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C-Peptide results

rebrascora said:
Sorry to have hijacked your post somewhat @Eternal422
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No worries at all! So pleased to hear everything went well, so nice to get a good consultant who listens. Sadly mine didn’t and must have missed the point where I said that my HbA1c doubled in the 5 years I was on Metformin for her to suggest coming off insulin now and going onto Metformin! No empathy at all in how any of this affects me mentally, it felt just like an academic exercise without listening to the patient.

It sounds like you are getting some good advice, help and support. So nice to hear all went well for you and like me you can now enjoy Christmas without additional stress and anxiety 🙂
 
@PattiEvans - very interesting to hear about your experiences and it goes to underline that some combinations of technology are better than others and that some can suit one person but not another. This diabetes game very definitely isn’t suitable for a “one size fits all” approach!
 
His only concern with the Isophane options was that they might suffer the same fate as Levemir and be phased out at some point

@rebrascora Wockhardt, who make Hypurin, have promised to maintain the supply of animal insulin, so I think that’s hopeful. Some people can’t use other insulins so Wockhardt are much admired in continuing to produce them to offer the choice we need:

Believing in patient choice
We are the only supplier of animal-derived insulin (porcine, pork derived) in the world. We guaranteed the Department of Health that we would continue to supply the medicine for the foreseeable future, to provide an extremely important choice to those patients who wish to use porcine insulin.
 
@Inka Yes, I read that about Wockhardt when I was doing my homework late last night but didn't want to criticize the consultant, plus any company can go bankrupt of course and stop producing anything, although that seems unlikely. Since they are the largest manufacturer of generic pharmaceuticals in the UK it would be even better if they plugged the gap in the market and started producing a Determir insulin to replace Levemir..... assuming the patent is due to expire soon or perhaps already has.
 
Just looked it up and a pharmaceutical patent is 20 years and it got European approval in 2004, so looks like the patent is up, which might be another reason for Novo Nordisk discontinuing it.
 
I just googled too and there was a suggestion they might (or had) extended it. If the patent had expired this year, I think we’d already see biosimilars.
 
Eternal422 said:
No worries at all! So pleased to hear everything went well, so nice to get a good consultant who listens. Sadly mine didn’t and must have missed the point where I said that my HbA1c doubled in the 5 years I was on Metformin for her to suggest coming off insulin now and going onto Metformin! No empathy at all in how any of this affects me mentally, it felt just like an academic exercise without listening to the patient.

It sounds like you are getting some good advice, help and support. So nice to hear all went well for you and like me you can now enjoy Christmas without additional stress and anxiety 🙂
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Thanks for that. I am really sad and disappointed for you that you didn't have a similar experience to me and I do feel incredibly lucky because I have read enough posts here on the forum to know that many people do not have such a positive experience. I was at least prepared for the worst and thankfully got the best. I think there will be a thank you letter heading to the clinic as I know they got a lot of letters of complaint from patients particularly during Covid when things were rather manic for them.
It turns out, my previous consultant hasn't left or retired but been promoted to the top managerial post within the department and this new consultant has taken over his patients. I suspect this consultant's appointment and approach is a reflection of my previous consultant's values.
 
Inka said:
Interesting article here @rebrascora if you didn’t see it:

pharmaphorum.com

Patients resist Novo Nordisk plan to stop making Levemir

Patient advocacy group APIC has started a campaign to stop Novo Nordisk from following through on a plan to stop making insulin product Levemir
pharmaphorum.com pharmaphorum.com

.
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I knew there were issues and pushback in the USA over it's withdrawal particularly as it was the only basal insulin recommended for pregnant women. Somehow, I can't see them overturning the decision especially now it has been announced that they are doing the same here in the UK nearly a year on from that USA decision, but it does sound like there is hope that a generic may be developed. I wonder if it is worth contacting Wockhardt to express interest in a generic Determir.
 
No, I don’t think they’ll reverse their decision. It smacks of corporate profit maximisation. That article mentioned Ozempic and Wegovy. A cynic would make an apposite comment on those and their profit potential.
 
rebrascora said:
I am really sad and disappointed for you that you didn't have a similar experience to me
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With the consultant, no, but the DSNs are a different world and are so good, very caring, listen to you and explain at whatever level you are happy with, every appointment I learn a bit more from them. I’m very grateful to have easy access to them and still be under their care.
 
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