Adults being diagnosed with the wrong diabetes, study finds

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Just to steer back to the original topic. When I saw the TB consultant last week, he asked me when I was diagnosed with diabetes. When I told him he said you must be T2 not T1 as you were an adult. I replied, I think you'll find that over 40% of new T1 cases are diagnosed in people over 30, and gave him the name of my diabetes consultant in case he wished to speak to him!
Not sure how well that went down🙂, but I wish they would stick to their own specialism and don't try and tell me about MY diabetes.
 
My neurologist made the same mistake - he told me he assumed I was Type 2 because of the age of onset. This was important, because it changed his mindset from assuming I was a just a rotting metabolic syndrome type that he no doubt sees on a regular basis in Glasgae. So did the lack of sensory neuropathy and the spastic muscles. Oh, well, back on course now.
 
mikeyB said:
My neurologist made the same mistake - he told me he assumed I was Type 2 because of the age of onset. This was important, because it changed his mindset from assuming I was a just a rotting metabolic syndrome type that he no doubt sees on a regular basis in Glasgae. So did the lack of sensory neuropathy and the spastic muscles. Oh, well, back on course now.
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I’m just a ‘rotting metabolic syndrome type’ I’m afraid! :(

(And yes I understand why the distinction is more important in your case Mike) 🙂
 
You’re not a rotting metabolic syndrome type, Amigo, You’re just falling to bits, like me.:D
 
I might be both, but add tobacco addiction to the list! LOL
 
Funnily enough we have been discussing Holistic Health self-Assessments for Prostate Cancer survivors who have now been 'discharged' from 'their hospital after X years trouble-free and are now under the care of their GP so now have to 'watch out' for themselves except for eg regular but not frequent blood tests, cos eg an annual PSA blood test should be on the surgery diary system same as our toe-tickling and retinal photography is, and you get reminders.

Nobody thereafter takes the time to ask you how you actually ARE - and because you don't have another actual appointment booked - maybe you don't discuss something that's only niggling/annoying you from time to time, but probably isn't a problem of earth shattering importance.

The idea is you have a list of set questions to ask yourself and if something is a bit of a prob, the program has advice on what you could (or indeed 'should' do about it now.

So then two of us on the committee - me and a retired District Nurse started asking questions.

We both said it's so so easy for so many of these 'things' to get tunnel vision about whatever condition it happens to be - we see this constantly, eg on here - with things designed by students in the mistaken belief it will help diabetes patients in general (cos that's what it's designed to do) without the slightest idea what it's REALLY like to have diabetes droning on constantly for your entire life.

Let's think about an ever present snag to blokes in both scenarios - ED - cos that one's easy to take on board. Joe Soap has ED and Yes it does concern him if he's absolutely totally honest with himself. And he's honest when he answers Yes to that section on either questionnaire. Do the suggestions for action on either one ask him whether he already had it before he got whichever it is, or what caused it? - cos the prostate cancer one doesn't concern itself with eg his diabetic control over the years nor the diabetes one ask if he's undergone a radical prostatectomy!

It's virtually impossible for a diabetic to get a doctor to believe that one big toe nerve on one foot popped its clogs when they dropped something heavy on their foot. Or indeed - that their hardened arteries are mainly if not 100% self inflicted from smoking since their mid teens.
 
trophywench said:
It's virtually impossible for a diabetic to get a doctor to believe that one big toe nerve on one foot popped its clogs when they dropped something heavy on their foot. Or indeed - that their hardened arteries are mainly if not 100% self inflicted from smoking since their mid teens.
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Or that their inability to stop having hypos has to do with having ME which causes (among other things) a delayed reaction to even minimal levels of exercise for anything up to 48 hours ...

Going back to Greyhound Girl's post at the top of the page, I wish diabetes consultants would stick to their own specialism and not try and tell me about MY ME!
 
mikeyB said:
Aye, Juliet, but you must realise that everything you’ve got is caused by “the diabetes”. That’s what I’ve been told many a time. “It’s your diabetes”. I’m going to have that engraved on my gravestone. :confused:
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Hehe! That would rank alongside 'I told you I was ill' 😱 🙂
 
TheClockworkDodo said:
Or that their inability to stop having hypos has to do with having ME which causes (among other things) a delayed reaction to even minimal levels of exercise for anything up to 48 hours ...

Going back to Greyhound Girl's post at the top of the page, I wish diabetes consultants would stick to their own specialism and not try and tell me about MY ME!
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Your talking ridiculous now - each of us is ONLY a group of symptoms - NOT a person!
 
Having read about other people’s experiences here, I feel incredibly lucky that my Spanish GP and her nurse diagnosed me as T1 immediately and sent me straight to A&E with a covering letter...phew!

I like your style, @Greyhound Gal. I’ve been speaking up lately (instead of nodding and smiling) and it feels good, tee hee.😛
 
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