Fed up

[Ref]

I really recognise myself in some of the things you are saying. What changed my outlook was going on a DAFNE course - not what we were taught but talking to the others on the course and seeing and talking about their food and BG diaries (an integral part of the course). It made me realise that my BGs weren't that bad - even with the no pancreas and delayed digestion difficulties - so I could stop being so hard on myself and strict with what I do and don't eat and, as TW said, going a little high for a couple of hours isn't the end of the world.

I still have a double take if I count the carbs and they seem high but that is mainly because I know my digestion goes weird with more than 40g of carbs at once. But that feeling is becoming less and less as I feel more able to handle it.

Be brave - you can do it, you've earned that kit kat chunky.

 

[Kaylz]

I guess I just want someone to tell me that it does get easier and soon I won't even think about it and one day I'll sit and just think you know what I want that kit kat chunky and I'm just going to have it, I know it will get easier for me, hey all of us should plan a meeting in the future and gather at a cake fair or something then I wouldn't feel like I had a choice I couldn't be the only one left out after all 🙂 thank you 🙂 x

 

[Robin]

I guess I just want someone to tell me that it does get easier and soon I won't even think about it and one day I'll sit and just think you know what I want that kit kat chunky and I'm just going to have it

Yes exactly what you said! It does get easier, you won't think about it, and you will eat what you want. I've just made a Black Forest gateau for OHs birthday. I'll bolus carefully up front for a slice, my best estimate, then when I've finished and everyone else is having a second slice, I'll think, what the hell, guesstimate a bit more bolus, and have another piece. I wouldn't do that every day, but then nor would I if I didn't have diabetes!
I do watch my diet, making sure I'm having healthy veg, etc etc, what everyone is supposed to do, Ds and non Ds alike, though I can bet you there's a hell of a lot more of us Ds taking care of their general diet than non Ds - see, it does us one favour at least!

 

[Flutterby]

I know I haven't had more than 40g carbs in one meal at a time in weeks, I don't know why I feel like this I don't know if it's due to a lecture I got from a fellow type 1 or not but it really is starting to get to me x

I'm sending hugs, Diabetes is hard work and I wonder if there is some other treat you could give yourself which isn't food related? I think one of the education courses might help you feel more confident but in the meantime would a magazine or a book or a nice coffee make you feel special and worth it? I think you sound low in yourself, be good to yourself in whatever way you can x

 

[Kaylz]

I'm sending hugs, Diabetes is hard work and I wonder if there is some other treat you could give yourself which isn't food related? I think one of the education courses might help you feel more confident but in the meantime would a magazine or a book or a nice coffee make you feel special and worth it? I think you sound low in yourself, be good to yourself in whatever way you can x

I would love to go and treat myself to a 'luxury' coffee or something but to get that I'd have to travel over 30 miles as for magazines that's a no no I will just get back into the obsession with buying them all again - pick me up, real life I used to have to buy them every week haha I think I might go on Amazon and treat myself to a dvd though A Street Cat Named Bob 🙂 I've got the books and really want the dvd 🙂 x Thank You 🙂 x

 

[Flutterby]

I would love to go and treat myself to a 'luxury' coffee or something but to get that I'd have to travel over 30 miles as for magazines that's a no no I will just get back into the obsession with buying them all again - pick me up, real life I used to have to buy them every week haha I think I might go on Amazon and treat myself to a dvd though A Street Cat Named Bob 🙂 I've got the books and really want the dvd 🙂 x Thank You 🙂 x

Oh goodness thirty miles is too far for coffee. Get the DVD, it's great, I watched it a few days ago. Really enjoyed it.x

 

[Kaylz]

Oh goodness thirty miles is too far for coffee. Get the DVD, it's great, I watched it a few days ago. Really enjoyed it.x

Certainly is too far haha, oh great 🙂 don't tell me anything but I cried at the books (I know but some parts were just so sad) will I cry during the film x

 

[Lucy Honeychurch]

Hi Kaylz, when I saw my dietician today we discussed anxieties associated with this condition and she told me there is access to psychological assistance if I need it, so definitely ask your DSN when you go tomorrow, hopefully your hospital provides a similar service xx

 

[everydayupsanddowns]

I guess I just want someone to tell me that it does get easier and soon I won't even think about it and one day I'll sit and just think you know what I want that kit kat chunky and I'm just going to have it, I know it will get easier for me, hey all of us should plan a meeting in the future and gather at a cake fair or something then I wouldn't feel like I had a choice I couldn't be the only one left out after all 🙂 thank you 🙂 x

Yes it does. Much, much easier. And it will get easier more quickly the more you a) trust your own instincts b) learn from your mistakes and c) learn to roll with it (aka cut yourself a little slack now and then).

Mostly this will happen so slowly you won't notice it - but you can specifically target certain things. From what I can tell you have a bit of a soft spot for KitKat chunky (you may have mentioned it once 😛)

So one day soon, if i were you I would just to myself *right* today is the day....

Have my normal lunch, with my normal lunch dose, but also add enough insulin to cover the 28g of carbs in the KitKat chunky. Then I would NOT test (unless I felt hypo) until 4 hours after lunch. That result would give a decent indication about whether the dose had more or less worked.

If it was higher than my pre-lunch BG, (but my lunch usually behaves OK), I might try another experiment allowing slightly more for the KitKat.

