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Group 7-day waking average?

I have one for my Fiasp but I was thinking I could do with another because if my current one broke I would have no means of injecting QA insulin until I got a replacement. Having one for Levemir as well would mean I could potentially change cartridges between injections if one broke until I got a replacement. I appreciate that they are pretty robust but I am guessing breakage/failure is still possible.
You should ALWAYS have a spare in the house, I have a blue for my Novo and red for my Tresiba and a spare of each in the cupboard, so glad I keep spares as this happened a year ago tomorrow actually
Broken Echo.jpg
My DSN ordered my first spare but the current blue spare I ordered when I had to open my current pen and my red spare I added on to my repeat prescription online and got it no problem, get a spare in ASAP!
xx
 
I haven’t won yet, don’t think I’m quite capable of that yet, as it’s qualifying round 1: 9 Hole Cups are 9 Holes only with 2 qualifying rounds & a 1 day final: whole thing takes 3 days from Thursday to Saturday; full tournaments have 3 qualifying rounds of 9 Holes, 1opening round over 2 days of 18 Holes & a final over 2 days of 18 Holes; takes a week from Monday to Sunday! My final will be on Saturday & I’m hoping for a great start for a top 10 medal: JUST pushed out to 11th in last 15 minutes of final during the last one; Easter 9 Hole Cup! Fingers crossed emoji!
 
@Kaylz if you’re braving sensor without tagerderm o_O If it’s starts to get a little loose towards the end you could put a little bit of micropore tape around the sticky pad bit / the very edge of sensor. I sometimes do that but to be fair when it comes to taking the sensor off it’s still stuck firm - it’s just the worry of it may fall off! I know.
if I see it coming loose or anything I'll just put Tegaderm over it as unfortunately @SB2015 micropore and Elastoplast both irritate my skin, SB it has ended up a bit further down my arm than I'd like, fingers crossed it stays put and survives! xx
 
You should ALWAYS have a spare in the house, I have a blue for my Novo and red for my Tresiba and a spare of each in the cupboard, so glad I keep spares as this happened a year ago tomorrow actually
View attachment 14105
My DSN ordered my first spare but the current blue spare I ordered when I had to open my current pen and my red spare I added on to my repeat prescription online and got it no problem, get a spare in ASAP!
xx

Thanks for that Kaylz. I could get by for a couple of days on just Levemir at a push eating very low carb if I did have a breakage, but it is something that I have been thinking about recently. Your photo certainly highlights that need/risk. It is not on repeat and I don't get enough test strips to cover my needs as it is, so I am guessing I will need to self fund a new pen if I want one.... Goodness knows if I will ever get the Libre that the consultant gave me the nod for.
Well, I am not spending any money going out (not that I go out much anyway) so I suppose I should get one ordered pronto.
 
Thanks for that Kaylz. I could get by for a couple of days on just Levemir at a push eating very low carb if I did have a breakage, but it is something that I have been thinking about recently. Your photo certainly highlights that need/risk. It is not on repeat and I don't get enough test strips to cover my needs as it is, so I am guessing I will need to self fund a new pen if I want one.... Goodness knows if I will ever get the Libre that the consultant gave me the nod for.
Well, I am not spending any money going out (not that I go out much anyway) so I suppose I should get one ordered pronto.
You do NOT need to self fund any of your diabetes paraphernalia if it is available on prescription, so don't just give in to whoever is restricting things for you. The government wrote a letter a while back telling all GP surgeries that they must NOT restrict test strips to people on insulin therapy, and of course you need to be able to deliver the insulin with something, so pens are necessary also. Obviously, pens are required less frequently - I think it's probably about 3 years since I last got one, I just requested it as a special request on my prescription. You must also have a back up prescribed too. GPs cannot refuse you these things, it's the law! 🙂 Where is your GP surgery? Let me at 'em! 😱 🙂
 
@Northerner..... You are too late unfortunately.... I just ordered a cheap "out of date" Novo Echo Pen off ebay for £25 + P&P which will do as a spare for my Fiasp if nothing else, but will need to get Levemir cartridges for it when I next need a repeat.... only just started a new box of Levemir so probably about 4 months time.

My surgery have just changed my repeats from 3 weekly to monthly for my strips but kept it at 150 so I now have even less strips to play with, plus I can't order them until the restricted date and then I have to wait a week for them to be available, which makes it 5 weeks in reality. Having said that, because I self fund some, I feel more at liberty to test when I feel like it rather than to a specific system, which allows me to experiment more and get a better grip on what is going on. If they were all NHS strips then I would feel guilty about doing those extra tests or I just wouldn't experiment and therefore not benefit from the extra info and understanding they provide me with.
 
@Northerner..... You are too late unfortunately.... I just ordered a cheap "out of date" Novo Echo Pen off ebay for £25 + P&P which will do as a spare for my Fiasp if nothing else, but will need to get Levemir cartridges for it when I next need a repeat.... only just started a new box of Levemir so probably about 4 months time.

