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I'm having a moan!!

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Cat1964

Well-Known Member
Relationship to Diabetes
Type 2
When I was first diagnosed with diabetes I took everything I was told to heart and decided I could beat this. I stopped eating all rubbish immediately and turned my diet upside down. No sweets, no more white bread, as little carbs as possible etc. I was doing lots of testing to find out what foods put my BS level up. Then one day a few months ago I suddenly felt very overwhelmed by it all and thought I can't do this anymore. I stopped testing, gave up the healthy eating and went back to eating what I liked. I missed my appointments with my DN and haven't been back to my doctors surgery since because i don't want to be confronted about missing appointments. If I need repeat prescriptions I get someone to collect the prescription from the surgery for me so that I don't have to face them. Over the past few weeks the diabetes thing has been preying on my mind. I know I need to get back on track with taking care of myself but feel at a loss as to how to go about it. I know I need to get back to healthy eating and cutting out all the rubbish, less carbs etc. I saw an article on the BBC website today where this man was saying after the diabetes diagnosis your life will never be the same. And I thought how true is that and I think that's my problem. I don't want my life to change but I know it has to. At the moment I have no visible signs of the damage diabetes can do to me but if I don't look after myself I know the damage can be serious. I'm struggling big time with all my thoughts and feelings about diabetes. My daughter and friend moan at me that I am not looking after myself but I feel that no-one wants to help or support me in this. It's all very well them telling me I'm not looking after myself but if they're nagging me by telling me 'you can't eat that' it doesn't help. It also doesn't help when I try to be good and hubby or daughter come home with chocolate, ice cream or something that I know is bad for my diabetes. When I was first diagnosed they would both eat their chocolate or ice cream in their rooms or in the kitchen, leaving me alone in the living room. I eventually told them I was okay if they had these things in the living room because I felt they were making me feel the 'odd one out'. I know I want to help myself out of this because I am back to feeling so tired again and I have no energy. Every day just now seems like a struggle. I go to work come home and am so tired that I sit in front of the TV almost comatose till its time to go to bed and I am still exhausted when I wake up in the morning to get ready for work. I don't want to end up with bad feet, kidney damage, retinopathy and I want my life to be as long as possible, not cut short because of diabetes. I am angry at myself and my inability to deal with it just now. I visit this site every day and everyone seems to cope well with it and get on.........so why can't I??? As I said, I do know what I need to do to get back on track with taking care of myself but am struggling with it all just now. Sorry if I sound self pitying or moaning but I've never told anyone lately how I feel. And as no-one else in my family has diabetes its hard to make them understand, so thanks for letting me moan. 😱
 
Cat, I'm really sorry to hear this :( Despite appearances, we all do suffer from this 'burnout' from time to time - it's very common with chronic conditions t do so well for so long, then everything becomes too much to handle. You're not alone, and I'm glad you have let us know how you are feeling. I would say, don't feel that you will be 'told off' at your appointments, it's one of those things where you may falter, but you mustn't feel inhibited or intimidated by confronting it, you have to 'get back on the horse'. You know, as we all do, that not looking after yourself makes you feel worse, and that if you can start taking care of yourself again, you will feel better, but it can be difficult to find the energy and determination to get back on track.

Start again, with small steps. Do the little things each day that you know will help - cut out the bad things from your diet. Be selfish - if the others in your household are making things difficult, tell them and tell them how concerned you are. I know that, for one, your lovely daughter will do everything she can to help, but people need you to talk to them so that they understand how you are feeling.

Set some small goals and count them off. When you are overwhelmed it's difficult to see the wood for the trees, so identify a few small things you can do and achieve to help you get back on track, and let us know how you are doing 🙂
 
You say that everyone on this site seems to cope so well and just get on with it - well I'm willing to bet that that's not true! It just seems that way. Speaking for myself, there are plenty of times when it feels as though no matter what I do, nothing seems to be going right diabetes-wise. You are describing what some call "diabetes burnout", which is when you are thoroughly fed up of the relentless job of micro-managing your diabetes. However, giving up on it isn't a good option either.

Don't beat yourself up about what you haven't been doing. Start again, but this time be a bit kinder to yourself. Maybe have one day a week where you allow yourself a chocolate cake or something you enjoy. Try and get your family on board to be sociable with you when you have your "treats". And don't worry about having missed appointments - go back to your GP and let them know it's been getting on top of you but that you'd like to make a fresh start. Make sure your annual tests are up to date, and put yourself back in control instead of feeling that the diabetes is controlling you! 🙂. Come and talk to us on here!

Lastly, don't judge yourself on the numbers (BG results etc.). They are just data to give you information about how best to tweak your diabetes management. Hope you soon start to feel better and have more energy. 🙂
 
Awwwww huni *hug*

Please don't feel like you'd be told off by anyone, do baby steps & you'll get there.

