Have you had high ketone but blood glucose is normal regularly?

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s14ali

s14ali

Active Member
Relationship to Diabetes
Type 1
This is very odd one. (relates to my previous post but new question)

I used a blood ketone monitor for the first time (brand new), it revealed between 2.0mmol/L and 3.6mmol/L. (Very risky)
I used a blood glucose monitor, it revealed between 6.0mmol/L and 8.0mmol/L (normal range)

I felt fine as normal. It's been like this for few weeks. The question is how?? I don't go to hospital.

As we know that ketone would be high if the blood glucose is very high above 10mmol/L.

I've seen a diabetes nurse and she was confused and said it's not possible. There are possible several factors that my body has been changed and it's sort of new way of producing something in between ketone and blood glucose. I don't know.
 
s14ali said:
This is very odd one. (relates to my previous post but new question)

I used a blood ketone monitor for the first time (brand new), it revealed between 2.0mmol/L and 3.6mmol/L. (Very risky)
I used a blood glucose monitor, it revealed between 6.0mmol/L and 8.0mmol/L (normal range)

I felt fine as normal. It's been like this for few weeks. The question is how?? I don't go to hospital.

As we know that ketone would be high if the blood glucose is very high above 10mmol/L.

I've seen a diabetes nurse and she was confused and said it's not possible. There are possible several factors that my body has been changed and it's sort of new way of producing something in between ketone and blood glucose. I don't know.
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Do you eat very low carb (keto)? That produces ketones to fuel your body - hence the name keto which is short for ketosis
 
42istheanswer said:
Do you eat very low carb (keto)? That produces ketones to fuel your body - hence the name keto which is short for ketosis
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I do eat low carb but I split the food portion and adjust the insulin dosage carefully to avoid the ketone throughout a day.
 
s14ali said:
I do eat low carb but I split the food portion and adjust the insulin dosage carefully to avoid the ketone throughout a day.
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That’s probably your answer - or part of it, at least. Too few carbs cause ketones. I wouldn’t want them too high because that’s a potential risk if you get ill or forget your insulin. You could try eating a few more carbs and see how that goes.
 
travellor said:
How many grams of carbs in a typical day?
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15-20grams of carb for each meal. I would say 100-150grams of carbs per day, I know this is low carb but it's best optimal level for me throughout the day as I can focus on things without feeling tired,etc. I've tried to increase the number of carbs and it increased blood glucose above 10mmol/L even I did correct insulin dosage. It seems that my body is not responding to it very well or something.
 
Inka said:
That’s probably your answer - or part of it, at least. Too few carbs cause ketones. I wouldn’t want them too high because that’s a potential risk if you get ill or forget your insulin. You could try eating a few more carbs and see how that goes.
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I did try to increase the number of carbs and it increased blood glucose above 10mmol/L even I did correct insulin dosage. It stayed slightly high blood glucose for two days then I quickly switched back to moderate low carb. It seems normal.
 
Here you say you have around 50g per day?:

https://forum.diabetes.org.uk/board...-blood-glucose-is-normal.105606/#post-1251345

Low carb will often cause temporary insulin resistance, which is probably why you see higher numbers when you add more carbs. That should settle down as your insulin sensitivity returns to normal. You don’t need to eat a lot of carbs but upping them a little should reduce the ketones. It might seem counter-intuitive, but a few more carbs can actually make control easier.
 
Just to add - it will take a little longer than two days to adjust back to a more normal sensitivity. From memory, I think you were originally misdiagnosed as Type 2? Have you done a DAFNE course to help with carb counting and insulin use?

There is no “correct insulin dose”. It can vary and will need regular tweaks.
 
s14ali said:
15-20grams of carb for each meal. I would say 100-150grams of carbs per day,
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15g per meal is 45g per day. Where are the other 55-105g coming from? Under 130g is low carb, I get ketones any time I don’t eat many carbs. Your ketones will be being caused by your diet.
 
Inka said:
Here you say you have around 50g per day?:

https://forum.diabetes.org.uk/board...-blood-glucose-is-normal.105606/#post-1251345

Low carb will often cause temporary insulin resistance, which is probably why you see higher numbers when you add more carbs. That should settle down as your insulin sensitivity returns to normal. You don’t need to eat a lot of carbs but upping them a little should reduce the ketones. It might seem counter-intuitive, but a few more carbs can actually make control easier.
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Ooop, I don't know what happened there. I think I typed it by mistake. 😳 Around 150grams per days.
 
Lucyr said:
15g per meal is 45g per day. Where are the other 55-105g coming from? Under 130g is low carb, I get ketones any time I don’t eat many carbs. Your ketones will be being caused by your diet.
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Ah, sorry for confusion. Let me clarify my comment, I usually eat 15g-20g gram per meal (3 times - one morning, one lunch and one evening). I didn't realise that I get ketone dues to insufficient glucose/insulin even no symptoms like difficult breathing or heavily dizzy. I have few symptoms when high/low blood glucose. I knew what ketone is but never had a ketone before. When I found out some answers from you and other people. Therefore, I started to increase a number of meals (e.g mid-meal, mini snack, main meal), up to 5/6 times. Furthermore, I will speak with specialist diabetes nurse in month and confirm it if I had the similar problem with carb/ketone, because my diabetes type 1 is quite unusual and complex in between blood glucose and ketone production.
 
s14ali said:
Furthermore, I will speak with specialist diabetes nurse in month and confirm it if I had the similar problem with carb/ketone, because my diabetes type 1 is quite unusual and complex in between blood glucose and ketone production.
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Not sure I followed all of that but sounds like you have a plan. What do you mean about type 1 being unusual and complex? It’s not that unusual to have t1, especially on a diabetes forum.
 
s14ali said:
Ah, sorry for confusion. Let me clarify my comment, I usually eat 15g-20g gram per meal (3 times - one morning, one lunch and one evening). I didn't realise that I get ketone dues to insufficient glucose/insulin even no symptoms like difficult breathing or heavily dizzy. I have few symptoms when high/low blood glucose. I knew what ketone is but never had a ketone before. When I found out some answers from you and other people. Therefore, I started to increase a number of meals (e.g mid-meal, mini snack, main meal), up to 5/6 times. Furthermore, I will speak with specialist diabetes nurse in month and confirm it if I had the similar problem with carb/ketone, because my diabetes type 1 is quite unusual and complex in between blood glucose and ketone production.
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By the time you have difficulty breathing, you’d be very close to DKA. Lesser amounts of ketones can cause tiredness, nausea, a general feeling of being unwell, and a foggy head.

Ketones are produced if you don’t have enough carbs. That’s usual for Type 1s. As you say you’re adding more carbs, that should help. You’ll also be able to expand the range of foods you eat, and hopefully that will help your tiredness too if it’s related to lack of vitamins or simply not eating enough.
 
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