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Worst Hba1c EVER!!!!!

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Emzi

Well-Known Member
Relationship to Diabetes
Type 1
Got my result :( 11.6
Its the worse result ive ever had in all the years ive had diabetes and i have no idea where to start to correct it :confused:
It annoys me that this time last year I got it down to 8.2 and could see it getting better and it just went pooh!!!!

plus on top of that i have HUGE problems with my job - life really does take the biscuit sometime 😡 i really have had enough
 
Emma, so sorry to hear this, but please try and see this as a turning point. You can start moving in the right direction now, but it doesn't have to be some huge, instant improvement - so don't let it overwhelm you. Were you given any advice at the appointment about how to start making changes?

Just take things day by day. Start recording your tests and injections - and make sure you do them when you need to. At the end of the day, have a look back and have a think about what you did well, and where you might improve things. Think about the reasons why you might have had highs or lows through the day and make a note next to the readings . It doesn't have to take a lot out of your day, just a few minutes, and in fact it is better to make small improvements gradually rather than suddenly crash your levels down quickly. If there is anything you don't understand, come here and ask us about it and we will try and make some suggestions.

Things will get better, Emma, I know from your recent posts that you have the determination and strength! 🙂 I do hope that things get better with the work situation too, as the stress and worry of your job can't be helping. Keep us up to date about what is happening!
 
Hi Emzi, you have my sympathy. My HbA1c has never been brilliant although I achieved 7.3 once - it was a struggle. Last year they said that the pulses in my feet had become weaker and I resolved to try harder. In three months it had gone down from 8.7 to 8.1 - not fantastic but in the right direction. However the last one was 9.5. Sure this was wrong I asked for a retest - 9.3. Were you on anti-biotics recently - I have had three courses in the last three months for various reasons. Good luck with reducing it - race you to the 8 and then the seven. 🙂
 
Emzi - never underestimate the effects of stress on BGs.

I got on the roller coaster trying to correct my high BGs when I had everything going wrong in work. High, correct. Hypo, correct. High, correct. Ad infinitum.

After about 18 months of this - swinging between HI and LO on my meter daily (except at weekends to begin with but then they joined in) - I happened to make contact with a new DSN.

She suggested correcting the highs - which had no other explanation (like miscalculating carbs or forgetting a jab) with only half the amount of insulin I would 'normally' need. Utterly counter-intuitive that one but what I was doing was useless so I may as well try this daft idea .... it worked.

OK I didn't suddenly get non-diabetic numbers but it did even it out to a lower overall number and it stopped my liver dumping when I plummeted, because I didn't plummet any more.

And then with a leveller playing field, you work on that overall. Took months. And then when you feel a bit saner, you just have to tackle what's causing the stress ..... is that an option?
 
Hi Emma.

Can you pinpoint any areas that may you may have lost control of ?

As said, a diary will be a good start. If you can share some of your concerns it will be a good thing also.

Facing it head on is the best way to tackle it. The more you beat yourself up over it, the worse it will seem. Start afresh, take any support offered, and record everything. And test, test, test !! 🙂

Rob
 
If im honest I lost control when I realised that me and my ex partner were having serious trouble. My diabetes just fell '2nd fiddle' so to speak. Its no excuse because ive never really had control. My hba1c has always been either 9 or 10, only last year fell to 8.2 but I feel like I need to be strict and organised to be a 'good' diabetic and Im just not like that. I have a chaotic house - even though there is only me, I have a full time job plus a part time job - most of the part time shifts are overnight at the weekends and i also have to fit seeing my new partner in and friends and family. I wake up early as I have a good commute to my full time job and i also dance twice a week on the evenings. Sooooooo you could def say my life is unorganised and chaotic and i just dont seem to fit diabetes in. I was really hoping that doing the DAFNE course would make it easier or just make it seem more important to me but i just cant seem to find the 'thing' that makes the lightbulb come on in my head thats says 'its THE most important thing'.
Im trying to let my new partner in and be involved and he is constantly asking me about my bloods and injections but he doesnt know the whole ghastly truth about diabetes - nobody in my family does. Ive had it 14 years and if you ask them questions they wouldnt have a clue part from maybe symptoms of a hypo - thats it really. And to be fair they havent got the time or interest to sit and research it and try to get it - they only know what i tell them.
I am def starting to test more. I was overnight last night - (just like tonight) and I was really ill. my blood was 18 and i was dizzy, thought i was going to be sick and faint - i had to lay down for ages but it kept coming and going. I rode it out but i hate that feeling. Its been abit better today.
Work has been HELL. Finally got offered a great job - one ive always wanted so i hand in my notice and they call on friday to say they are retracting the job as the worker is not leaving and its at the early stages of recruitment so they can and no more info was given. So i leave my position in 3 weeks with nowhere to go. ill get 1 months pay so i have to find a new job by end of april before my money runs out and i have a holiday all paid for the first week of april so gunna miss that week of searching too. So as you can see HUGE stress at the moment.

