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Can anyone help me, please?

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Barbara.Upton

New Member
Relationship to Diabetes
Type 2
I have Type 2 diabetes, with blood sugar readings between 8.2 and 18.7 .I am on medication (Metformin and Linagliptin and 6 other meds for various problems) but they don't seem to be doing much to reduce the sugar levels. Added to that I am a vegetarian, egg intolerant, soya intolerant, gluten intolerant and almond intolerant. I also suffer from IBS, Gastritis and Divercullitis. I have seen 4 "specialist" dieticians, as well as attending the XPERT diabetic course. I am drowning in information but one thing contradicts another and so am no better off. What I really need is some advice as to what I can eat, especially as the gastritis seems to rule out an awful lot of foods, e..g. fruits, leafy green veg. I am scheduled for a pre-op assessment in a few weeks and need to get the HbA1c level down (currently 69). Any advice wold be welcome. My GP advised that Diabetes UK and the forum would be my best course of action as the Gastroenterologist, ENT specialist, the dieticians keep telling me different things ....... please help.
 
Welcome Barbara....
Sorry to say, I can't help you as I have no experience of any of those conditions, but I'm sure there will be someone along who has...
 
I have Type 2 diabetes, with blood sugar readings between 8.2 and 18.7 .I am on medication (Metformin and Linagliptin and 6 other meds for various problems) but they don't seem to be doing much to reduce the sugar levels. Added to that I am a vegetarian, egg intolerant, soya intolerant, gluten intolerant and almond intolerant. I also suffer from IBS, Gastritis and Divercullitis. I have seen 4 "specialist" dieticians, as well as attending the XPERT diabetic course. I am drowning in information but one thing contradicts another and so am no better off. What I really need is some advice as to what I can eat, especially as the gastritis seems to rule out an awful lot of foods, e..g. fruits, leafy green veg. I am scheduled for a pre-op assessment in a few weeks and need to get the HbA1c level down (currently 69). Any advice wold be welcome. My GP advised that Diabetes UK and the forum would be my best course of action as the Gastroenterologist, ENT specialist, the dieticians keep telling me different things ....... please help.
Hi Barbara, sorry to hear you are having problems :( It can be especially difficult when you have other conditions and intolerances that mean you can't just follow what might be a good diet for your diabetes control. It might be helpful for the people here if you could give an idea of the kinds of meals you are eating. Are you testing before and one or two hours after eating to determine how well your body can tolerate your meal choices? Have a read of Test,Review, Adjust by Alan S if you are not sure how to do this. Do medications for your other conditions cause problems with your blood sugar control?
 
If you wish to reduce your Blood Glucose levels I would suggest you start testing. If you can obtain a BG test kit and start testing just before a meal and again two hours after. The difference in the BG levels will give you an indication of the effect the food has on your BG levels. You can then adjust your diet to lower the levels hopefully down towards the advised range. If you have to self finance the kit consisting of a meter and test strips it will cost between £20-25 for the basic kit. If you test regularly and often you will be able to build up a picture of the low carb foods which will reduce your blood glucose levels and therefore your HbA1c level. I would also obtain a copy of a book called Carb and Calorie Counter. This contains the carb values of most of the usual food items for differing portions. I have no idea which foods you should avoid as I am not familiar with some of your conditions but the book should give you values for the foods you know you can tolerate.
 
Yes, if we start from what you can eat without reacting, we can all pile in with ideas. What do you take for the gastritis? It’s unusual to have that as an active diagnosis in this age of proton pump inhibitors and stuff.

I’ll send Clockwork Dodo a message - she too has a slew of intolerances, so she may be able to help.
 
Hi Barbara, and welcome (and thanks Mike for the message) 🙂

As Mike says, I have a lot of food intolerances too, and although I'm not fully vegetarian I don't eat meat, so I know how difficult it must be for you. It's easier to list things I can eat than to list ones I can't, so if you are the same, do give us a list, as others have suggested, and we'll tell you which of the things on it will help lower your HbA1c and which are best avoided, though it does vary from person to person, so if you're not already testing your blood sugar regularly, getting yourself a testing kit is good advice.

My Mum has diverticulitis and I know the standard advice for that is to avoid nuts and seeds, but to experiment a bit with other things like seedless fruit and veg to see which you can tolerate (presumably not many in your case). I'm trying to think which things Mum and I can both eat, which wouldn't be too bad for a type 2 - carrots spring to mind, and also cheese and yogurt, very plain savoury biscuits like Ryvita if you can find gluten-free ones, small amounts of potato (boiled ones are best, they're lower in starch). But if you can eat dairy I'd eat as much as you can of that and fill up on fat so that you can cut carbs as much as possible. You won't gain weight or raise your cholesterol eating fat if you can reduce your carbs a lot at the same time, and your HbA1c will go down.

I shouldn't bother with the Carbs & Cals book though, tbh, because if you're anything like me, most of the meals in it aren't going to be things you can eat. I had a look at it in the hospital and I was turning the pages saying "no, can't eat that ... can't eat that ... can't eat that ... ". I find it easier to check the carbs in individual things I know I can eat rather than looking at whole meals I can't - you can do that using this website: http://www.calorieking.com/foods/ - just put in anything you eat and you can adjust the portion size in the results and then scroll down to see how many carbs it has in it.

I have controlled IBS - I came off my meds and manage it with diet, and it no longer effects me. Eating oats is supposed to help with that, and I think it's one of the things which helps me, as I have them for breakfast every day now - but not every diabetic can tolerate them without an increase in blood sugar, so you really need to test 2 hours after eating them to see what effect they have on you personally. The other thing which really helps me is liquorice - I eat a small piece (only a couple of grams of carbs) every day, and I drink peppermint and liquorice tea (I found peppermint on its own didn't work for me).

I have the same problem with specialists contradicting each other - the good ones are the ones who take on board what works for you and fit their advice in around your combination of conditions rather than expecting you to fit into their boxes. Don't let anyone tell you that you must eat things which you know you can't tolerate - we've found on this forum that if people eat foods to which they're sensitive, those foods raise their blood sugar more than any amount of carbs! For instance, I have a slight intolerance to eggs. Eggs are carb-free so I shouldn't have to inject any insulin for them - but actually I need so much insulin for them it's not worth my trying to eat them - no matter how much I inject I end up with readings in the high teens - they're worse for my blood sugar than a meal of pasta, scones, and jam would be! So to lower your HbA1c, stick to foods you know you can tolerate.

If you're not already seeing a Diabetes Specialist Nurse regularly (ie at the hospital, not a surgery nurse), it might be worth asking your GP to refer you to one - I've found they are the most understanding of the people I've seen, as they tend to have a good idea of what living with diabetes is like in practice and to be much more adaptable in terms of the advice they give. Sorry if you are unlucky enough to have an unhelpful one!
 
After I posted last night, it occured to me to wonder whether anyone has suggested you change from Metformin to Gliclazide or even to insulin, Barbara? The Metformin doesn't seem to be doing much for your blood sugar, so there would be a good reason to change from the point of view of lowering your HbA1c. And Metformin has a bad reputation for causing digestive problems, so changing away from that would be likely to help with the IBS too. It might be worth discussing this with your GP or diabetes specialist - I know most type 2s get given Metformin to start with, but it's not uncommon to change it if it doesn't work and/or causes stomach upsets, so it's not like you'd be asking for anything too unusual.
 
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