I felt this way not so long ago & I've had the odd day recently when I can't be bothered.

If you want to chat, pm me & we can have a chat away from here 🙂
 
Hi Cat, I know exactly how you feel because I've been there. When first diagnosed, I took it all very seriously like you did, lost weight, went to the gym and did everything I was told to. After about a year, life got in the way and I gave up, for over SEVEN YEARS. 😱

You're still in your first year, so for goodness sake don't beat yourself up. Northey's advice is really good. Baby steps will get you there. Eventually it will become second nature, and the odd 'bad' day won't spiral out of control. You CAN do this!
 
Gosh, I could have written this post myself! I have blocked out my diabetes as well! How stupid is that!! I just cannot stop the feeling of shame, of being over weight thus bringing it on myself. It's a pity we live opposite ends of the country cat. We should get together and support each other. I do wish you well and hope you begin to feel better about everything very soon.
 
I am also sending you a big hug {}. You have come a long way in knowing that you want to manage your diabetes again. It will be a year next month for me. I have fed up days too when i think about the fact that life will never be the same again no matter how much we want it to be. No matter what we do we can't get rid of it, but I feel that we can manage it. You have done it and will do it again, little steps at a time. Most of all you know how to do it. I had very little help from the doctor and DN but learnt from the lovely people on this forum. Basically it is down to us to manage this disease. You already know that and also know that you can do it. Good suggestion to have the odd treat and something to look forward to. May I suggest that you tell the family that you are struggling and enlist their help? Most of all talk to us on here, we know what it is like, the doctors and nurses don't. Ask for a thyroid test when you go back. I was so tired but found out that my thyroid does not work properly and have medication for that which has helped me. Good luck and let us know how you progress, even the longest road starts with a single step. Take care 😉
 
Thank you so much for all of your kind responses. I didn't realise just how kind and thoughtful you all are. I have cried reading all your messages......first Northie set me off then Redkite, then Laura......I could go on....lol. Not much make up left to remove now!!! But yes 'burnout' is the word I was probably looking for. I just feel so overwhelmed by it all right now that I just can't see past everything to get around to doing what I need to, to get back on track. So I have been thinking, I am off work tomorrow so am going to have a potter about day. On Saturday I am going to my mums on my own to spend some quality time with her. On Sunday it's my nephews 16th birthday so I am going to his party with Sophie. Then we shall travel back home. On Sunday evening I am going to sit hubby and daughter down and tell them exactly what I am feeling about my diabetes. And for now that'll be it as you say baby steps and I feel I need to do it one day at a time. But again thank you to ALL of you. :D
 
Sounds like a great plan Cat, hope all goes well 🙂

Thank you Northie, it's nice when people can empathise. I don't feel quite on my own with this. I am going to enjoy this weekend, I have been looking forward to it for ages. I love my nephew so much. He has a lot of disabilities and is one of the most precious people in the world to me. His 16th birthday on Sunday will be a good one.but I promise I'll keep you updated on how things are instead of nursing them on my own. :D
 
Thank you Northie, it's nice when people can empathise. I don't feel quite on my own with this. I am going to enjoy this weekend, I have been looking forward to it for ages. I love my nephew so much. He has a lot of disabilities and is one of the most precious people in the world to me. His 16th birthday on Sunday will be a good one.but I promise I'll keep you updated on how things are instead of nursing them on my own. :D

I will be round to find out why if you don't! 😉 Have a great weekend 🙂
 
Hope you have a great weekend Cat and come back feeling rejuvenated! 🙂
 
Baby steps sound good to me ! The big "D" is a right ------ at times. Please keep at it. I used to love the young ones when they said "Am a Glaswegine". Good stuff flolks from Scotland 😉
 
Take heart

About 20 years ago I was diagnosed with FH [familial hypercholesterolaemia) a genetic disorder characterised by high cholesterol levels.

I was a bit bewildered the consultant told me if I had not been diagnosed my chances of living past 60 was 50/50 [I'm now 66] the dietician advised me not to be too rigid with my diet [low fat] and to have the occasional treat otherwise you reach the 'burnout' stage.

I have carried this advice with me since being diagnosed as T2, whilst I eat sensibly I have very small treats e.g I am partial to the small ice cream sticks, I do eat one square of chocolate, for me it stops me going of the rails, for me it works, my BS self test average is 7 my Hba1c is 46 mmol/ml, I exercise regularly.

OK I have T2 but it does not run my life, I control it, you have to be positive.

Good luck and keep well🙂
 
Your weekend sounds lovely. Good to hear you being so positive. Hope it is absolutely superb and you have a great time and enjoy yourself. Take care 🙂
 
Have a great weekend. Big hugs
 
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