Then once I've got fairly happy that I can have one of those whenever I want one, I *might* begin to look at whether or not my BG was spiking up significantly at 2 hours after eating, and possibly experiment with pre-bolusing, or hanging on for 15-20 minutes before I ate the chunky.

The thing is... these BG checks are not a judgement they are ONLY information. Some things that you really like you will be prepared to put the effort in to work out a decent dose/timing strategy. And those are worth working for 🙂

 

[Kaylz]

Hi Kaylz, when I saw my dietician today we discussed anxieties associated with this condition and she told me there is access to psychological assistance if I need it, so definitely ask your DSN when you go tomorrow, hopefully your hospital provides a similar service xx

Thanks Lucy I definitely will be asking 🙂 I'm not sure if I feel 100% confident to tell Paul everything so I've got a sheet of paper with everything written on that if I don't feel confident saying it I will just give him it to read as if I start crying I don't think I will be able to stop lol and I'm generally not a weak person but I guess this just changes you xx

 

[Lucy Honeychurch]

That's a good idea, good luck and let us know how you get on xx

 

[Northerner]

Thanks Lucy I definitely will be asking 🙂 I'm not sure if I feel 100% confident to tell Paul everything so I've got a sheet of paper with everything written on that if I don't feel confident saying it I will just give him it to read as if I start crying I don't think I will be able to stop lol and I'm generally not a weak person but I guess this just changes you xx

Good idea Kaylz 🙂

 

[Kaylz]

Thanks guys I'm full of good ideas me lol 🙂 and thanks I will let you all know how it goes 🙂 x

 

[Kaylz]

Yes it does. Much, much easier. And it will get easier more quickly the more you a) trust your own instincts b) learn from your mistakes and c) learn to roll with it (aka cut yourself a little slack now and then).

Mostly this will happen so slowly you won't notice it - but you can specifically target certain things. From what I can tell you have a bit of a soft spot for KitKat chunky (you may have mentioned it once 😛)

So one day soon, if i were you I would just to myself *right* today is the day....

Have my normal lunch, with my normal lunch dose, but also add enough insulin to cover the 28g of carbs in the KitKat chunky. Then I would NOT test (unless I felt hypo) until 4 hours after lunch. That result would give a decent indication about whether the dose had more or less worked.

If it was higher than my pre-lunch BG, (but my lunch usually behaves OK), I might try another experiment allowing slightly more for the KitKat.

Then once I've got fairly happy that I can have one of those whenever I want one, I *might* begin to look at whether or not my BG was spiking up significantly at 2 hours after eating, and possibly experiment with pre-bolusing, or hanging on for 15-20 minutes before I ate the chunky.

The thing is... these BG checks are not a judgement they are ONLY information. Some things that you really like you will be prepared to put the effort in to work out a decent dose/timing strategy. And those are worth working for 🙂

Mike it's only 22.8g carbs, I have had 2 since dx, one of which I had to do a 2 hour test as my needle came out my thigh too soon 😱 so I wanted to make sure I was ok I can't remember exactly what my starting point was but it was 8.something, 2 hours later I was 4.7 and 4.5 hours later I was 7, not ideal but I was higher pre meal, that was before my ratios changed though x

 

[silentsquirrel]

Kaylz, why not have just half the bar? About the same weight as a couple of squares of chocolate.

 

[everydayupsanddowns]

Mike it's only 22.8g carbs, I have had 2 since dx, one of which I had to do a 2 hour test as my needle came out my thigh too soon 😱 so I wanted to make sure I was ok I can't remember exactly what my starting point was but it was 8.something, 2 hours later I was 4.7 and 4.5 hours later I was 7, not ideal but I was higher pre meal, that was before my ratios changed though x

Oops! Sorry. Got myself in a muddle with the decimal point!

Your levels are AMAZING!

 

[Kaylz]

Oops! Sorry. Got myself in a muddle with the decimal point!

Your levels are AMAZING!

I feel like they are awful, I've been bobbing about in the 7's and 8's for a few days now and it's really starting to get to me as this can't be good for you x

 

[everydayupsanddowns]

7s and 8s are absolutely fine! If you averaged 7-8 and were not wildly swinging all over the place you would most likely have an A1c in the 6-7s which would be just about perfect as far as your long term health goes.

You are doing brilliantly! Have 100 marvellousness points

 

[Rosiecarmel]

I feel like they are awful, I've been bobbing about in the 7's and 8's for a few days now and it's really starting to get to me as this can't be good for you x

Your levels are definitely NOT awful. They are pretty much perfect.

"
Adults with Type 1 diabetes (NICE 2015)

• on waking: 5–7mmol/l
• before meals at other times of the day: 4–7mmol/l
• 90 minutes after meals: 5–9mmol/l."

They're the goals and you're smashing them. The risk of diabetic complications comes when your levels have been high or uncontrolled for periods of time. Your hba1c firmly puts you in the "non diabetic range" which means your risk of complications is very low!

 

[New-journey]

You are doing amazingly well, and great idea to write everything down for Paul. Crying is a natural response and totally understandable, I cried the other day when I experienced the first time a health
professional being kind to me!
@everydayupsanddowns has a great strategy for how to enjoy the chunky Kitkat, why not try, you do deserve it! Sending hugs (((((hugs))))))