulin injection using body lotion on my feet every night which has helped bundles, support whereas so many members made me feel welcome and I felt like I had fitted into a slot that was waiting for me, comfortable and could relax and start to find my self again where there is no prejudice, Things were going really well and I started to gain self confidence again to the point of ringing the hospital and wanting answers as to when and who was looking after me, regarding my Diabetes, my Endocrinologist appt might be, My next Liver Appt, Also could someone help me with my vision as it has decreased drastically, and through the most supportive members on here they gave me the courage also, So to all those thank you so much,


Then there was one member that hounded me wanting my levels of this and that what forms of insulin I was on all they wanted was the levels & numbers no help no support I felt and seemed liked they wanted to catch me out or something, I have only just received the letter from the hospital with all my test results done for the 1st time and a copy of a letter sent from my consultant to my GP, as I had mentioned I literally was a newbie threw this persons tone, I knew this person was,nt a very nice person at all, like they were questioning everything about me and even had the ordascity (sorry about spelling) to tell me something only a consultant,chemist,pharmacist,GP, would have have agreed to giving me since a child, that it was wrong not two people are the same also the dosage depends on the person and the conditions they have, which unfortunately they had to change and increase due to my distressing conditions that I am still coming to terms with,


but there is NOT absoluteley. NO compassion,NO support,NO respect of hurting someones feelings as I feel like this person would attack you in a heartbeat, and I cannot be apart of that I am already trying so hard to climb my way back up again and negative people like that has kept me away while I was to afraid to come back on here when things started to go wrong or even if I was to say hello to anyone that they would appear out of the wood work wanting answers again putting me back into a black hole, sorry to tell both sides that I have been involved in the really terrific side and by 1 person they can sway you away, I am a newbie am sorry if I have spoken out of line.
would someone be so kind as to tell me what LCHF diet stands for sorry am nieve
Hugs and love for a better tomorrow for you all

Jo
 

Bill Stewardson

Well-Known Member
Type 2

I have received the most supportive welcome, and good tips and advice such as eating 30 minutes after my insulin injection using body lotion on my feet every night which has helped bundles, support whereas so many members made me feel welcome and I felt like I had fitted into a slot that was waiting for me, comfortable and could relax and start to find my self again where there is no prejudice, Things were going really well and I started to gain self confidence again to the point of ringing the hospital and wanting answers as to when and who was looking after me, regarding my Diabetes, my Endocrinologist appt might be, My next Liver Appt, Also could someone help me with my vision as it has decreased drastically, and through the most supportive members on here they gave me the courage also, So to all those thank you so much,


Then there was one member that hounded me wanting my levels of this and that what forms of insulin I was on all they wanted was the levels & numbers no help no support I felt and seemed liked they wanted to catch me out or something, I have only just received the letter from the hospital with all my test results done for the 1st time and a copy of a letter sent from my consultant to my GP, as I had mentioned I literally was a newbie threw this persons tone, I knew this person was,nt a very nice person at all, like they were questioning everything about me and even had the ordascity (sorry about spelling) to tell me something only a consultant,chemist,pharmacist,GP, would have have agreed to giving me since a child, that it was wrong not two people are the same also the dosage depends on the person and the conditions they have, which unfortunately they had to change and increase due to my distressing conditions that I am still coming to terms with,


but there is NOT absoluteley. NO compassion,NO support,NO respect of hurting someones feelings as I feel like this person would attack you in a heartbeat, and I cannot be apart of that I am already trying so hard to climb my way back up again and negative people like that has kept me away while I was to afraid to come back on here when things started to go wrong or even if I was to say hello to anyone that they would appear out of the wood work wanting answers again putting me back into a black hole, sorry to tell both sides that I have been involved in the really terrific side and by 1 person they can sway you away, I am a newbie am sorry if I have spoken out of line.
would someone be so kind as to tell me what LCHF diet stands for sorry am nieve
Hugs and love for a better tomorrow for you all

Jo
Hello to you Jo.

I believe it's Low Calorie High Fat.

Hope that helps.
 
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