• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Came for support, struggling!

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
K

KW101

New Member
Relationship to Diabetes
Type 1
Hi my name is Karen and I've had type 1 diabetes for 37 years. Didn't always looked after myself as a teen but turned it around in later years. However I am now suffering the effects of my diabetes. I have severe autonomic neuropathy and cardiovascular autonomic neuropathy so my organs are failing to work, some have already packed up completely. Life is pretty hard when you have automatic neuropathy and my life expectancy is really not good. Also I have peripheral neuropathy and two years ago lost my leg, although that was down to medical negligence. I'm now suing two hospitals and trying to make then take diabetic foot care more seriously. I've really struggled in the last six years and have had no support at all. I have PTSD from losing my leg the way I did and as I don't have energy to go out I'm stuck in the house now. I really hope I can find some support or advice. Thank you for listening ☺️☺️

Ps how can I edit my name. I didn't realise it would be used as my profile, derrrrr
 
Last edited:
Welcome KW ! 🙂 B------ Computers ? you only seem to find out how it works after the event don't you ? Somone will prob be along who knows. Good luck 😉
 
Welcome to the group, sorry to hear that you have ad such a hard time of it.... We are all here to help & support each other....

BTW, Admin can change your profile name..... @Northerner
 
KW101 said:
Hi my name is Karen and I've had type 1 diabetes for 37 years. Didn't always looked after myself as a teen but turned it around in later years. However I am now suffering the effects of my diabetes. I have severe autonomic neuropathy and cardiovascular autonomic neuropathy so my organs are failing to work, some have already packed up completely. Life is pretty hard when you have automatic neuropathy and my life expectancy is really not good. Also I have peripheral neuropathy and two years ago lost my leg, although that was down to medical negligence. I'm now suing two hospitals and trying to make then take diabetic foot care more seriously. I've really struggled in the last six years and have had no support at all. I have PTSD from losing my leg the way I did and as I don't have energy to go out I'm stuck in the house now. I really hope I can find some support or advice. Thank you for listening ☺️☺️

Ps how can I edit my name. I didn't realise it would be used as my profile, derrrrr
Click to expand...
Welcome. Just a quick reply, click on your own name at the top and go into your profile, edit and then change to whatever you want to be in here. If that doesn’t make sense ask again, and someone with more sense will give a better answer.
 
Hi Karen and welcome to the forum. 🙂 You've had it pretty tough. If you have a read around the forum feel free to join in and post - good news, bad news, rants, moans, advice, tips etc, etc.
 
KW101 said:
Hi my name is Karen and I've had type 1 diabetes for 37 years. Didn't always looked after myself as a teen but turned it around in later years. However I am now suffering the effects of my diabetes. I have severe autonomic neuropathy and cardiovascular autonomic neuropathy so my organs are failing to work, some have already packed up completely. Life is pretty hard when you have automatic neuropathy and my life expectancy is really not good. Also I have peripheral neuropathy and two years ago lost my leg, although that was down to medical negligence. I'm now suing two hospitals and trying to make then take diabetic foot care more seriously. I've really struggled in the last six years and have had no support at all. I have PTSD from losing my leg the way I did and as I don't have energy to go out I'm stuck in the house now. I really hope I can find some support or advice. Thank you for listening ☺️☺️

Ps how can I edit my name. I didn't realise it would be used as my profile, derrrrr
Click to expand...
Hi, welcome to the forum 🙂 Really sorry to hear about the problems you are having to deal with :( We do have members who share some of these difficulties, so hopefully they will be able to help with any questions or concerns you may have. All of us are here to help and support you in any way we can, so please let us know, and feel free to have a good rant about things if it helps to let off some steam.

p.s. I have sent you an email regarding changing your name.
 
Thank you for all your reply I really appreciate it. Even though I've had diabetes for 37 years it was only six years ago I found out that you can get neuropathy in the brain., the vagus nerve. Taken me all these years to "get" diabetes. Thank you again for your replies
 
Hi KW, and now you have ‘got diabetes’ and Have already taken steps to help yourself by coming on here and asking for help. Is there anything specific we can help you with at present?
 
Hello and welcome to the Forum. I am sorry to hear you have had so many problems. You will find lots of help and advice here.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top