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C-Peptide results

I do feel for you Tony. I had a thought earlier... do you have any other autoimmune diseases?
 
PattiEvans said:
I do feel for you Tony. I had a thought earlier... do you have any other autoimmune diseases?
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Thanks Patti. No other autoimmune diseases. As it’s now 22 years since initial symptoms and diagnosis the feeling is that it is too long since then for antibody tests to be positive. The consultant in her first letter even said that my original diagnosis was 2020, not 2002. Presumably a typo but I really feel she didn’t listen to me at all and had decided before seeing me that I was T2 and should come off insulin!

At least the hospital DSN thinks that’s a stupid idea and much more sensible to stay on insulin, no side effects, other than hypos if I get things wrong, flexibility to eat what and when I want and a have good control with what I am doing. She said that with oral meds my control would definitely worsen and I would end up back on insulin very quickly anyway, so why go through the pain of oral meds for no benefit, only adverse effects.

I’m just hoping that as the consultant’s letter was dated 17th and my face to face discussion with the DSN was not until the 23rd that the DSN’s advice will supersede this letter from the consultant. When asked she said not to worry, she would sort it with the consultant. So, I’m going to wait until the DSN’s letter gets to the GP before doing anything else.

My wife says she would be inclined to make a complaint about the consultant’s letter being sent without any discussion or agreement on treatment plan. However, I don’t want to make things worse.
 
Further update after contacting my DSN today. Apparently she has sent her letter to my GP, requesting change to Abasaglar and Libre 2+ on Jan 3 and said that the GP should have changed my prescription but to give her a shout if there are any problems.

I did mention the consultant’s letter showing up from Dec 17, but she didn’t comment on that. Our friend who was a nurse trainer before retiring did say she would raise a complaint about the consultant’s letter, but I’m still inclined to leave it for now.

However, I will definitely bring it up with my DSN at my next appointment at the beginning of March, at least to register how it affected me so she is aware.
 
Great news! Just spoken with the Clinical Pharmacist at my GP Health Centre today and she can see both my consultant’s letter mentioning coming off insulin and going to oral meds as well as the later DSN’s letter stating staying on insulin, changing to Abasaglar and the Libre 2+.

She said the letters are contradictory but was happy when I told her the DSN meeting was after the consultant’s letter and has now amended by repeat prescriptions to swap Levemir for Abasaglar and Libre 2 for the Libre 2+, keeping the Novorapid as before.

I’m so relieved!

However, I have just received a letter about a follow up appointment with the consultant in April. Not sure how she will be when she finds out I’m on insulin still, but at least my DSN is supporting me to remain on it. My DSN was going to let the consultant know and wasn’t at all worried about me staying on insulin instead of using the oral meds.

I have my next DSN appointment at the beginning of March so will discuss with her and see whether I need to keep the consultant’s appointment, or what to say if I do go, especially given I am effectively going against her thoughts on treatment. But then the consultant’s letter was without any consultation nor agreement with me on a treatment plan!
 
Great to hear @Eternal422

Hopefully the DSN will have spoken to the consultant before your appointment.
 
:party: @Eternal422 that’s great to hear, hopefully the DC will have listened and be in agreement with the DSN when your next seen
 
goodybags said:
:party: @Eternal422 that’s great to hear, hopefully the DC will have listened and be in agreement with the DSN when your next seen
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When I asked my DSN what the consultant would say/do she said not to worry at all and that she (the DSN) would email the consultant to tell her. Our friend (the retired nurse trainer) said that consultants would generally leave the day to day treatment plans to the nurses as they are the ones who have the best practical knowledge and know the patients better than anyone. I think @dannybgoode also echoed this from his knowledge of how things operate where is wife works as a nurse.
 
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