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Not sure what heading to put but just feel like, walking away from all this diabetes tests and organising it needs. Diagnosis was 2018 now sugars unbalanced and what was a weekly check is now 4 times a day. While I wait for specialist diabetes nurse to have a slot to show me how to do my insulin. Just feels like stuck and I’m bored with it all now. Wondered if anyone else got like this
You are absolutely not alone. Diabetes can be relentless, and feel like a full-time job you never signed up for, and can never have any days off from 😱
In fact the feelings you are experiencing are so commonplace, that they have been given a name: diabetes distress, or diabetes burnout
There is research going on to fully understand it and help those experiencing it. For example, this current study:
Hi all, This is an invitation for adults with type 2 diabetes to take part in a research study to co-design and evaluate a virtual reality (VR) based mindfulness application to help reduce diabetes distress and improve quality of life. We want adults with type 2 diabetes to take part in five...
Diabetes distress is what some people feel when they’re overwhelmed by the relentlessness of diabetes. This can lead to diabetes burnout. The way you react to things and the emotions you feel can vary for different people. You might feel frustrated, guilty, sad or worried. Sometimes you might...
You are absolutely not alone. Diabetes can be relentless, and feel like a full-time job you never signed up for, and can never have any days off from 😱
In fact the feelings you are experiencing are so commonplace, that they have been given a name: diabetes distress, or diabetes burnout
There is research going on to fully understand it and help those experiencing it. For example, this current study:
Diabetes distress is what some people feel when they’re overwhelmed by the relentlessness of diabetes. This can lead to diabetes burnout. The way you react to things and the emotions you feel can vary for different people. You might feel frustrated, guilty, sad or worried. Sometimes you might...
Thank you my numbers are high teens and have been for at least 6wks now specialist says yes insulin has sent prescription but got another two weeks until appointment. So trying bring down by diet alone til then. Headaches are terrible I do check ketone and that’s normal. I just want to start and get numbers down
Thank you my numbers are high teens and have been for at least 6wks now specialist says yes insulin has sent prescription but got another two weeks until appointment. So trying bring down by diet alone til then. Headaches are terrible I do check ketone and that’s normal. I just want to start and get numbers down
I reversed my type 2, but it was by eating meat and fish, eggs, cheese - dropping my intake of carbs right down to none for a few days then working up to 50gm a day. I really don't know if that could be done very easily without the animal sourced foods.
I hope that you can sort things out using insulin as I never felt right pre diagnosis - my blood glucose at diagnosis was 17.1mmol/l and I felt very old - and I was hugely overweight.
Would be good to walk away but sadly not, as someone long time diagnosed you forget what life was like before, but it is what it is so you have to make the best of things as you only get one life.
I reversed my type 2, but it was by eating meat and fish, eggs, cheese - dropping my intake of carbs right down to none for a few days then working up to 50gm a day. I really don't know if that could be done very easily without the animal sourced foods.
I hope that you can sort things out using insulin as I never felt right pre diagnosis - my blood glucose at diagnosis was 17.1mmol/l and I felt very old - and I was hugely overweight.
Thank you for your kind reply. Unfortunately my spiritual path means I can’t and won’t eat another animal. It would be like telling a person to eat their family to me. I’m glad it worked for you. My Vegan diet was holding my numbers well until 6 months ago. When lost parent and basically lived on potato and beans was not in a good place. Hence numbers raised
Thank you for your kind reply. Unfortunately my spiritual path means I can’t and won’t eat another animal. It would be like telling a person to eat their family to me. I’m glad it worked for you. My Vegan diet was holding my numbers well until 6 months ago. When lost parent and basically lived on potato and beans was not in a good place. Hence numbers raised
I hope you can get back to your vegan way of eating that was working for you before. A lot more options these days for vegan foods as long a you watch the carb content.
