• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Group 7-day waking average?

7.0 this morning.....considering I had a big pizza last night and still had insulin multi-waving when I went to bed.....not too shabby! 🙂
 
Thanks for asking Alan. The gastroparesis blood sugars seem to behave themselves when I'm on a weight loss diet I guess because there is so liitle food in my stomach at anytime although I still get the nausea and have problems if my evening meal is too big. I'm not using the sensors at the moment because I'm taking panadol extra with ibuprofen and the sensors don't work with the paracetamol. I may have a problem with the pump......to get the pump I have to complete DAFNE....work has said that if I have time for DAFNE it needs to count as sick leave but as I'm currently on at least three weeks sick leave I don't think that they will be impressed if I take another week of sick leave at the beginning of July. At the moment my focus has to be on sorting out the rheumatology problems and fatigue. C'est la vie? At least I'm smiling and laughing most days:D

Well, personally I think it's rather silly to expect you to do DAFNE in order to qualify for the pump, because I would doubt very much if it could teach you much. With your condition and experience of diabetes you would surely not fit the standard course 'profile' - all they really need to know is how much you know about carb-counting and your very unpredictable levels. It might be worth speaking to INPUT as they may be able to advise on a possible way around this requirement - I know other members have not had to do DAFNE, just undergone a short tutorial with a DSN to ensure you had no major misconceptions.

As far as I know, DAFNE teaches carb counting, getting things right at certain times after eating etc. With gastroparesis you simply don't know and need to be more reactive, and a pump would surely be of huge benefit - you're already doing it very crudely with injections (in comparison!).
 
My amazing 5.8 post food last night was a rather rubbish 10.1 this morning.

I did have 5 strawberries, 10 grapes and 10 blueberries before bed though - although didnt get a bedtime reading - i dont seem to have time to do readings regularly enough!!!

Still, am sure I'll get there in the end! I think I need to buy another load of strips so I can test enough as the doc won't supply to test pre / post meal as well as driving etc. Then I need a few days off work / couple of weekends with nothing much to do apart from prick my finger!!! It is tricky to fit the testing in when busy.

On the plus side (perhaps?) I am seeing the "real" DSN next week - not just our practice diabetes nurse. Hopefully she may give me some extra pointers.
 
I am sorry to hear this Doddy :( Have you been able to speak to the doctor yet? I personally think you've been enduring these levels too long without an adequate treatment option and would be tempted to seek a second opinion - is there another doctor you could see?

My GP changed the metformin yesterday to the modified release version, and today i upped the dosage to 1 twice a day. I am waiting on the hospital referral before I can start the byetta. Do you think it would make a difference if I told the GP about my blurred vision? The last 3 days it has been rather bad, and my figures are still slowly rising...
I like the GP I have been seeing, but as she told me to stop testing as there was no point (I didn't take her advice!) I do wonder if she would listen to me with regards the rising levels.
 
I couldn't agree more about DAFNE. Consultant has even agreed that it will be of liitle use because of the gastroparesis. I said that I could prove that I could carb count. But he was adament that the PCT would only consider me for the pump if I had done DAFNE. It was made clear that as far as he was concerned DAFNe was not for negotiation and that a pump application would not be submitted until I had done DAFNE.
 
And I will even have to tell them on DAFNE that if I do certain things that they suggest I will probably have a major hypo e,.g I have to keep my levemir up at night to cover the slow release of carbs........I am a bit fed up because I know that the majority of the DAFNE five days will be a complete waste of time for me
 
I did have 5 strawberries, 10 grapes and 10 blueberries before bed though - although didnt get a bedtime reading - i dont seem to have time to do readings regularly enough!!!

That's a lot of carbohydrate before bed, that would definitely have jacked up your reading.

As for not having enough time, the trick is to develop a routine. I'm assuming probably you brush your teeth and go to the loo before going to bed - what's an extra 5 seconds to add a BG test to that routine? Often, it's not really a case that there isn't enough time, it's a case that we're not in the habit of doing this. Obviously you've got another issue in your restricted access to strips (which is unacceptable conduct by your doctor).
 
I couldn't agree more about DAFNE. Consultant has even agreed that it will be of liitle use because of the gastroparesis. I said that I could prove that I could carb count. But he was adament that the PCT would only consider me for the pump if I had done DAFNE. It was made clear that as far as he was concerned DAFNe was not for negotiation and that a pump application would not be submitted until I had done DAFNE.

Very frustrating for you Amanda, I attended a carb counting type course, it was run by my excellent DSN with input from a dietician. It was a course spread over 6 weeks, once a week for 3 hours on a wednesday afternoon, It was known as SAILING (Self Adjustment Insulin Learning In Groups) I didn't learn much from the course but I enjoyed meeting other type 1s.....incidentally I was the only one that wanted a pump (out of 6).
 
Good afternoon everyone - 3.9 for me this morning !!
 
Afternoon
12.1 despite no supper last night

Sorry to hear that Marie - do you know what you were at before bed? Some people find having a small protein snack before bed will help if you are getting early morning rises after going to bed on a decent level. Hope things improve for you tomorrow 🙂
 
Northerner was 8.1

I'm just speculating, but it may be that since you hadn't eaten your liver was releasing more glucose than usual and thus raised your levels even though you hadn't eaten - this happens to me in the mornings if I don't eat. There are so many variables though, flipping diabetes!
 
You got it Northerner 🙂 not having any carbs tonight just out of curiosity to see what i am at Bedtime and in morning
 
5.3 today...🙂
 
Good morning 🙂 Yes, I am up this early, couldn't sleep as it was too hot last night (not something I've experienced lately!), then the dawn chorus/cacophany began!

I decided to give the lantus a miss last night - thought I would risk it as I'd had an active day and level was 4.8 before bed - woke this morning to 5.5 🙂
 
I was 5.5 too this morning
 
6.5 and another good sleep all night:D:D:D
 
Back
Top