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CT scan ?

jtg1964

Well-Known Member
Relationship to Diabetes
Type 2
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She/Her
Hi
Im having an urgent CT scan in nxt 2 weeks.They are starting me on insulin next week. Going under care of diabetic nurses at the hospital. A yearvago diagnosed type 2...im under 8 stone. Overthinking maybe but worried it's could be pancreatic cancer.
Anyone else been in my situ?
 
@jtg1964 welcome to the forum. There are people on here who have required insulin and crean ( may have spelled incorrectly) as a result of a damaged or removed pancreas. Although you are bound to fear the worst be pleased that you are being checked quickly. I believe some of them may have had cancer but others may have had damage for other reasons. Their diabetes is referred to as type 3 and on the posts I have read they are knowledgeable and helpful.
I'm sure you will get posts and maybe some private messages , some thoughts are better expressed that way.

Whatever the procedures I hope the outcome is positive. If insulin is appropriate there are lots of type 1s and some type 2s who can give practical advice. I don't have enough knowledge to know if the result may be you are in fact type 1 but there will be people at the hospital who can advise.
 
Thank you for replying. I must say it's worrying but until I have results I know I shouldn't speculate.
Are you aware of the patches rather than injections. I don't mind paying but I would rather not inject?
 
Hi @jtg1964

Sorry to hear you need an urgent CT scan and I guess it will be a long two weeks to wait.
I think most of us would "overthink" what the results will be, so your not alone in that respect, it's easy for me and others to say, but try not to worry about what it "might" be at this stage.

Wishing you all the best for a positive outcome

Alan
 
Are you aware of the patches rather than injections. I don't mind paying but I would rather not inject?
Are you referring to glucose sensors? Like the libre? Those don’t deliver insulin.

Or do you mean patch insulin pumps like the Omnipod? Those deliver insulin but are very expensive and you’d need to have a hospital team willing to train and support you in using one and be familiar with injecting insulin as backup as well as competent with other things like carb counting
 
Thank you Alan. I don't have any symptoms but who knows. Yes a longb2 weeks indeed.Lookingvat the positives ❤️
 
Thank you for replying. I must say it's worrying but until I have results I know I shouldn't speculate.
Are you aware of the patches rather than injections. I don't mind paying but I would rather not inject?

I was diagnosed type 2 in July and take tablets. I'm now hba1c 44, I've learned a lot from this forum but have no personal knowledge using insulin although even people who hate jabs stress how fine the needles are. I'm sure you will get good advice from the hospital and tips here if you need insulin.
 
Are you referring to glucose sensors? Like the libre? Those don’t deliver insulin.

Or do you mean patch insulin pumps like the Omnipod? Those deliver insulin but are very expensive and you’d need to have a hospital team willing to train and support you in using one and be familiar with injecting insulin as backup as well as competent with other things like carb counting
I was thinking insulin pump.
 
I was thinking insulin pump.
If you were to go down the private insulin pump route (you’d be extremely unlikely to get one prescribed on the NHS from the outset) you’d still have to learn insulin injecting techniques (both the actual injections and calculating the doses), and be confident on doing them, insulin pumps can play up, or fail, and people on pumps always have insulin pens and needles as a back up.
 
Hello @jtg1964, I was diagnosed with Pancreatic Camcer back in late Oct '19. I had a malignant tumour which had engulfed my pancreas, blocked my bile duct and the build up of bile gave me early visual symptoms of jaundice: a noticeable yellow pallor. I had major surgery in Feb '20, it's referred to as a Whipple's Procedure and I came out of the anaesthetic with no tumour or pancreas. Now here I am as an insulin dependent patient, diagnosed Type 3c.

BUT just because your GP has arranged for you to have a scan does not mean you have PC. If you had some identifiable PC symptoms you would have been fast tracked straight to hospital for a scan that day, under the watchful eyes and care of appropriate Consultants and you would know the findings already. Your GP is doing a great job in checking all possibilities, ensuring nothing is overlooked and a scan of your pancreas might reveal any number of possibilities for pancreatic damage or problems - including PC but much more likely something else.

I am NOT medically qualified. I do understand it is stressful having what could be a "Sword of Damocles" hanging over you, waiting to feel (hear) horrible news. But that sword could be a feather! I waited 6 weeks for a formal diagnosis and a stent to open up the bile duct, then another 9 weeks before my Surgery. That time was with zero medication, just time getting me strong enough (ie medically fit enough as a 70 yr old male) for that surgery. Thoughout I was monitored and reassured the delay was wholly acceptable and time that could be beneficial for a best outcome. As I said, here I am.

IF it emerges that you have some sort of damage to your pancreas, then you might well gain a diagnosis as T3c and you might be treated as if T2 with oral meds or as if T1 and become insulin dependent. Regardless of the treatment you would be T3c, since the diagnosis of a diabetes type is a consequence of the cause (possible pancreatic damage in your case) and the treatment needed is whatever is needed.