I know im rambled on for a while and given loads of info (prob too much) and i dont want sympathy because i know I make myself this bad by not taking care of myself like I should and I do get my friends and family would be upset if anything happened to me and because of that I will gladly accept any advice to help it stick in my head and get me on the right path :(
 
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Oh Emma, I just want to give you a big Mummy hug! I am the complete opposite to your parents, my son is a T1 and thinks I know TOO much and wants me to back off! I can't help it, I feel a desire to know as much as I can to help him and make sure he lives a long and healthy life.

The one thing that struck me about your post was the fact you had a BG reading of 18 and you 'rode the storm'. Didn't you have a correction dose of insulin? I am assuming you are on MDI with some rapid acting insulin? That would have brought you down pretty quickly and made you feel significantly better I would have thought.

My son's HbA1c started at a shocking 15.8 but within weeks it was in the 7's and after a few months we had got it right down to 6.1. We did that by being pretty fanatical about carb counting. It really wasn't that difficult though. With a pair of modern digital kitchen scales I weighed all his carbs at mealtimes (rice, pasta, potatoes etc) and allowed for a yoghurt or whatever dessert was going to be and calculated his insulin needs from that. I typed up a list and laminated it of all the common things we eat and their carb values - started with cooked rice & pasta, potatoes, bread, then got onto fruit, then things like baked beans and kidney beans, and odd processed things like chicken kievs and fish fingers, I even calculated how many carbs in a batch of homemade yorkshire puddings and fairy cakes and we now have a pretty comprehensive list which I can quickly refer to. All packaged food has the carb information on it, so between us we always knew how much insulin he needed for his breakfast, lunch and dinner. It really doesn't take long to get into, it becomes second nature and you soon know many of the values without looking.

If you remember to test just before eating, you will have some idea if you are still too high and need to add a unit or two of insulin to correct a bit, and before you know it, levels become much better.

That's not to say we have the magic answer, my son then rebelled and stopped injecting at school, then 'forgot' to inject for his main meal at night, and his HbA1c at Christmas had risen shockingly up to 12. He was also not bothering to test either for weeks at a time. His regime has now been changed so he doesn't have to inject at school (he has a mixed insulin at breakfast time to see him through the school day) and it is slowly coming down again.

As others have said on here in the past, testing is the real key, it does show you where you are at, whether your basal need tweaking, and tells you immediately with each meal if you need to correct. Maybe just getting in good habits of testing 4-5 times a day would be a good starting point?

I think it's very positive that you have realised it is becoming a problem, and you want to do something about it. Keep coming on here (when you have the time!!) as everyone is so friendly and helpful and they 'get it'.

Good luck with it all, and the very best of luck in getting a new job. What a pain with what happened over your new post, especially as it's something you wanted so badly. Something will turn up though, keep smiling :D

Tina xx
 
Hi Emma, sorry to hear so much is going on that is stressful! :( I mentioned you post to hubby & he suggested that handing your notice in is more of a 'cooling off' period rather than final, so maybe you could speak to work & kind of present it with a good aspect like 'on reflection i feel very much like i'd rather be a part id this company & what it stands for' or something?! He also said something about the other company being out of order specifically because they had entered into a verbal contract with you when they offered & you accepted- so all in all it seems to me like it might just be worth a visit to your local CAB just to clarify where you stand...at least then it will be easier to figure out a plan of action. 🙂

Meanwhile please try & take care of yourself - it sounds like you are horrendously busy but really, truely if you don't take care of the diabetes first all those other balls are going to go flying, no matter how good a juggler you are. After all, as the awful ad says - 'you're worth it' 🙂
 
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Hear Hear Twitchy. I thought those things too.

And Tina is right - at that level you would 99.9% have had ketones, which are what makes you feel nauseous, giddy and faint. Next step - Diabetic Coma. You really ARE sailing far too close to the wind I'm afraid.

You HAVE to take correction doses of fast acting insulin at that stage and you HAVE to drink water when you are like that - one brings the BG down and the other helps flush the ketones - which are POISONING your body - out.

It's similar to when you are ill with something else that sends your BG soaring. No matter how awful you feel, you have to try and get those BGs down.
 
