Hi, I am 3 days in waiting 6 weeks for T1 to be confirmed. My blood test has to go to Devon and 6 weeks to get a result of either T1 or 2. I would like to download the Diabetes tracker app to help keep a record but cannot find a link anywhere. Does anyone know where I can find it?
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Hello
- Thread starter JamietDE6
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- Relationship to Diabetes
- Type 1
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- He/Him
Welcome to the forum @JamietDE6
Do you mean a specific diabetes logging app (there are lots!).
Many members here like mySugr, but there are many alternatives. Or do you mean the NHS app? Most phones/tablets have a store of apps you can search.
How is your diabetes being treated in the meantime? Have you been given insulin? Or a different sort of medication?
How did your diagnosis come about? Have you been losing weight without meaning to?
Do you mean a specific diabetes logging app (there are lots!).
Many members here like mySugr, but there are many alternatives. Or do you mean the NHS app? Most phones/tablets have a store of apps you can search.
How is your diabetes being treated in the meantime? Have you been given insulin? Or a different sort of medication?
How did your diagnosis come about? Have you been losing weight without meaning to?
Hi
the app I have read about is the Diabetes U.K. one. I am using an alternative atm but wanted to see what that one was like.
my symptoms started almost 30 years ago but were limited to those associated with a hypo e.g trembling,confusion,sweating,nausea these were remedied by food and always occurred following exercise. Then a month or so ago there was a change. Extreme thirst, more frequent urination,blurred vision sudden weight loss, extreme tiredness. I also have itching to my legs. After a trip to the GP I was admitted as an emergency day case and am now on 12 units of insulin daily coupled with glucose and ketone monitoring if needed. The clinicians are at a loss at the moment as to why this has not been picked up before or why symptoms are now presenting as T1D. I have never been confirmed as diabetic previously.
I am baffled as to why it takes six weeks to get the blood work done? It’s all been a bit of a shock. I am an active person that exercises regularly and my weight whilst not perfect is not excessive. Grateful for any nuggets of wisdom for someone at my stage…. Thanks in advance.
the app I have read about is the Diabetes U.K. one. I am using an alternative atm but wanted to see what that one was like.
my symptoms started almost 30 years ago but were limited to those associated with a hypo e.g trembling,confusion,sweating,nausea these were remedied by food and always occurred following exercise. Then a month or so ago there was a change. Extreme thirst, more frequent urination,blurred vision sudden weight loss, extreme tiredness. I also have itching to my legs. After a trip to the GP I was admitted as an emergency day case and am now on 12 units of insulin daily coupled with glucose and ketone monitoring if needed. The clinicians are at a loss at the moment as to why this has not been picked up before or why symptoms are now presenting as T1D. I have never been confirmed as diabetic previously.
I am baffled as to why it takes six weeks to get the blood work done? It’s all been a bit of a shock. I am an active person that exercises regularly and my weight whilst not perfect is not excessive. Grateful for any nuggets of wisdom for someone at my stage…. Thanks in advance.
Bruce Stephens
Well-Known Member
- Relationship to Diabetes
- Type 1
Which is another reason to suspect type 1 rather than type 2.
Leadinglights
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- Type 2
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- She/Her
I think the reason the test takes so long is there is only one or two labs who do them and there had been a huge increase increase in possible diagnoses of Type 1 following covid infection. Also the results need specialist interpretation.
This describes the test but does say a seven day turnaround but that looks optimistic since you are being told 6 weeks. https://www.exeterlaboratory.com/test/c-peptide-plasma/
This describes the test but does say a seven day turnaround but that looks optimistic since you are being told 6 weeks. https://www.exeterlaboratory.com/test/c-peptide-plasma/
Hi
many thanks for that, very interesting and comprehensive explanation on the link. Mine has gone to Exeter so i will wait and see….
rebrascora
Well-Known Member
- Relationship to Diabetes
- Type 1
- Pronouns
- She/Her
Hi and welcome from me too.
It took 6 weeks for my GAD antibody result to come back and that was pre Covid. The C-peptide test was back in a couple of weeks if not less. Some tests are more specialized and therefore take longer, the important thing is that you have been started on insulin..... Which one have they given you and how are you managing both practically and emotionally.... It is all a bit overwhelming at first but it really does get easier. I am another late starter as I got my diagnosis nearly 4 years ago at the age of 55 and there are quite a lot of others here on the forum who developed it later in life. I just thank my lucky stars it didn't hit me as a teenager and I haven't had to spend the majority of my life managing it and my heart goes out to parents whose young children are diagnosed.
Anyway, delighted that you have found the forum because it is a goldmine of knowledge and practical advice and support from people who have been there and got the T-shirt. I found it incredibly useful to fill in the blanks in my mind where the info the nurses gave me went in one ear and out the other. In fact members of the forum here recognized that I was Type 1 before my health care professionals did and before I had the blood tests. Like many others here, I was initially assumed to be Type 2 and started on oral meds before I was eventually started on insulin and then the consultant authorized the blood tests.
Do shout up with any other questions you have. I didn't even know that Diabetes UK had an app for logging readings etc. Most people here used to use MySugr app I believe although I started with a different one, but I imagine most of us now log everything on our sensor app (ie Libre or Dexcom or other CGM) or perhaps pump apps for those with an insulin pump. I am guessing they haven't given you a Libre sensor yet if they are waiting for confirmation of Type. You could apply to Abbott Laboratories for a free 14 day trial of their sensor. The only thing you need is a diabetes diagnosis and an appropriate phone and there should be a list of compatible phones on their website. If you are Type 1, you should get it on prescription, but no harm in taking advantage of the free trial in the meantime.