Right now you are getting a little ahead of yourself, so try to relax about the future CT scan, look after yourself until then and trust your GP who I think is being very thorough. Certainly don't start planning how you might manage taking insulin and getting bogged down inside potential rabbit holes of pumps etc. I have no pancreas, have Multiple Daily Injections (MDI), take Creon in industrial quantities and am not even medically eligible for a pump after 5 years. Do keep us informed, I'll look out for when you share with us the outcome of your scan (if you still wish to) and until then please try to stay relaxed and calm. Difficult I know but very necessary.
 
It is good that you are getting a scan to hopefully rule out any pancreatic disease/damage. Has your doctor also considered that you might be Type 1 rather than Type 2 and done tests for that? If not it might be worth asking the nurses at the hospital clinic about that possibility.

Good luck with your scan but I too believe that it is a good thing that your GP is being thorough.
Please don't worry about starting insulin. The idea is daunting but the reality is much less of an issue. The needles are really, really tiny (about quarter of an inch long and not much thicker than a human hair) and the pens are very easy to use and we are here to support you with it's use whenever you need some reassurance or have any questions. Hopefully once the insulin starts to bring your levels down into range you will feel a lot better.
 
Hello @jtg1964, I was diagnosed with Pancreatic Camcer back in late Oct '19. I had a malignant tumour which had engulfed my pancreas, blocked my bile duct and the build up of bile gave me early visual symptoms of jaundice: a noticeable yellow pallor. I had major surgery in Feb '20, it's referred to as a Whipple's Procedure and I came out of the anaesthetic with no tumour or pancreas. Now here I am as an insulin dependent patient, diagnosed Type 3c.

BUT just because your GP has arranged for you to have a scan does not mean you have PC. If you had some identifiable PC symptoms you would have been fast tracked straight to hospital for a scan that day, under the watchful eyes and care of appropriate Consultants and you would know the findings already. Your GP is doing a great job in checking all possibilities, ensuring nothing is overlooked and a scan of your pancreas might reveal any number of possibilities for pancreatic damage or problems - including PC but much more likely something else.

I am NOT medically qualified. I do understand it is stressful having what could be a "Sword of Damocles" hanging over you, waiting to feel (hear) horrible news. But that sword could be a feather! I waited 6 weeks for a formal diagnosis and a stent to open up the bile duct, then another 9 weeks before my Surgery. That time was with zero medication, just time getting me strong enough (ie medically fit enough as a 70 yr old male) for that surgery. Thoughout I was monitored and reassured the delay was wholly acceptable and time that could be beneficial for a best outcome. As I said, here I am.

IF it emerges that you have some sort of damage to your pancreas, then you might well gain a diagnosis as T3c and you might be treated as if T2 with oral meds or as if T1 and become insulin dependent. Regardless of the treatment you would be T3c, since the diagnosis of a diabetes type is a consequence of the cause (possible pancreatic damage in your case) and the treatment needed is whatever is needed.

Right now you are getting a little ahead of yourself, so try to relax about the future CT scan, look after yourself until then and trust your GP who I think is being very thorough. Certainly don't start planning how you might manage taking insulin and getting bogged down inside potential rabbit holes of pumps etc. I have no pancreas, have Multiple Daily Injections (MDI), take Creon in industrial quantities and am not even medically eligible for a pump after 5 years. Do keep us informed, I'll look out for when you share with us the outcome of your scan (if you still wish to) and until then please try to stay relaxed and calm. Difficult I know but very necessary.
 
Thank you for your kind reply. I take your reassurance and appreciate that you've had some very difficult times.Thank you for sharing.
I think your right the Specialist is being thorough and I appreciate that he is. I will take your advice and stay open minded. I know I've gone ahead of myself that's me all over...Deep breathes and see what occurs .
Will keep you posted re outcome.
Take care and thank you ive taken away a lot from your post ❤️
 
I had a few scans about a year ago, for my bladder and surrounding organs. They revealed something unexpected but not considered life threatening or limiting at this point.

When making the initial referral my GP said she would rather ask for urgent investigations up front, than regret not doing so, should something nasty be present. That you have no symptoms of pancreatic cancer should be a great comfort.

I'd urge you to take comfort in the urgency of your scan, and consider it a sign of good, compassionate care, rather then a sign to be very worried and speculate.

That may not help you sleep at night, but ti goes put another angle on why the two week pathway.

Please keep in touch and let us know how things transpire.
 
Thank you yes I take on your wise words. I agree I am being looked into.Im having a load of bloods as well you name it he's checking. I try not worry but my emotions are up and down. Will keep you posted. Thank you again x
 
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