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Fed up with T1 lately :(

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Kim23

Well-Known Member
Relationship to Diabetes
Type 1
Ever get that fed up feeling with eveything to do with your diabetes? :(

I've got that right now!

I'm struggling to get good control of late due to all the stress around me. I am in process of buying a flat and it's not been going smoothly but hopefully moving next weekend!

But biggest thing that tipped me was my eyes! I had my first laser in my right eye back in January 2012 then at my 6 weeks check up post that got told I need a second laser treatment in that eye plus now a treatment in my left eye..I was ok with this as caught early. But by end April I still hadn't received an appointment so I phoned..they had changed systems and had lost all the waiting lists for appointments!!! (2nd time NHS has forgotton me this year lol) So a date was set..1 hour before my appointment I get a phone call to say doc is sick so cancelled..fair enough you think so I booked a 2nd date.

..SURPRISE the doc was sick AGAIN! so cancelled and rebooked for tuesday just gone. I go to it as I would normally but as he was checking my eyes beforehand he said I have a small bleed in my left eye and I should of had treatment sooner rather than now, well when I kind of got edgy at this (as would anyone) and explained I would of 3months ago if the doctor hadn't gone sick twice and kept rescheduling. The doctor then said it was him..so basically he was telling me I should of had the treatment earlier but is taking no fault for it not being done earlier due to his sickness...I am so angry about this!

He went ahead with the treatment in both eyes but couldn't do it all as wouldn't be possible so I have to have a further 2 treatments 3 weeks apart. My work are quite flexible but all of this could of been prevented :(

When I have spoken and updated my family and friends they were horrified I was not told to NOT do a thing as changing pressures in my eyes from feeding the cat or carrying out the bins could accelerate the bleed and cause blindness until it can be sorted..I am so so scared about this but surely the doctor should of given me some warnings as to what to not do until it's sorted.
 
Hi Kim, sounds like you have been really messed about, very sorry to hear this :( I think especially when it is your eyes you want things to be dealt with as soon as possible, so to be given the runaround due to silly clerical errors and seemingly no-one else available to do the work when the doctor is off, is especially frustrating I can see why you are stressed!

I hope that the subsequent treatments go smoothly, you've had more than your fair share of delays over this. Hope the flat goes through and that you are all settled in by this time next week 🙂
 
Thanks Northerner..as it is my eyes esp I am terrified as I don't want to lose my sight as I'm far too young :(
 
Sorry to hear the appointment hoo hah Kim.

Maybe the Careline/NHS Direct could help with your queries about what to do after your treatment?
 
Hello Kim. I'm incredulous. You could try contacting the Patient Advice and Liaison Service (PALS) of your hospital trust, to make sure this doesn't happen to anyone else. But it won't help your situation, of course. You have my sympathy, anyway.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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