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Hi. Type 1½??

AmandaPanda said:
We don't
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Niether do mine.
Last year I had bloods done in my A&E and few weeks later I had more bloods done at my GP and one of the liver results was abnormal,but GP did not have those either so could not see if they had been abnormal a few weeks earlier. Had blood repeated by GP and fortunately those came back normal.
 
grovesy said:
Not all areas get hospital tests on NHS app results. Some only get the GP ones.
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Hence the and/or. If they’re not on the NHS app, the GP should have them on record.

Also, although my NHS app doesn’t have hospital tests under the Tests section, it does have a Documents section and consultant letters are in there, which mention the results of tests, so worth checking there.
 
Soooo I found it in docs, you were right Inka ... in January my cPeptide was 0.71, with GAD antibody over 2000.
 
Inka said:
Hence the and/or. If they’re not on the NHS app, the GP should have them on record.

Also, although my NHS app doesn’t have hospital tests under the Tests section, it does have a Documents section and consultant letters are in there, which mention the results of tests, so worth checking there.
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They were not available on the surgery system.
 
grovesy said:
They were not available on the surgery system.
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I find any tests performed by the NHS are available to my GP.
Any tests not requested by the GP surgery are rarely in a nice readable format. They are usually just included within a copy of the letter from the hospital consultant within the documents.
It may take some time for these to be uploaded (they are still sent as paper via snail mail rather than electronically).
There is no guarantee a GP will read them as I discovered when a blood test requested by my GP came back as anaemic. Even though I went to see th doctor in person with my arm in a sling and discussed the second surgery I had had on it, he didn't link the anaemia to the operation.

Tests performed privately are rarely joined up - the only way an NHS doctor sees these is when I show them any letters I receive.
 
AmandaPanda said:
Soooo I found it in docs, you were right Inka ... in January my cPeptide was 0.71, with GAD antibody over 2000.
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Good that you have your numbers @AmandaPanda

Hopefully the internet will give you some way to interpret your results. Though I think they can be quite tricksy and hard to understand?
 
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Inka said:
What was the measurement unit? There’s an Exeter chart here but you need to watch/check the units:

C-Peptide Exeter Clinical Laboratory International

www.exeterlaboratory.com www.exeterlaboratory.com

.
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It's 0.71 nmol, which seems pretty high. Although I was told that I didn't need to fast, and to take all meds as usual (Gliclazide, metformin and Rinvoq (immunosuppressant known to suppress pancreas antibodies)). Not sure how accurate the test is under those conditions. I'm going for another blood test on Monday morning and I'll be fasting and not taking any meds!!
 
I was also told that my Cortisol initially was low, but was OK on the Short Synacthen test. Again, I wasnt told to fast, took all my usual meds and was on immunosuppressants that also suppress adrenal gland antibodies.
The Dr at the hospital won't let me do that test again, he didn't even know what the immunosuppressants were, but said its not worth it.
 
Do you know if they tested for other auto-antibodies @AmandaPanda ? - my T1 diagnosis was a result of a high IA2 reading (with some GAD too) - that one is usually more prevalent in youngsters, but I was 47 when diagnosed so there is no hard and fast answer - sorry to hear about how your last appointment went 😡
 
mashedupmatt said:
Do you know if they tested for other auto-antibodies @AmandaPanda ? - my T1 diagnosis was a result of a high IA2 reading (with some GAD too) - that one is usually more prevalent in youngsters, but I was 47 when diagnosed so there is no hard and fast answer - sorry to hear about how your last appointment went 😡
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Tt IgA was <0.2 u/ml
 
They should check for IA2 and ZnT8 too

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It's worth asking for another test IMO - My GP requested the lot and I'm so glad she did
 
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