My surgery have just changed my repeats from 3 weekly to monthly for my strips but kept it at 150 so I now have even less strips to play with, plus I can't order them until the restricted date and then I have to wait a week for them to be available, which makes it 5 weeks in reality. Having said that, because I self fund some, I feel more at liberty to test when I feel like it rather than to a specific system, which allows me to experiment more and get a better grip on what is going on. If they were all NHS strips then I would feel guilty about doing those extra tests or I just wouldn't experiment and therefore not benefit from the extra info and understanding they provide me with.
When I moved to a new surgery and they restricted my strips in a similar manner I booked an appointment to discuss why I needed more flexibility over ordering, and why it was logical to allow me more per repeat. Really, the only thing on my repeat that can be tied down to a fixed duration is my Candesartan BP tablets, as I get 56 per scrip, one per day. Everything else is variable, especially strips and insulin, but also needles to some degree. You really shouldn't feel guilty about this I doubt you actually 'waste' anything. Anyway, when you get your Libre you will be able to scan away to you heart's content and hardly need any strips 🙂 You do need to be firm with some GPs because many have little real understanding of modern treatments and recommendations for Type 1 diabetes. Here's the letter from the NHS that has gone out to all surgeries 🙂 Recommends 4-10 strips per day, or more than 10 in certain circumstances - your 150 is inadequate for anything beyond mealtime and bedtime tests, it's the absolute minimum (5 tests a day).

Sorry, I didn't mean to nag! 😉 :D
 
@Northerner
My sister nags me too but it doesn't make any difference, I still feel guilty about my diabetes.... I know, I know!! .... and I feel bad that I am such a financial burden on the NHS, more so during this time when it is under such strain. I am very conscious that we are approaching a huge recession when resources will be even more limited and there will be other people who need things more than me. I can afford a pot or two of extra strips every other month if needs be and I am hopeless at asserting myself for my own benefit, so fighting my corner with the nurse or GP would stress me to death, although not frightened of standing up for others if I feel they need it.
 
@Northerner
My sister nags me too but it doesn't make any difference, I still feel guilty about my diabetes.... I know, I know!! .... and I feel bad that I am such a financial burden on the NHS, more so during this time when it is under such strain. I am very conscious that we are approaching a huge recession when resources will be even more limited and there will be other people who need things more than me. I can afford a pot or two of extra strips every other month if needs be and I am hopeless at asserting myself for my own benefit, so fighting my corner with the nurse or GP would stress me to death, although not frightened of standing up for others if I feel they need it.
I'll hold my tongue 😉 Except to say, you are not a burden - no-one on this forum is a burden on anyone, because we all pay it back in our support for each other. As for the NHS and a financial burden well, we pay for that too, it's just that the government has decided to spend some of our taxes on other things. Or, another way of looking at it is that they've allowed those with 'the broadest shoulders' to hang on to more of their money instead of contributing fairly to the country that makes the money for them :(

Be proud of yourself and the efforts you are making to stay as healthy as you can be 🙂 Illness or disability can strike anyone, and we made a contract when we formed the NHS to all support each other, it belongs to us 🙂

Oops! I'm not very good at holding my tongue! 😱 :D
 
It’s not our fault that we need more medical assistance to live our lives . It’s the hand we’ve been dealt . All we can do is our best to control it . To do this we need strips so please don’t feel so guilty . When I was diagnosed following a DKA I had two nurses looking after me , I felt guilty about that . But at that time I needed this x
 
@Freddie1966
The thing is that l believe I am responsible for my diabetes. I know that I abused my body with sugar for years and yes I know all about type 1 being an autoimmune condition but if my pancreas had not been under so much pressure to produce insulin to counteract the sugar I was eating in the form of sweets and chocolate as well as the carbs from bread and potatoes, it may not have been attacked by my immune system.
My gut feeling is that this is my doing and I don't think even my diabetes consultant could really convince me otherwise. It is part of the reason why I am so strict with myself now.... kind of trying to make amends.... and using the minimum amount of insulin than I can get away with by eating very low carb... and also fearful that I could easily slide back into my old way of eating, if I am not strict about it.
 