Thank you for your kind reply. Unfortunately my spiritual path means I can’t and won’t eat another animal. It would be like telling a person to eat their family to me. I’m glad it worked for you. My Vegan diet was holding my numbers well until 6 months ago. When lost parent and basically lived on potato and beans was not in a good place. Hence numbers raised
I have met a vegan who ate eggs from their hens which were not fertilised. The egg, although excellent nourishment, did not contain a living creature. The hens were escapees from a factory farm.
Eating something like my favourite concoction of swede mashed with eggs and then fried would be a lot lower carb than potato.
Perfectly easy to make a tasty vegan version with no need for the egg. When my youngest was living at home we would mash swede with plant-based soft ‘cheese’, plant-based ‘butter’, nutritional yeast, and vegan bouillon. Really tasty, and all sorts of other veg can be mashed in as a sort of bubble and squeak. Yum!
I have met a vegan who ate eggs from their hens which were not fertilised. The egg, although excellent nourishment, did not contain a living creature. The hens were escapees from a factory farm.
Eating something like my favourite concoction of swede mashed with eggs and then fried would be a lot lower carb than potato.
I have been actively eating less meat since November, the issue is some of the alternatives are more carby.
If your levels are high it will impact how you feel physically and mentally, so once you bring them down a little you will feel better.
Sadly it cannot be ignored, but last night I found myself in tears because I felt the same. We must battle on, but we also have the strength too. You can do this.
Try little goals, rather than the bigger picture. I know what I am working on today, if I fix that current trend the whole day will be better.
i feel exactly the same, which is why I logged on this morning. I've had type 1 for 47 years, managed over the past 2/3 years to get my control on target, but since getting the latest technology my sugars are high, the tech is constantly faulty, and have been double checking my carb counting, changing infusion sets, infusion and sensor sites and doing everything you're to advised to no avail. It's exhausting and stressful. But on the positive site I'm going to see my consultant next week and know they will review and help. It's not an easy condition to manage and you are not alone.
I feel the same, I am exhausted from worrying constantly about my blood sugar levels. I have IBS ( D ) too!!! I am going to carry on eating as low carb as I can ( hate vegetables ) before I have another episode ( new name for a breakdown ) Good luck too you
Frequently, but knowing that diabetes complications are serious, and can be life-changing, I'm motivated to stick with what I know I have to do. Although I keep a food diary and log what I'm eating, there are days when I lose track of everything - when eating out, for example - and just scrub that day from my diary. Case in point - 9 days into April but only 8 days in my diary as 5th was one of my write-offs.
Sorry @Michelle kaleesi that you are feeling so fed up with your diabetes. It is not uncommon but as others have said we know that we cannot walk away from this. I like @PhoebeC strategy of setting small targets and recognise each achievement.
This forum is a big bonus being able to link up with others that ‘get it’. We are all here for you.
A huge Thank You to you amazing caring people. Spoken with SDN team today, a lovely lady understood and is coming to see me either tomorrow or Thursday to start my insulin so can start to feel better….. really appreciate all your support
Having looked after various birds during my lifetime, most of them are so happy - particularly budgerigars.
We used to have hens which roamed around the orchard during the day, and I grew up having the task of collecting the eggs they laid in various places around the garden and in the hedges so we always had eggs, but they had to be 'candled' to see if they'd started to develop into chicks as we had a cockerel. Those which showed life were put into an incubator to develop.
Hens have lived alongside people for a long time. Quite primitive houses have been found with circular depressions close to the inside of the doorway, and for a very long time it was wondered what they were, until the fad for reenactment started, and the hens wandered in and made dust baths for themselves just beside the door. I feel we have a long standing obligation to make hens happy and keep them safe from predators such as foxes and badgers, and hawks as far as possible.
Thankfully my specialist diabetes nurse understands, as have nurses in team vegan so I’m hoping I’m in safe hands. Practice nurse does her best BUT was not aware my pain medication can push my numbers up.
Exactly my reasons for not being pushed by a general practice nurse. Who said my bloods more important than my beliefs in animal rights. Thankfully my specialist diabetes nurse understands. As have nurses in team vegan so I’m hoping I’m in safe hands. Practice nurse does her best BUT was not aware my pain medication can push my numbers up.