martindt1606
Well-Known Member
- Relationship to Diabetes
- Type 3c
we are (and hopefully) remain a minority, I'm currently a patient ambassador for NCUK and in the last 3 years have probably come across 4-5 others and even now 12 years on (as you stated) they still have to educate the diabetic clinic / gp. Pancreatic Cancer had an event a few weeks ago to launch a new diagnosis and support pathway. I asked about support post PT and it resulted in one of those tumbleweed moments - total silence, however did have a good chat with a surgeon from Northern Ireland about a care pathway incorporating CGM pre PT with a transition to closed loop once the patient understands life post PT. Trouble is its not really a priority for PCUK, NCUK, DUK.You were one of two people who responded to my first post in November 2010, the other was @twinnie she hasn’t posted for a very long time. I was so relieved to find out I wasn’t alone. Thanks for that.