@Freddie1966
The thing is that l believe I am responsible for my diabetes. I know that I abused my body with sugar for years and yes I know all about type 1 being an autoimmune condition but if my pancreas had not been under so much pressure to produce insulin to counteract the sugar I was eating in the form of sweets and chocolate as well as the carbs from bread and potatoes, it may not have been attacked by my immune system.
My gut feeling is that this is my doing and I don't think even my diabetes consultant could really convince me otherwise. It is part of the reason why I am so strict with myself now.... kind of trying to make amends.... and using the minimum amount of insulin than I can get away with by eating very low carb... and also fearful that I could easily slide back into my old way of eating, if I am not strict about it.
I just want to give you a big hug and tell you it is not you ur fault. Those antibodies were sat around in you even before you reckon you were abusing your body. They just sat there and then got bored and decided to come out and play, and set off to find your Beta Cells.
The care with which you manage your diabetes saves the NHS paying out in any complications, and you are probably fitter now than before diagnosis. So just be proud of what you do to look after yourself. (I shall stay silent on you spending your own money on strips and pens but leave you to guess what I think)
 
@SB2015 Thanks for your kind words and all hugs gratefully received. 🙂
 
@Freddie1966
The thing is that l believe I am responsible for my diabetes. I know that I abused my body with sugar for years and yes I know all about type 1 being an autoimmune condition but if my pancreas had not been under so much pressure to produce insulin to counteract the sugar I was eating in the form of sweets and chocolate as well as the carbs from bread and potatoes, it may not have been attacked by my immune system.
My gut feeling is that this is my doing and I don't think even my diabetes consultant could really convince me otherwise. It is part of the reason why I am so strict with myself now.... kind of trying to make amends.... and using the minimum amount of insulin than I can get away with by eating very low carb... and also fearful that I could easily slide back into my old way of eating, if I am not strict about it.
I do understand. In the last two years I’ve lost 8 1/2stone basically halved my body weight . I had a very unhealthy relationship with food , I do the same as you eat very low carb diet and in addition I walk the dog a lot so I don’t use much insulin at all . Weekends I get away without taking novarapid by timing my walks . I do understand as I still don’t want certain foods in the house ( my darling husband is very supportive) as I still can’t cope with the temptation. I don’t know much about my family medical history . But I do know that my grandfather was diagnosed with diabetes later in life like me . It’s a c**p hand we have been dealt but we are both doing all we can . I’m sending you massive hugs
 
Oh Wow! @Freddie1966 That is a phenomenal weight loss! Huge congratulations on that.
It is good to know that others have the same feelings of guilt even if I can't shake it off.
I am quite lucky in that I rarely feel tempted and if I do I binge on something low carb, even if it is a huge packet of nuts or pork scratchings. Just as well really as my partner eats cakes and biscuits and puddings like they are going out of fashion. He never eats just one, always 2. I buy him cakes and cream scones and I might pick a sultana off the edge of a scone and eat it but I can control it at that. What I know is that if I have carbs I want more, so as long as I keep my intake below a certain level I don't crave them. Hypo treatments have the ability to derail me but I am very disciplined about the actual treatment itself, it is usually a few hours later when I start gnawing my knuckles!
Again thanks for the hugs and returning them with interest. 🙂
 
Oh Wow! @Freddie1966 That is a phenomenal weight loss! Huge congratulations on that.
It is good to know that others have the same feelings of guilt even if I can't shake it off.
I am quite lucky in that I rarely feel tempted and if I do I binge on something low carb, even if it is a huge packet of nuts or pork scratchings. Just as well really as my partner eats cakes and biscuits and puddings like they are going out of fashion. He never eats just one, always 2. I buy him cakes and cream scones and I might pick a sultana off the edge of a scone and eat it but I can control it at that. What I know is that if I have carbs I want more, so as long as I keep my intake below a certain level I don't crave them. Hypo treatments have the ability to derail me but I am very disciplined about the actual treatment itself, it is usually a few hours later when I start gnawing my knuckles!
Again thanks for the hugs and returning them with interest. 🙂
It’s cost me a fortune in new clothes . Was a size 26 now between an 8 and 10
 
@Freddie1966 Wow! You must feel like you are walking on air after such a weight loss.... well worth the money for a new wardrobe I am sure.
 
@ColinUK How are you doing? Haven't seen you since Monday. Hope you are well and court case is going in your favour.
Thank you 🙂

The court case is at very early stages and will take some time - months at least - but I’m OK with that as it’s what’s right. Obviously can’t share details here but will let you know when it’s resolved. Meanwhile it’s going the opposite way and becoming more complicated but the lawyers are all brilliant and the QC is a very reassuring character.

As for me I’ve struggled this week on and off. Mental health has been an issue partly because of the concerns over the BG levels being all over the place, partly from lockdown boredom and everything that goes with that. I’ve been testing my levels consistently though and they’re coming down. When they do there’s a clear correlation between decent levels and better sleep so I must remember that link for the future. And for me “decent” levels seem to be if I can stay under 8.0 for a whole day. That means I’ve got to relearn how to structure my diet better so I’ve gone back to reading Allen Carr ‘Good Sugar, Bad Sugar’ and Tom Watson’s ‘Downsizing’.

I’ve not tested yet this morning but the range over the past three weeks has been 6.0 to a whopping 20.0 so I’m very pleased with the stats for this week since Tuesdaywhich have been between between 6.0 and 7.8.

xx
 
5.2 this morning. 🙂

Stay safe and well.

Dez
 
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