Your favourite gluten free foods

[AndBreathe]

Have you had your results back yet, @helli ?

 

[helli]

Have you had your results back yet, @helli ?

Yes, my blood test came back negative.
As mentioned above, that does not discount Coeliac. Unfortunately, my GP just wants me to wait 3 months and have another test.
I have access to a private GP so will try that.

 

[AndBreathe]

Yes, my blood test came back negative.
As mentioned above, that does not discount Coeliac. Unfortunately, my GP just wants me to wait 3 months and have another test.
I have access to a private GP so will try that.

It's possibly also worthwhile mentioning things at your next Endo appointment. They might be a bit more open minded, and also look a little wider in the AI world, as several conditions can exhibit in a fatigue and gastro sort of way.

Very frustrating for you.

 

[helli]

It's possibly also worthwhile mentioning things at your next Endo appointment. They might be a bit more open minded, and also look a little wider in the AI world, as several conditions can exhibit in a fatigue and gastro sort of way.

Very frustrating for you.

That suggests I have regular Endo appointments.
It is now more than 13 months since my last “annual“ diabetes appointment and I have nothing scheduled.
Definitely time to chase them.

As for the symptom they are more than fatigue and gastro.
Not necessarily coeliac or gluten related although they definitely listed for coeliac.

 

[AndBreathe]

That suggests I have regular Endo appointments.
It is now more than 13 months since my last “annual“ diabetes appointment and I have nothing scheduled.
Definitely time to chase them.

As for the symptom they are more than fatigue and gastro.
Not necessarily coeliac or gluten related although they definitely listed for coeliac.

Those were just the symptoms I recall you citing.

My Endo is excellent, although this year I will be a year, rather than the usual 6 months - partly because of our long winter trip, then it was moved again yesterday.

At the moment, I can't complain as my GP now writes my prescriptions on the Endo's instruction, and I'm well.

As for my GP? I haven't seen a GP F2F since pre-pandemic. I have seen nurses, and we have a couple of paramedics, but I even had a referral to a hand surgeon without a doctor looking at my hand. Bearing in mind both paramedics guess wrongly in their diagnosis (I doubt they see many myxoid cysts in emergency care), I'm unsure what the referring doctor based the referral on.

Hey ho.

 

[Inka]

Just as an example, individuals are rarely investigated for general IgA deficiency.

Is that by blood test @AndBreathe ? When I had my coeliac test they did another test alongside which I’m almost sure was the IgA deficiency. A relative also had a coeliac test along with the additional IgA. I’d told them about it and they asked the doctor to do it but he said they do it automatically anyway. Just wondering if this is what you meant.

@helli Have they checked for pancreatic insufficiency?

 

[AndBreathe]

Just as an example, individuals are rarely investigated for general IgA deficiency.

Is that by blood test @AndBreathe ? When I had my coeliac test they did another test alongside which I’m almost sure was the IgA deficiency. A relative also had a coeliac test along with the additional IgA. I’d told them about it and they asked the doctor to do it but he said they do it automatically anyway. Just wondering if this is what you meant.

@helli Have they checked for pancreatic insufficiency?

Yes the IgA is a blood test. They sometimes do a Calprotectin test alongside, or at another time, which generally identifies gut inflammation - sometimes associated with conditions such as IBS, Crohns etc. Often the gastro bods will insist on an abnormal Calprotectin before accepting referrals.

I'm not sure I agree with that strategy, but then there are lots of things I don't agree with. 🙂

 

[Inka]

Interesting - thank you @AndBreathe 🙂

 

[helli]

Looks like I had an Autoimmunity profile done which consisted of Nuclear autoantibody, Antimitochondrial, Anti-smooth muscle and Parietal cell autoantibody. They all came back as negative so the GP lost interest and my work took over my time and brain power.
I have some further tests booked in 2 months. Meanwhile, I am keeping a "food and sh**" diary (spreadsheet).
I don't feel "ill" so rightly or wrongly, I am just carrying on until the next tests.

 

[AndBreathe]

Looks like I had an Autoimmunity profile done which consisted of Nuclear autoantibody, Antimitochondrial, Anti-smooth muscle and Parietal cell autoantibody. They all came back as negative so the GP lost interest and my work took over my time and brain power.
I have some further tests booked in 2 months. Meanwhile, I am keeping a "food and sh**" diary (spreadsheet).
I don't feel "ill" so rightly or wrongly, I am just carrying on until the next tests.

When I was first tested I had a whole raft, including all of your tests - mainly because of the very significant number of autoimmune conditions in my close family history. A couple of mine were inconclusive, but being asymptomatic we agreed I'd just keep doing as I was doing.

Over time, GF it has become glaringly clear I have some sort of issue with foodstuffs containing gluten, even if not coeliac, but it is sort of becoming clearer that I may have some mal-absorptions issues. Whilst I pass IgA and my calprotectin isn't raised my GP has brushed it asdide. I will mention it to the Endo in October.

Hopefully you'll eventually get to the bottom of things.