That's the job offer and the diabetes covered. Now for the next lecture! 🙄

You could do worse than to get some leaflets/printouts on the basics of diabetes. Even better a book such as the Ragnar Hanas "Diabetes for children, adolescents and young adults". Easy to read and bite size facts.

Then pass it round to your partner and then your family (if they have any interest in knowing) so that they can come up to speed. It's not a horror story. Just information. You have diabetes. You need support and understanding from somewhere and if you let nobody in, you're basically shutting them out. Don't do that. Share your experiences so you can lean on them when needed.

All sounds a bit harsh but I can see you burning out in a very short time and that's unacceptable.

I hope you can sort out the work situation. I agree with Twitchy that it was a verbal contract and you should be able to get some compensation at least.

And don't be afraid to tell us to mind our own business if it's too much. No one will be offended. Just don't take on the world's worries alone.🙂

Rob
 
And don't be afraid to tell us to mind our own business if it's too much. No one will be offended. Just don't take on the world's worries alone.🙂

Rob

Definitely! We may not always be able to suggest anything new to you, or have a magic solution but you're not alone...hope you don't mind us offering ideas, we just know what a pita diabetes is & want to help if poss. 😱 hope this week is a much better one for you. X
 
Hi Guys
Last time I came on here was mid march when I had just received my Hba1c result of 11.6 - worst ever!!! and I was in abit of a crisis as I had no idea where my motivation would come from to fix it and I was also in the middle of a job crisis.
Sssooooo its been nearly 2 months and things are slightly better, Job wise my present company decided to retract my resignation and keep me on and after a while a new position came up within the company and I went for it and got it!! Bit more pay and closer to home and its with the same company so no messing with my pay or anything I just simply transfer to the new office and new job on 21st May 🙂
Diabetes wise I have been taking my blood every day :D AND recording it!!! ive had good and bad days but its going well, I dont berate myself if i have a bad reading I just correct and move on - it feels good!!
Ive started to let my partner get involved - we have been together a year so thought it was time, although slowly does it lol
The weird thing is and I know its silly but it doesnt feel like a burdon at the moment im just doing it like normal - im hoping its not short lived.
I have an appointment with my consultant on the 16th May and a new Hba1c being done on the 14th May - Im not expecting miracles at all I just hope its come down from 11.6 (any drop will be greatly welcomed).
I know I only come on here as and when but Im doing alot of changes to my life at the minute so my consistancy in some areas will drop but I promise im like a boomerang....ill always come back 😉
I just wanted to say thanks for your encouragement and kind posts before, they really helped 🙂 Em xx
 
I missed this post first time round but is lovely to see it now and see such good news Emzi well done on the job and the improvement with testing tc, I wish you luck for the appointment on the 16th x
 
Lovely to hear from you Emma 🙂 Well done on getting the new job - I imagine that has taken a lot of stress away and helped you to pay more attention to your diabetes. Sounds like you are doing really well - so well done! Fingers crossed that things go well with the consultant - I hope you see a good improvement in your HbA1c. Whatever it is you will now have some good records you can discuss so that you can formulate a plan for the future.

Update us when you can - you know we are always here for you, and I'm so pleased that you have been doing so well at getting to grips with things! 🙂
 
Hi Em,
glad to see you back and sounding so much more positive. Hope the next A1c is better. As you say any improvement is fantastic.

Would it help to just go back to the old fashioned way of doing things as in having a set amount of carbs for each meal every day? This way perhaps it will help pinpoint problem areas for you.

Good luck with your change of office and new job on the 21st of May.
 
Brilliant going Emz.:D

Good news about the job. But much better about the diabetes and allowing your partner into your world more. 🙂

I find that if I make my decisions alone I have so many bad habits, fears, emotional responses and hangups that I'm often too cautious or over-critical. When I discuss the options with Sarah, I can get a rational view on it.

Really well done and who cares about the HbA1c for now. Work towards the next one and try and edge it down slowly so it just becomes normal to live with a low Hb.🙂

Rob
 
Hi Emma, thanks for updating us - it's really good to know things are improving. 🙂 I hope you soon settle into & enjoy the new job & your HbA1c result reflects thd work you're putting in - just remember they reflect quite a long time back results wise so if it's still higher than you'd like don't be disheartened. Fingers crossed for you! Xx
 
What a positive post!!
Congratulations on your new post 🙂
And I'm sure your next HbA1C will be much better, because you sound much more positive, testing more and taking steps to correct any highs instead of getting cross and doing nothing.
 
Good on you emm ! "Things can only get better" as a song goes 🙂
 
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