You won't hear anything....

[Barfly]

Our surgery along with a lot of others in Coventry have adopted a new online system and although it can allegedly include access to results, according to the Coventry CCG POD - ie the prescription ordering service - the surgery haven't enabled it. On the NHS website - 'Not available'. Took them several years to bother to do it in the first place, so we aren't holding our breaths.

According to the 5 minute blah blah you have to listen to every time you dial the surgery number - you can press one of the options if you want results - and then listen to another pre-recorded message telling you that you can only ring on a Tuesday lunchtime in a one hour slot, to get them. They do NOT wish to tell you the actual numbers, you have to ask for them - I'd got the old lot properly trained, prior to the original computer system, and don't really want to have to start again now I'm 10+ years older - with even less patience.

Jenny-There may be an issue there with human rights legislation, obviously you and I are not the only ones affected by this. I will raise it with UK Diabetes and see what they have to say about this.

 

[Deleted member 21371]

In Germany most of the “house doctors” (gp’s) do a lot of their own testing for basic stuff in house, mostly in small desktop diagnostic computers and they ping you a results email pretty quickly. I recently went for a kidney check up and they had everything tested in their in house lab, I had all the results emailed in 2 days, might be a good model for the NHS to look at

The UK use larger test labs, I've had results the same day with the right timing, next day at worst, now I have online access, with no need to wait for an email.
I'm not sure a small in house lab could provide the same service as a large lab, and the same quality, I think that would be quite a backwards step here.

 

[trophywench]

LOL - before the NHS actually brought this in 'for all' in the first place, myself and another lady on DSF had coincidentally both volunteered to take part in a research meeting about something entirely different with DUK - we were allocated to meetings on different days so never met, even though both held in DUK's London Office.

As these gatherings included a wide selection of folk, much like this forum - Type 1, Type 2, parents of children with D, carers of PWD - wide and varied experience - the also asked the meetings at the end, what we felt about being able to access our own test results and after a good ole chinwag round the table the 'Chair' went round the table asking each one of us to state, 1. Do you want this or not? 2. Why?

As I was smack opposite the 'Chair' hence about the 10th person, and most of the points eg useful to track results so can take more action to adjust them, more exercise, timing of bolus pre meal, basal testing, whatever blah blah already covered, I gave a very short and meaningful reply.

Yes! said I - Because they are MINE, aren't they !

And the formal Minutes of that meeting contained those very words.

I'm flippin fuming about it - but one patient whinging is not going to change anything. The Government are doing enough to wreck the NHS on their own without my help adding pressure at the sharp end, so I'm keeping my head below the parapet thanks. Let someone younger with more energy, who isn't bloody sick and tired of banging their head on a brick wall for the last approx 40 years have a go at it instead. It's so much wider than 'just' PWD, it's ridiculous. If anyone does not wish to access their results - they'll never have to do so - but the people that CAN be bovvered, find it very useful/helpful indeed.

We could never afford a Lamborgini/Ferrari - or a ruddy great house in a rural location - but just cos we can't, is that a good reason they should not now be constructed and offered for sale?

 

[Maca44]

If you don't get the results how on earth can you move forward or gauge your progress or not. Yes I have all my records online but just get private tests as and when I feel I need results fast.

 

[nonethewiser]

It is bad practice - there have been cases where messages did not get to the patient, who assumed all was well only for the true situation to be discovered some time later - and for some people it has turned out very badly indeed.

Dont have issues with it, would be time consumming if they were to ring everyone with results when there's nothing wrong.

 

[Deleted member 21371]

Our surgery along with a lot of others in Coventry have adopted a new online system and although it can allegedly include access to results, according to the Coventry CCG POD - ie the prescription ordering service - the surgery haven't enabled it. On the NHS website - 'Not available'. Took them several years to bother to do it in the first place, so we aren't holding our breaths.

According to the 5 minute blah blah you have to listen to every time you dial the surgery number - you can press one of the options if you want results - and then listen to another pre-recorded message telling you that you can only ring on a Tuesday lunchtime in a one hour slot, to get them. They do NOT wish to tell you the actual numbers, you have to ask for them - I'd got the old lot properly trained, prior to the original computer system, and don't really want to have to start again now I'm 10+ years older - with even less patience.

Mine was initially "not enabled" by default.
From memory, I did have to submit a patient request to gain full access.
It does seem sensible. I'm not the sort of person that worries over results, and I know exactly what each result means.
I can understand that others could, and out of context could indeed panic if they get an unexpected result, so a face to face meeting would be preferable.
Other results could be of bad, if not terminal consequences, and again, reading it off a screen wouldn't be the best way to break the news, so I think vetting the ability to read the results, rather than defaulting everyone to on is the correct way.

 

[trophywench]

Oh yes @travellor - I was instructed to request access from the surgery, precisely the same as we had to do initially when it was first released. As this was during lockdown hence no access to a receptionist except by phone, I was told to email, so I did that about last August. No response whatsoever so sent another in February. Nowt.

 

[Leadinglights]

At our surgery you can e-mail the surgery and say for attention of admin, doctor etc but they cannot e-mail you back but will usually phone if required relatively quickly.
Actually much better than before. Results will be given over the phone but you do have to press them for actual numbers.
I tried to register for online access to results but although I seem to be able to see lots of general information couldn't get the results bit to work.

 

[Drummer]

Dont have issues with it, would be time consumming if they were to ring everyone with results when there's nothing wrong.