Anyway, just wanted to say hello and please make yourself at home here..... If you fancy getting to know us a bit better, come and join us regulars on the "Group 7-day waking average" thread, where we post our waking reading each day and exchange a bit of chat or banter or have a good moan about the fickleness of diabetes and our erratic levels.... or just occasionally celebrate when we get really good results. It is a bit like a virtual all day coffee morning. Sometimes just touching base and comparing notes with others who are also facing the same challenges can make it all a little easier. I will copy a link to it below, if you fancy joining us, but no pressure if that isn't your thing.
It took 6 weeks for my GAD antibody result to come back and that was pre Covid. The C-peptide test was back in a couple of weeks if not less. Some tests are more specialized and therefore take longer, the important thing is that you have been started on insulin..... Which one have they given you and how are you managing both practically and emotionally.... It is all a bit overwhelming at first but it really does get easier. I am another late starter as I got my diagnosis nearly 4 years ago at the age of 55 and there are quite a lot of others here on the forum who developed it later in life. I just thank my lucky stars it didn't hit me as a teenager and I haven't had to spend the majority of my life managing it and my heart goes out to parents whose young children are diagnosed.
Anyway, delighted that you have found the forum because it is a goldmine of knowledge and practical advice and support from people who have been there and got the T-shirt. I found it incredibly useful to fill in the blanks in my mind where the info the nurses gave me went in one ear and out the other. In fact members of the forum here recognized that I was Type 1 before my health care professionals did and before I had the blood tests. Like many others here, I was initially assumed to be Type 2 and started on oral meds before I was eventually started on insulin and then the consultant authorized the blood tests.
Do shout up with any other questions you have. I didn't even know that Diabetes UK had an app for logging readings etc. Most people here used to use MySugr app I believe although I started with a different one, but I imagine most of us now log everything on our sensor app (ie Libre or Dexcom or other CGM) or perhaps pump apps for those with an insulin pump. I am guessing they haven't given you a Libre sensor yet if they are waiting for confirmation of Type. You could apply to Abbott Laboratories for a free 14 day trial of their sensor. The only thing you need is a diabetes diagnosis and an appropriate phone and there should be a list of compatible phones on their website. If you are Type 1, you should get it on prescription, but no harm in taking advantage of the free trial in the meantime.
Anyway, just wanted to say hello and please make yourself at home here..... If you fancy getting to know us a bit better, come and join us regulars on the "Group 7-day waking average" thread, where we post our waking reading each day and exchange a bit of chat or banter or have a good moan about the fickleness of diabetes and our erratic levels.... or just occasionally celebrate when we get really good results. It is a bit like a virtual all day coffee morning. Sometimes just touching base and comparing notes with others who are also facing the same challenges can make it all a little easier. I will copy a link to it below, if you fancy joining us, but no pressure if that isn't your thing.
Bruce Stephens
Well-Known Member
- Relationship to Diabetes
- Type 1
I don't think they do. Or if they do they're hiding it really well, since surely one of us would have heard of it?
Many thanks for this information and I will have a think about the joining the coffee morning. I am still trying to figure lots of stuff out through the brain fog. This looks like a very useful place to get some insight
Eddy Edson
Well-Known Member
- Relationship to Diabetes
- In remission from Type 2
If you search around you'll find an old "Diabetes UK Tracker" app from DUK but it seems to be defunct now.
grovesy
Well-Known Member
- Relationship to Diabetes
- Type 2
They did many years ago but with drew it also many years ago . It was not that good.
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
Yup I reviewed it back in the day
D-Tracker Review - Diabetes UK iPhone App
Because no two days with type 1 diabetes are the same. Except when they are. The ups and downs of life with T1D.
Unfortunately I think the relentless mobile operating system upgrades (and consequent requirements/costs to upgrade the app) kinda did for it in the end.
Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
- Pronouns
- She/Her
I really don't know why these tests take so long as the method used is very quick as it is an enzyme assay for which these days there are kits for and would only take a few hours to complete and are not expensive £15 per test (according the the NHS website) for GAD antibodies.
I often think it adds to the mystique that the medical profession like to portray.
trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
Well - you know the Path Lab at Exeter Hospital - I'd imagine they have all the hospital's own tests to do as well as those for however many GP surgeries in their catchment area, as well as GAD antibody and C-peptide tests for all and sundry. Those not from in their catchment area will not have their email or postal addresses on their system already hence will take slightly longer than local ones to with the results. Not a massive delay I agree but there again if done properly the blood has to be frozen within a very short time of taking it so has to be transported frozen and presumably thawed out to test it so it's all time sensitive rather than a quick run of the mill normal same day test like HbA1c or TSH, PSA etc.
SB2015
Well-Known Member
- Relationship to Diabetes
- Type 1
Welcome to the forum @JamietDE6 Very pleased that you have found us.
Your journey definitely sounds like T1 with the symptoms that you describe. It is a lot to take on board at the start. it sounds like your levels were pretty high at diagnosis so your team will want to work with you to bring them down gradually. They will then work with you to learn how to make adjustments to your own doses based on the amount of carbohydrates you choose to eat at each meal.
The tests that they have done will show how much insulin you are still producing (c-peptide) and whether the Gad antibodies are present, which are responsible for destroying the beta cells which make the insulin.
As questions arise, just ask. Nothing is thought of as silly on here, and there is loads of experience to tap into.
Your journey definitely sounds like T1 with the symptoms that you describe. It is a lot to take on board at the start. it sounds like your levels were pretty high at diagnosis so your team will want to work with you to bring them down gradually. They will then work with you to learn how to make adjustments to your own doses based on the amount of carbohydrates you choose to eat at each meal.
The tests that they have done will show how much insulin you are still producing (c-peptide) and whether the Gad antibodies are present, which are responsible for destroying the beta cells which make the insulin.
As questions arise, just ask. Nothing is thought of as silly on here, and there is loads of experience to tap into.
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