It is very time consuming for those who did not get the information that they need urgent treatment for a life threatening disease. It takes the rest of their lives - in only a very few cases, but when it happens it is pretty devastating.

 

[Hardy]

Just to say that if you create an NHS account - doesn't need to be on the APP, you can get access to your GP record - which includes the test results.

 

[Robin]

Just to say that if you create an NHS account - doesn't need to be on the APP, you can get access to your GP record - which includes the test results.

Only if your GP surgery has enabled this on the site, though, some surgeries haven’t enabled it. Our test results section didn’t used to be enabled. (It is now, and we can look them up.) The Surgery can enable or disable whatever bits of your NHS account and record they like. Ours used to allow online appointment booking, but since Covid, they’ve disabled that bit again.

 

[Hardy]

Ahh, I didn't realise that Robin, but it makes sense

 

[AndBreathe]

Oh yes @travellor - I was instructed to request access from the surgery, precisely the same as we had to do initially when it was first released. As this was during lockdown hence no access to a receptionist except by phone, I was told to email, so I did that about last August. No response whatsoever so sent another in February. Nowt.

Trophywench - I wonder if you might find anything is this helpful: https://researchbriefings.files.parliament.uk/documents/SN07103/SN07103.pdf

I feel very strongly about access to my medical records - ALL of it. I have had to have my records corrected twice.

First time stated I had been diagnosed with breast cancer. Fortunately I had seen the original pathologists histology report and had a copy of it. The Practise Manager didn't think it was important to differentiate between a destructive but benign tumour and a malignant one. I bet it would be important to her!

Second time was in the last two weeks, when details of my family history were noted incorrectly. Bearing in mind that is part of a referral to specialist care, it had to be changed. GP was mortified and changed it immediately.

So, whilst results are important (and who has time for all that grovelling to hear one's own data?), keeping an eye on the admin helps too.

I really do hope you can sort this out.

In your shoes, I'd write to my MP. He happens to be a former GP, married to a GP, so not sure if that's helpful or otherwise!

 

[Paulbreen]

The UK use larger test labs, I've had results the same day with the right timing, next day at worst, now I have online access, with no need to wait for an email.
I'm not sure a small in house lab could provide the same service as a large lab, and the same quality, I think that would be quite a backwards step here.

Having experience of both NHS and the German model, the German one is hands down better, much more efficient, Covid vaccines for instance 90,000,000 doses delivered, more than 50% of the population are fully vaccinated, they had a slow start as well but when the machine started properly in early March they did an amazing job and no involvement with gp’s or hospitals, it’s a stand alone project.
I don’t have to wait to see any doctor, consultant, professor regarding any condition at all, maybe a couple of days at most if it’s urgent normally about a week and also I don’t need to be referred to any of the above. Because it is insurance driven it’s much more efficient here.
Also I only have statutory health insurance, more or less the same as your social security, if I went to private insurance they treat you like royalty lol

 

[Drummer]

Just to say that if you create an NHS account - doesn't need to be on the APP, you can get access to your GP record - which includes the test results.

Sorry - no, there is no access allowed.

 

[Deleted member 21371]

Having experience of both NHS and the German model, the German one is hands down better, much more efficient, Covid vaccines for instance 90,000,000 doses delivered, more than 50% of the population are fully vaccinated, they had a slow start as well but when the machine started properly in early March they did an amazing job and no involvement with gp’s or hospitals, it’s a stand alone project.
I don’t have to wait to see any doctor, consultant, professor regarding any condition at all, maybe a couple of days at most if it’s urgent normally about a week and also I don’t need to be referred to any of the above. Because it is insurance driven it’s much more efficient here.
Also I only have statutory health insurance, more or less the same as your social security, if I went to private insurance they treat you like royalty lol

So long as it suits you.

 

[Maca44]

Having experience of both NHS and the German model, the German one is hands down better, much more efficient, Covid vaccines for instance 90,000,000 doses delivered, more than 50% of the population are fully vaccinated, they had a slow start as well but when the machine started properly in early March they did an amazing job and no involvement with gp’s or hospitals, it’s a stand alone project.
I don’t have to wait to see any doctor, consultant, professor regarding any condition at all, maybe a couple of days at most if it’s urgent normally about a week and also I don’t need to be referred to any of the above. Because it is insurance driven it’s much more efficient here.
Also I only have statutory health insurance, more or less the same as your social security, if I went to private insurance they treat you like royalty lol

Sounds good wish I could go Private although I do get some bloods done privately it's very quick.

 

[everydayupsanddowns]

My surgery had to throw the Special Secret Switch in Patient Access too.

Though I gather the new fancy schmancy NHS app gives you access to your test results and records. Has anyone tried that?

 

[AndBreathe]

My surgery had to throw the Special Secret Switch in Patient Access too.

Though I gather the new fancy schmancy NHS app gives you access to your test results and records. Has anyone tried that?

I have the NHS app, but then I also have full record access anyway, so it just reflects that.

Edited to add, the COVID Pass is on there, if that interests anyone.

 

[Teaforme]

I have the NHS App, which gives me access to all my test results done through or commissioned by the GP surgery. It also has my GP record going back donkeys years. I didn't have this access online previously - or anywhere else besides the app. I can order my repeat prescriptions through the app too.
When the app shows abnormal results (e.g. my first HbA1C result), it will usually take another couple of days for the surgery to contact me about them.

I thought the NHS app was being rolled out generally as it is the same app which gives my covid vaccination status.